Assessing the feasibility of a web-based registry for multiple orphan lung diseases: the Australasian Registry Network for Orphan Lung Disease ... View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2016-12

AUTHORS

K. Casamento, A. Laverty, M. Wilsher, J. Twiss, E. Gabbay, I. Glaspole, A. Jaffe, On behalf the Pulmonary Interstitial Vascular Organisational Taskforce (PIVOT) of the Lung Foundation Australia

ABSTRACT

BACKGROUND: We investigated the feasibility of using an online registry to provide prevalence data for multiple orphan lung diseases in Australia and New Zealand. METHODS: A web-based registry, The Australasian Registry Network of Orphan Lung Diseases (ARNOLD) was developed based on the existing British Paediatric Orphan Lung Disease Registry. All adult and paediatric respiratory physicians who were members of the Thoracic Society of Australia and New Zealand in Australia and New Zealand were sent regular emails between July 2009 and June 2014 requesting information on patients they had seen with any of 30 rare lung diseases. Prevalence rates were calculated using population statistics. RESULTS: Emails were sent to 649 Australian respiratory physicians and 65 in New Zealand. 231 (32.4%) physicians responded to emails a total of 1554 times (average 7.6 responses per physician). Prevalence rates of 30 rare lung diseases are reported. CONCLUSIONS: A multi-disease rare lung disease registry was implemented in the Australian and New Zealand health care settings that provided prevalence data on orphan lung diseases in this region but was limited by under reporting. More... »

PAGES

42

Identifiers

URI

http://scigraph.springernature.com/pub.10.1186/s13023-016-0389-z

DOI

http://dx.doi.org/10.1186/s13023-016-0389-z

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1020544870

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/27090393


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Public Health and Health Services", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Australia", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Humans", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Lung Diseases", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "New Zealand", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Prevalence", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Rare Diseases", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Registries", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "Sydney Children\u2019s Hospitals Network", 
          "id": "https://www.grid.ac/institutes/grid.430417.5", 
          "name": [
            "Sydney Children\u2019s Hospitals Network, Sydney, Australia"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Casamento", 
        "givenName": "K.", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Great Ormond Street Hospital for Children NHS Foundation Trust", 
          "id": "https://www.grid.ac/institutes/grid.424537.3", 
          "name": [
            "Great Ormond Street Hospital for Children NHS Foundation Trust, London, England"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Laverty", 
        "givenName": "A.", 
        "id": "sg:person.0761436232.87", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0761436232.87"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Auckland District Health Board", 
          "id": "https://www.grid.ac/institutes/grid.414057.3", 
          "name": [
            "Auckland District Health Board, Auckland, New Zealand"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Wilsher", 
        "givenName": "M.", 
        "id": "sg:person.01160717025.37", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01160717025.37"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Starship Children's Health", 
          "id": "https://www.grid.ac/institutes/grid.414054.0", 
          "name": [
            "Starship Children\u2019s Health, Grafton, Auckland, New Zealand"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Twiss", 
        "givenName": "J.", 
        "id": "sg:person.01302066111.34", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01302066111.34"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Notre Dame Australia", 
          "id": "https://www.grid.ac/institutes/grid.266886.4", 
          "name": [
            "Institute for Health Research, University of Notre Dame, Fremantle, WA, Australia"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Gabbay", 
        "givenName": "E.", 
        "id": "sg:person.0617767634.42", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0617767634.42"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Monash University", 
          "id": "https://www.grid.ac/institutes/grid.1002.3", 
          "name": [
            "Alfred Hospital, Melbourne, Australia", 
            "Monash University, Melbourne, Australia"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Glaspole", 
        "givenName": "I.", 
        "id": "sg:person.0601144746.84", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0601144746.84"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "UNSW Australia", 
          "id": "https://www.grid.ac/institutes/grid.1005.4", 
          "name": [
            "School of Women\u2019s and Children\u2019s Health, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia", 
            "Department of Respiratory Medicine, Sydney Children\u2019s Hospital Randwick, Sydney, NSW, Australia"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Jaffe", 
        "givenName": "A.", 
        "id": "sg:person.01275706001.46", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01275706001.46"
        ], 
        "type": "Person"
      }, 
      {
        "familyName": "On behalf the Pulmonary Interstitial Vascular Organisational Taskforce (PIVOT) of the Lung Foundation Australia", 
        "type": "Person"
      }
    ], 
    "citation": [
      {
        "id": "https://doi.org/10.1136/adc.2007.134940", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1005325164"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/ppul.20783", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006058711"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2011-0567", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1018933599"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1164/rccm.201305-0923st", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1024479309"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/1750-1172-5-s1-o21", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1025866155", 
          "https://doi.org/10.1186/1750-1172-5-s1-o21"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/s0140-6736(10)60680-0", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1026380850"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1183/09031936.00053606", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1026969321"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.cct.2010.06.007", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1027132827"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1164/rccm.2208002", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1027922151"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1164/rccm.2208006", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1038995539"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1111/j.1440-1754.2009.01608.x", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1039250614"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1111/j.1440-1754.2009.01608.x", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1039250614"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/1750-1172-6-57", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1040933794", 
          "https://doi.org/10.1186/1750-1172-6-57"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/1750-1172-6-49", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1041119215", 
          "https://doi.org/10.1186/1750-1172-6-49"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1136/thoraxjnl-2012-203201", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1047260873"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1136/thoraxjnl-2012-203201", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1047260873"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1093/qjmed/hci128", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1050927083"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/1750-1172-9-81", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1052314243", 
          "https://doi.org/10.1186/1750-1172-9-81"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1093/pubmed/fdv099", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1059982313"
        ], 
        "type": "CreativeWork"
      }
    ], 
    "datePublished": "2016-12", 
    "datePublishedReg": "2016-12-01", 
    "description": "BACKGROUND: We investigated the feasibility of using an online registry to provide prevalence data for multiple orphan lung diseases in Australia and New Zealand.\nMETHODS: A web-based registry, The Australasian Registry Network of Orphan Lung Diseases (ARNOLD) was developed based on the existing British Paediatric Orphan Lung Disease Registry. All adult and paediatric respiratory physicians who were members of the Thoracic Society of Australia and New Zealand in Australia and New Zealand were sent regular emails between July 2009 and June 2014 requesting information on patients they had seen with any of 30 rare lung diseases. Prevalence rates were calculated using population statistics.\nRESULTS: Emails were sent to 649 Australian respiratory physicians and 65 in New Zealand. 231 (32.4%) physicians responded to emails a total of 1554 times (average 7.6 responses per physician). Prevalence rates of 30 rare lung diseases are reported.\nCONCLUSIONS: A multi-disease rare lung disease registry was implemented in the Australian and New Zealand health care settings that provided prevalence data on orphan lung diseases in this region but was limited by under reporting.", 
    "genre": "research_article", 
    "id": "sg:pub.10.1186/s13023-016-0389-z", 
    "inLanguage": [
      "en"
    ], 
    "isAccessibleForFree": true, 
    "isPartOf": [
      {
        "id": "sg:journal.1036535", 
        "issn": [
          "1750-1172"
        ], 
        "name": "Orphanet Journal of Rare Diseases", 
        "type": "Periodical"
      }, 
      {
        "issueNumber": "1", 
        "type": "PublicationIssue"
      }, 
      {
        "type": "PublicationVolume", 
        "volumeNumber": "11"
      }
    ], 
    "name": "Assessing the feasibility of a web-based registry for multiple orphan lung diseases: the Australasian Registry Network for Orphan Lung Disease (ARNOLD) experience", 
    "pagination": "42", 
    "productId": [
      {
        "name": "readcube_id", 
        "type": "PropertyValue", 
        "value": [
          "61e46c1c9797d27b4027684f83dcca4b2e51f3627e2d88be2a57d93ccf16dc5f"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "27090393"
        ]
      }, 
      {
        "name": "nlm_unique_id", 
        "type": "PropertyValue", 
        "value": [
          "101266602"
        ]
      }, 
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1186/s13023-016-0389-z"
        ]
      }, 
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1020544870"
        ]
      }
    ], 
    "sameAs": [
      "https://doi.org/10.1186/s13023-016-0389-z", 
      "https://app.dimensions.ai/details/publication/pub.1020544870"
    ], 
    "sdDataset": "articles", 
    "sdDatePublished": "2019-04-10T18:20", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-uberresearch-data-dimensions-target-20181106-alternative/cleanup/v134/2549eaecd7973599484d7c17b260dba0a4ecb94b/merge/v9/a6c9fde33151104705d4d7ff012ea9563521a3ce/jats-lookup/v90/0000000001_0000000264/records_8675_00000512.jsonl", 
    "type": "ScholarlyArticle", 
    "url": "http://link.springer.com/10.1186%2Fs13023-016-0389-z"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1186/s13023-016-0389-z'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1186/s13023-016-0389-z'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1186/s13023-016-0389-z'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1186/s13023-016-0389-z'


 

This table displays all metadata directly associated to this object as RDF triples.

216 TRIPLES      21 PREDICATES      53 URIs      28 LITERALS      16 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1186/s13023-016-0389-z schema:about N2f86290cdb36401dad8462f38ebda006
2 N319be09ac51e428b8ee12ae3ddfd0c1c
3 N3b106ecd62b149e3b1410b154bf2bd86
4 N584b52bea2e04f5083e0fc9dd9eb05fb
5 N79011595584d48e8ae66ec5806498eb5
6 N9eb3cb54f7b242c7b3b4a63a86f713f7
7 Nff02af22e929411894d9062d017558a2
8 anzsrc-for:11
9 anzsrc-for:1117
10 schema:author N5c7a3fb07f594df9b6d8eeec14038e90
11 schema:citation sg:pub.10.1186/1750-1172-5-s1-o21
12 sg:pub.10.1186/1750-1172-6-49
13 sg:pub.10.1186/1750-1172-6-57
14 sg:pub.10.1186/1750-1172-9-81
15 https://doi.org/10.1002/ppul.20783
16 https://doi.org/10.1016/j.cct.2010.06.007
17 https://doi.org/10.1016/s0140-6736(10)60680-0
18 https://doi.org/10.1093/pubmed/fdv099
19 https://doi.org/10.1093/qjmed/hci128
20 https://doi.org/10.1111/j.1440-1754.2009.01608.x
21 https://doi.org/10.1136/adc.2007.134940
22 https://doi.org/10.1136/thoraxjnl-2012-203201
23 https://doi.org/10.1164/rccm.201305-0923st
24 https://doi.org/10.1164/rccm.2208002
25 https://doi.org/10.1164/rccm.2208006
26 https://doi.org/10.1183/09031936.00053606
27 https://doi.org/10.1542/peds.2011-0567
28 schema:datePublished 2016-12
29 schema:datePublishedReg 2016-12-01
30 schema:description BACKGROUND: We investigated the feasibility of using an online registry to provide prevalence data for multiple orphan lung diseases in Australia and New Zealand. METHODS: A web-based registry, The Australasian Registry Network of Orphan Lung Diseases (ARNOLD) was developed based on the existing British Paediatric Orphan Lung Disease Registry. All adult and paediatric respiratory physicians who were members of the Thoracic Society of Australia and New Zealand in Australia and New Zealand were sent regular emails between July 2009 and June 2014 requesting information on patients they had seen with any of 30 rare lung diseases. Prevalence rates were calculated using population statistics. RESULTS: Emails were sent to 649 Australian respiratory physicians and 65 in New Zealand. 231 (32.4%) physicians responded to emails a total of 1554 times (average 7.6 responses per physician). Prevalence rates of 30 rare lung diseases are reported. CONCLUSIONS: A multi-disease rare lung disease registry was implemented in the Australian and New Zealand health care settings that provided prevalence data on orphan lung diseases in this region but was limited by under reporting.
31 schema:genre research_article
32 schema:inLanguage en
33 schema:isAccessibleForFree true
34 schema:isPartOf N265cfab54cdf42048f86d0db74fe337c
35 N270231f0e68a4ccfb7f4382dce8a1bc8
36 sg:journal.1036535
37 schema:name Assessing the feasibility of a web-based registry for multiple orphan lung diseases: the Australasian Registry Network for Orphan Lung Disease (ARNOLD) experience
38 schema:pagination 42
39 schema:productId N159f98b2aef44345a2253978f2fa7244
40 N41bb81d0cdf144e0ade31fd9975591a2
41 N444c0cb898f2460c838148ea0d12eea4
42 N6ee2f33d934348a98662351efa839c2a
43 Nb826f936c05d4ea6928615d191e4ba80
44 schema:sameAs https://app.dimensions.ai/details/publication/pub.1020544870
45 https://doi.org/10.1186/s13023-016-0389-z
46 schema:sdDatePublished 2019-04-10T18:20
47 schema:sdLicense https://scigraph.springernature.com/explorer/license/
48 schema:sdPublisher N4977d11f8d56405799f14f53672c1bbb
49 schema:url http://link.springer.com/10.1186%2Fs13023-016-0389-z
50 sgo:license sg:explorer/license/
51 sgo:sdDataset articles
52 rdf:type schema:ScholarlyArticle
53 N005eb60dd52e4c31ae915873feb0314f rdf:first sg:person.01302066111.34
54 rdf:rest N1e77f7fc88674eefb94bbf958d9a62ed
55 N159f98b2aef44345a2253978f2fa7244 schema:name doi
56 schema:value 10.1186/s13023-016-0389-z
57 rdf:type schema:PropertyValue
58 N1e77f7fc88674eefb94bbf958d9a62ed rdf:first sg:person.0617767634.42
59 rdf:rest N71380cb627b54fbf8599fd7771a9a2d0
60 N265cfab54cdf42048f86d0db74fe337c schema:issueNumber 1
61 rdf:type schema:PublicationIssue
62 N270231f0e68a4ccfb7f4382dce8a1bc8 schema:volumeNumber 11
63 rdf:type schema:PublicationVolume
64 N2f86290cdb36401dad8462f38ebda006 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
65 schema:name Humans
66 rdf:type schema:DefinedTerm
67 N319be09ac51e428b8ee12ae3ddfd0c1c schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
68 schema:name Rare Diseases
69 rdf:type schema:DefinedTerm
70 N3b106ecd62b149e3b1410b154bf2bd86 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
71 schema:name Lung Diseases
72 rdf:type schema:DefinedTerm
73 N41bb81d0cdf144e0ade31fd9975591a2 schema:name dimensions_id
74 schema:value pub.1020544870
75 rdf:type schema:PropertyValue
76 N444c0cb898f2460c838148ea0d12eea4 schema:name nlm_unique_id
77 schema:value 101266602
78 rdf:type schema:PropertyValue
79 N4977d11f8d56405799f14f53672c1bbb schema:name Springer Nature - SN SciGraph project
80 rdf:type schema:Organization
81 N584b52bea2e04f5083e0fc9dd9eb05fb schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
82 schema:name Prevalence
83 rdf:type schema:DefinedTerm
84 N5c7a3fb07f594df9b6d8eeec14038e90 rdf:first N6509ce2608cf460588b80aed14f650e4
85 rdf:rest N6b16be78da8247abb7486b73e5577a19
86 N6372c8eac2a04a89bf33dab851006e98 schema:familyName On behalf the Pulmonary Interstitial Vascular Organisational Taskforce (PIVOT) of the Lung Foundation Australia
87 rdf:type schema:Person
88 N6509ce2608cf460588b80aed14f650e4 schema:affiliation https://www.grid.ac/institutes/grid.430417.5
89 schema:familyName Casamento
90 schema:givenName K.
91 rdf:type schema:Person
92 N6b16be78da8247abb7486b73e5577a19 rdf:first sg:person.0761436232.87
93 rdf:rest N751be0bc13e847bc871e0c57a6579226
94 N6ee2f33d934348a98662351efa839c2a schema:name pubmed_id
95 schema:value 27090393
96 rdf:type schema:PropertyValue
97 N71380cb627b54fbf8599fd7771a9a2d0 rdf:first sg:person.0601144746.84
98 rdf:rest Nb16d2694d8a44dd08bfe121fe2e0e107
99 N751be0bc13e847bc871e0c57a6579226 rdf:first sg:person.01160717025.37
100 rdf:rest N005eb60dd52e4c31ae915873feb0314f
101 N79011595584d48e8ae66ec5806498eb5 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
102 schema:name Registries
103 rdf:type schema:DefinedTerm
104 N9eb3cb54f7b242c7b3b4a63a86f713f7 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
105 schema:name New Zealand
106 rdf:type schema:DefinedTerm
107 Nb16d2694d8a44dd08bfe121fe2e0e107 rdf:first sg:person.01275706001.46
108 rdf:rest Nc349fba012fe492cbf5ce5e97c30841e
109 Nb826f936c05d4ea6928615d191e4ba80 schema:name readcube_id
110 schema:value 61e46c1c9797d27b4027684f83dcca4b2e51f3627e2d88be2a57d93ccf16dc5f
111 rdf:type schema:PropertyValue
112 Nc349fba012fe492cbf5ce5e97c30841e rdf:first N6372c8eac2a04a89bf33dab851006e98
113 rdf:rest rdf:nil
114 Nff02af22e929411894d9062d017558a2 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
115 schema:name Australia
116 rdf:type schema:DefinedTerm
117 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
118 schema:name Medical and Health Sciences
119 rdf:type schema:DefinedTerm
120 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
121 schema:name Public Health and Health Services
122 rdf:type schema:DefinedTerm
123 sg:journal.1036535 schema:issn 1750-1172
124 schema:name Orphanet Journal of Rare Diseases
125 rdf:type schema:Periodical
126 sg:person.01160717025.37 schema:affiliation https://www.grid.ac/institutes/grid.414057.3
127 schema:familyName Wilsher
128 schema:givenName M.
129 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01160717025.37
130 rdf:type schema:Person
131 sg:person.01275706001.46 schema:affiliation https://www.grid.ac/institutes/grid.1005.4
132 schema:familyName Jaffe
133 schema:givenName A.
134 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01275706001.46
135 rdf:type schema:Person
136 sg:person.01302066111.34 schema:affiliation https://www.grid.ac/institutes/grid.414054.0
137 schema:familyName Twiss
138 schema:givenName J.
139 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01302066111.34
140 rdf:type schema:Person
141 sg:person.0601144746.84 schema:affiliation https://www.grid.ac/institutes/grid.1002.3
142 schema:familyName Glaspole
143 schema:givenName I.
144 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0601144746.84
145 rdf:type schema:Person
146 sg:person.0617767634.42 schema:affiliation https://www.grid.ac/institutes/grid.266886.4
147 schema:familyName Gabbay
148 schema:givenName E.
149 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0617767634.42
150 rdf:type schema:Person
151 sg:person.0761436232.87 schema:affiliation https://www.grid.ac/institutes/grid.424537.3
152 schema:familyName Laverty
153 schema:givenName A.
154 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0761436232.87
155 rdf:type schema:Person
156 sg:pub.10.1186/1750-1172-5-s1-o21 schema:sameAs https://app.dimensions.ai/details/publication/pub.1025866155
157 https://doi.org/10.1186/1750-1172-5-s1-o21
158 rdf:type schema:CreativeWork
159 sg:pub.10.1186/1750-1172-6-49 schema:sameAs https://app.dimensions.ai/details/publication/pub.1041119215
160 https://doi.org/10.1186/1750-1172-6-49
161 rdf:type schema:CreativeWork
162 sg:pub.10.1186/1750-1172-6-57 schema:sameAs https://app.dimensions.ai/details/publication/pub.1040933794
163 https://doi.org/10.1186/1750-1172-6-57
164 rdf:type schema:CreativeWork
165 sg:pub.10.1186/1750-1172-9-81 schema:sameAs https://app.dimensions.ai/details/publication/pub.1052314243
166 https://doi.org/10.1186/1750-1172-9-81
167 rdf:type schema:CreativeWork
168 https://doi.org/10.1002/ppul.20783 schema:sameAs https://app.dimensions.ai/details/publication/pub.1006058711
169 rdf:type schema:CreativeWork
170 https://doi.org/10.1016/j.cct.2010.06.007 schema:sameAs https://app.dimensions.ai/details/publication/pub.1027132827
171 rdf:type schema:CreativeWork
172 https://doi.org/10.1016/s0140-6736(10)60680-0 schema:sameAs https://app.dimensions.ai/details/publication/pub.1026380850
173 rdf:type schema:CreativeWork
174 https://doi.org/10.1093/pubmed/fdv099 schema:sameAs https://app.dimensions.ai/details/publication/pub.1059982313
175 rdf:type schema:CreativeWork
176 https://doi.org/10.1093/qjmed/hci128 schema:sameAs https://app.dimensions.ai/details/publication/pub.1050927083
177 rdf:type schema:CreativeWork
178 https://doi.org/10.1111/j.1440-1754.2009.01608.x schema:sameAs https://app.dimensions.ai/details/publication/pub.1039250614
179 rdf:type schema:CreativeWork
180 https://doi.org/10.1136/adc.2007.134940 schema:sameAs https://app.dimensions.ai/details/publication/pub.1005325164
181 rdf:type schema:CreativeWork
182 https://doi.org/10.1136/thoraxjnl-2012-203201 schema:sameAs https://app.dimensions.ai/details/publication/pub.1047260873
183 rdf:type schema:CreativeWork
184 https://doi.org/10.1164/rccm.201305-0923st schema:sameAs https://app.dimensions.ai/details/publication/pub.1024479309
185 rdf:type schema:CreativeWork
186 https://doi.org/10.1164/rccm.2208002 schema:sameAs https://app.dimensions.ai/details/publication/pub.1027922151
187 rdf:type schema:CreativeWork
188 https://doi.org/10.1164/rccm.2208006 schema:sameAs https://app.dimensions.ai/details/publication/pub.1038995539
189 rdf:type schema:CreativeWork
190 https://doi.org/10.1183/09031936.00053606 schema:sameAs https://app.dimensions.ai/details/publication/pub.1026969321
191 rdf:type schema:CreativeWork
192 https://doi.org/10.1542/peds.2011-0567 schema:sameAs https://app.dimensions.ai/details/publication/pub.1018933599
193 rdf:type schema:CreativeWork
194 https://www.grid.ac/institutes/grid.1002.3 schema:alternateName Monash University
195 schema:name Alfred Hospital, Melbourne, Australia
196 Monash University, Melbourne, Australia
197 rdf:type schema:Organization
198 https://www.grid.ac/institutes/grid.1005.4 schema:alternateName UNSW Australia
199 schema:name Department of Respiratory Medicine, Sydney Children’s Hospital Randwick, Sydney, NSW, Australia
200 School of Women’s and Children’s Health, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia
201 rdf:type schema:Organization
202 https://www.grid.ac/institutes/grid.266886.4 schema:alternateName University of Notre Dame Australia
203 schema:name Institute for Health Research, University of Notre Dame, Fremantle, WA, Australia
204 rdf:type schema:Organization
205 https://www.grid.ac/institutes/grid.414054.0 schema:alternateName Starship Children's Health
206 schema:name Starship Children’s Health, Grafton, Auckland, New Zealand
207 rdf:type schema:Organization
208 https://www.grid.ac/institutes/grid.414057.3 schema:alternateName Auckland District Health Board
209 schema:name Auckland District Health Board, Auckland, New Zealand
210 rdf:type schema:Organization
211 https://www.grid.ac/institutes/grid.424537.3 schema:alternateName Great Ormond Street Hospital for Children NHS Foundation Trust
212 schema:name Great Ormond Street Hospital for Children NHS Foundation Trust, London, England
213 rdf:type schema:Organization
214 https://www.grid.ac/institutes/grid.430417.5 schema:alternateName Sydney Children’s Hospitals Network
215 schema:name Sydney Children’s Hospitals Network, Sydney, Australia
216 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...