Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2019-03-11

AUTHORS

J. Bousquet, A. Bedbrook, W. Czarlewski, G. L. Onorato, S. Arnavielhe, D. Laune, E. Mathieu-Dupas, J. Fonseca, E. Costa, O. Lourenço, M. Morais-Almeida, A. Todo-Bom, M. Illario, E. Menditto, G. W. Canonica, L. Cecchi, R. Monti, L. Napoli, M. T. Ventura, G. De Feo, W. J. Fokkens, N. H. Chavannes, S. Reitsma, A. A. Cruz, J. da Silva, F. S. Serpa, D. Larenas-Linnemann, J. M. Fuentes Perez, Y. R. Huerta-Villalobos, D. Rivero-Yeverino, E. Rodriguez-Zagal, A. Valiulis, R. Dubakiene, R. Emuzyte, V. Kvedariene, I. Annesi-Maesano, H. Blain, P. Bonniaud, I. Bosse, Y. Dauvilliers, P. Devillier, J. F. Fontaine, J. L. Pépin, N. Pham-Thi, F. Portejoie, R. Picard, N. Roche, C. Rolland, P. Schmidt-Grendelmeier, P. Kuna, B. Samolinski, J. M. Anto, V. Cardona, J. Mullol, H. Pinnock, D. Ryan, A. Sheikh, S. Walker, S. Williams, S. Becker, L. Klimek, O. Pfaar, K. C. Bergmann, R. Mösges, T. Zuberbier, R. E. Roller-Wirnsberger, P. V. Tomazic, T. Haahtela, J. Salimäki, S. Toppila-Salmi, E. Valovirta, T. Vasankari, B. Gemicioğlu, A. Yorgancioglu, N. G. Papadopoulos, E. P. Prokopakis, I. G. Tsiligianni, S. Bosnic-Anticevich, R. O’Hehir, J. C. Ivancevich, H. Neffen, M. E. Zernotti, I. Kull, E. Melén, M. Wickman, C. Bachert, P. W. Hellings, G. Brusselle, S. Palkonen, C. Bindslev-Jensen, E. Eller, S. Waserman, L. P. Boulet, J. Bouchard, D. K. Chu, H. J. Schünemann, M. Sova, G. De Vries, M. van Eerd, I. Agache, I. J. Ansotegui, M. Bewick, T. Casale, M. Dykewick, M. Ebisawa, R. Murray, R. Naclerio, Y. Okamoto, D. V. Wallace

ABSTRACT

AimsMobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases.MethodsMASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients.StakeholdersInclude patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors.ResultsMASK is deployed in 23 countries and 17 languages. 26,000 users have registered.EU grants (2018)MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour).Lessons learnt(i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases. More... »

PAGES

16

References to SciGraph publications

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  • Journal

    TITLE

    Clinical and Translational Allergy

    ISSUE

    1

    VOLUME

    9

    Author Affiliations

  • Humboldt-Universität zu Berlin, Berlin Institute of Health, Comprehensive Allergy Center, Department of Dermatology and Allergy, Charité, Universitätsmedizin Berlin, Berlin, Germany
  • MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve, 371 Avenue du Doyen Gaston Giraud, 34295, Montpellier Cedex 5, France
  • Medical Consulting Czarlewski, Levallois, France
  • KYomed INNOV, Montpellier, France
  • Center for Research in Health Technology and Information Systems, Faculdade de Medicina da Universidade do Porto, Medida, Lda Porto, Portugal
  • UCIBIO, REQUINTE, Faculty of Pharmacy and Competence Center on Active and Healthy Ageing, University of Porto (Porto4Ageing), Porto, Portugal
  • Faculty of Health Sciences and CICS – UBI, Health Sciences Research Centre, University of Beira Interior, Covilhã, Portugal
  • Allergy Center, CUF Descobertas Hospital, Lisbon, Portugal
  • Imunoalergologia, Centro Hospitalar Universitário de Coimbra and Faculty of Medicine, University of Coimbra, Coimbra, Portugal
  • Division for Health Innovation, Campania Region and Federico II University Hospital Naples (R&D and DISMET), Naples, Italy
  • CIRFF, Federico II University, Naples, Italy
  • Personalized Medicine Clinic Asthma and Allergy, Humanitas Research Hospital, Humanitas University, Rozzano, Milan, Italy
  • SOS Allergology and Clinical Immunology, USL Toscana Centro, Prato, Italy
  • Department of Medical Sciences, Allergy and Clinical Immunology Unit, University of Torino & Mauriziano Hospital, Turin, Italy
  • Consortium of Pharmacies and Services COSAFER, Salerno, Italy
  • Unit of Geriatric Immunoallergology, University of Bari Medical School, Bari, Italy
  • Department of Medicine, Surgery and Dentistry “Scuola Medica Salernitana”, University of Salerno, Salerno, Italy
  • Department of Otorhinolaryngology, Amsterdam University Medical Centre (AMC), Amsterdam, The Netherlands
  • Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands
  • ProAR – Nucleo de Excelencia em Asma, Federal University of Bahia, Vitória da Conquista, Brazil
  • WHO GARD Planning Group, Salvador, Brazil
  • Asthma Reference Center, Escola Superior de Ciencias da Santa Casa de Misericordia de Vitoria, Vitória, Esperito Santo, Brazil
  • Center of Excellence in Asthma and Allergy, Médica Sur Clinical Foundation and Hospital, Mexico City, Mexico
  • Hospital General Regional 1 “Dr Carlos Mc Gregor Sanchez Navarro” IMSS, Mexico City, Mexico
  • Allergist, Mexico City, Mexico
  • European Academy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium
  • Clinic of Infectious, Chest Diseases, Dermatology and Allergology, Vilnius University, Vilnius, Lithuania
  • Clinic of Children’s Diseases, Faculty of Medicine, Vilnius University, Vilnius, Lithuania
  • Faculty of Medicine, Vilnius University, Vilnius, Lithuania
  • Epidemiology of Allergic and Respiratory Diseases, Department Institute Pierre Louis of Epidemiology and Public Health, INSERM, Sorbonne Université, Medical School Saint Antoine, Paris, France
  • EA 2991, Euromov, University Montpellier, Montpellier, France
  • CHU Dijon, Dijon, France
  • Allergist, La Rochelle, France
  • Inserm U1061, Montpellier, France
  • UPRES EA220, Pôle des Maladies des Voies Respiratoires, Hôpital Foch, Université Paris-Saclay, Suresnes, France
  • Allergist, Reims, France
  • CHU de Grenoble, Grenoble, France
  • Allergy Department, Pasteur Institute, Paris, France
  • Conseil Général de l’Economie Ministère de l’Economie, de l’Industrie et du Numérique, Paris, France
  • Pneumologie et Soins Intensifs Respiratoires, Hôpitaux Universitaires Paris, Centre Hôpital Cochin, Paris, France
  • Association Asthme et Allergie, Paris, France
  • Allergy Unit, Department of Dermatology, University Hospital of Zurich, Zurich, Switzerland
  • Division of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz, Poland
  • Department of Prevention of Envinronmental Hazards and Allergology, Medical University of Warsaw, Warsaw, Poland
  • Universitat Pompeu Fabra (UPF), Barcelona, Spain
  • Allergy Section, Department of Internal Medicine, Hospital Vall ‘dHebron & ARADyAL Research Network, Barcelona, Spain
  • Clinical and Experimental Respiratory Immunoallergy, IDIBAPS, CIBERES, University of Barcelona, Barcelona, Spain
  • Asthma UK Centre for Applied Research, The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK
  • Honorary Clinical Research Fellow, Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, Medical School, University of Edinburgh, Edinburgh, UK
  • The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK
  • Asthma UK, Mansell Street, London, UK
  • International Primary Care Respiratory Group IPCRG, Aberdeen, Scotland, UK
  • Department of Otolaryngology, Head and Neck Surgery, University of Mainz, Mainz, Germany
  • Center for Rhinology and Allergology, Wiesbaden, Germany
  • Department of Otorhinolaryngology, Head and Neck Surgery, Section of Rhinology and Allergy, University Hospital Marburg, Phillipps-Universität Marburg, Marburg, Germany
  • Berlin Institute of Health, Comprehensive Allergy-Centre, Department of Dermatology and Allergy, Member of GA2LEN, Berlin, Germany
  • CRI-Clinical Research International-Ltd, Hamburg, Germany
  • Department of Internal Medicine, Medical University of Graz, Graz, Austria
  • Department of ENT, Medical University of Graz, Graz, Austria
  • Skin and Allergy Hospital, Helsinki University Hospital, University of Helsinki, Helsinki, Finland
  • Association of Finnish Pharmacies, Helsinki, Finland
  • Department of Lung Diseases and Clinical Immunology, Terveystalo Allergy Clinic, University of Turku, Turku, Finland
  • FILHA, Finnish Lung Association, Helsinki, Finland
  • Department of Pulmonary Diseases, Cerrahpasa Faculty of Medicine, Istanbul University-Cerrahpasa, Istambul, Turkey
  • Department of Pulmonary Diseases, Faculty of Medicine, Celal Bayar University, Manisa, Turkey
  • Allergy Department, 2nd Pediatric Clinic, Athens General Children’s Hospital “P&A Kyriakou”, University of Athens, Athens, Greece
  • Department of Otorhinolaryngology, University of Crete School of Medicine, Heraklion, Greece
  • Health Planning Unit, Department of Social Medicine, Faculty of Medicine, University of Crete, Crete, Greece
  • University of Sydney and Woolcock Emphysema Centre and Local Health District, Woolcock Institute of Medical Research, Glebe, NSW, Australia
  • Department of Immunology, Monash University, Melbourne, VIC, Australia
  • Servicio de Alergia e Immunologia, Clinica Santa Isabel, Buenos Aires, Argentina
  • Director of Center of Allergy, Immunology and Respiratory Diseases, Santa Fe, Argentina Center for Allergy and Immunology, Santa Fe, Argentina
  • Universidad Católica de Córdoba, Córdoba, Argentina
  • Sachs’ Children and Youth Hospital, Södersjukhuset, Stockholm and Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden
  • Centre for Clinical Research Sörmland, Uppsala University, Eskilstuna, Sweden
  • Upper Airways Research Laboratory, ENT Dept, Ghent University Hospital, Ghent, Belgium
  • Academic Medical Center, Univ of Amsterdam, Amsterdam, The Netherlands
  • Department of Respiratory Medicine, Ghent University Hospital, Ghent, Belgium
  • EFA European Federation of Allergy and Airways Diseases Patients’ Associations, Brussels, Belgium
  • Department of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA), Odense, Denmark
  • Department of Medicine, Clinical Immunology and Allergy, McMaster University, Hamilton, ON, Canada
  • Quebec Heart and Lung Institute, Laval University, Québec City, QC, Canada
  • Clinical Medecine, Laval’s University, Quebec City, Canada
  • Medecine Department, Hôpital de la Malbaie, Quebec, Canada
  • Department of Health Research Methods, Evidence and Impact, Division of Immunology and Allergy, McMaster University, Hamilton, ON, Canada
  • Peercode BV, Geldermalsen, The Netherlands
  • Faculty of Medicine, Transylvania University, Brasov, Romania
  • Department of Allergy and Immunology, Hospital Quirón Bizkaia, Erandio, Spain
  • iQ4U Consultants Ltd, London, UK
  • Division of Allergy/Immunology, University of South Florida, Tampa, USA
  • Section of Allergy and Immunology, Saint Louis University School of Medicine, Saint Louis, MO, USA
  • Clinical Reserch Center for Allergy and Rheumatology, Sagamihara National Hospital, Sagamihara, Japan
  • Honorary Research Fellow, OPC, Cambridge, UK
  • Johns Hopkins School of Medicine, Baltimore, MD, USA
  • Department of Otorhinolaryngology, Chiba University Hospital, Chiba, Japan
  • Nova Southeastern University, Fort Lauderdale, FL, USA
  • Identifiers

    URI

    http://scigraph.springernature.com/pub.10.1186/s13601-019-0252-0

    DOI

    http://dx.doi.org/10.1186/s13601-019-0252-0

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1112689663

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/30911372


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    18 schema:description AimsMobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases.MethodsMASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients.StakeholdersInclude patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors.ResultsMASK is deployed in 23 countries and 17 languages. 26,000 users have registered.EU grants (2018)MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour).Lessons learnt(i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.
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    96 schema:name Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
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