What are the personal last wishes of people with a life-limiting illness? Findings from a longitudinal observational study in specialist ... View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2022-03-22

AUTHORS

Anneke Ullrich, Wiebke Hollburg, Holger Schulz, Sven Goldbach, Annette Rommel, Marten Müller, Denise Kirsch, Katrin Kopplin-Foertsch, Julia Messerer, Louise König, Frank Schulz-Kindermann, Carsten Bokemeyer, Karin Oechsle

ABSTRACT

BackgroundPersonal last wishes of people facing a life-limiting illness may change closer to death and may vary across different forms of specialist palliative care (SPC).AimsTo explore the presence and common themes of last wishes over time and according to the SPC settings (inpatient vs. home-based SPC), and to identify factors associated to having a last wish.MethodsPatients enrolled in a longitudinal study completed questionnaires at the onset (baseline, t0) and within the first 6 weeks (follow-up, t1) of SPC including an open-ended question on their personal last wishes. Last wishes were content analyzed, and all wishes were coded for presence or absence of each of the identified themes. Changes of last wishes (t0-t1) were analyzed by a McNemar test. The chi-square-test was used to compare the two SPC settings. Predictors for the presence of a last wish were identified by logistic regression analysis.ResultsThree hundred sixty-one patients (mean age, 69.5 years; 49% female) answered at t0, and 130 at t1. In cross-sectional analyses, the presence of last wishes was higher at t0 (67%) than at t1 (59%). Comparisons revealed a higher presence of last wishes among inpatients than those in home-based SPC at t0 (78% vs. 62%; p = .002), but not at t1. Inpatient SPC (OR = 1.987, p = .011) and greater physical symptom burden over the past week (OR = 1.168, p < .001) predicted presence of a last wish at t0. Common themes of last wishes were Travel, Activities, Regaining health, Quality of life, Being with family and friends, Dying comfortably, Turn back time, and Taking care of final matters. The most frequent theme was Travel, at both t0 (31%) and t1 (39%). Themes did not differ between SPC settings, neither at t0 nor at t1. Longitudinal analyses (t0-t1) showed no significant intra-personal changes in the presence or any themes of last wishes over time.ConclusionsIn this late phase of their illness, many patients voiced last wishes. Our study suggests working with such wishes as a framework for person-centered care. Comparisons of SPC settings indicate that individualized approaches to patients’ last wishes, rather than setting-specific approaches, may be important. More... »

PAGES

38

Identifiers

URI

http://scigraph.springernature.com/pub.10.1186/s12904-022-00928-1

DOI

http://dx.doi.org/10.1186/s12904-022-00928-1

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1146474120

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/35317813


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Public Health and Health Services", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Aged", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Critical Illness", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Cross-Sectional Studies", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Female", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Humans", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Longitudinal Studies", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Male", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Palliative Care", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Patient Preference", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Surveys and Questionnaires", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/grid.13648.38", 
          "name": [
            "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Ullrich", 
        "givenName": "Anneke", 
        "id": "sg:person.01154453474.55", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01154453474.55"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Specialist Outpatient Palliative Care Team \u201cPalliativPartner Hamburg GbR\u201d, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Specialist Outpatient Palliative Care Team \u201cPalliativPartner Hamburg GbR\u201d, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Hollburg", 
        "givenName": "Wiebke", 
        "id": "sg:person.014460507473.81", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.014460507473.81"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/grid.13648.38", 
          "name": [
            "Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Schulz", 
        "givenName": "Holger", 
        "id": "sg:person.0637527306.80", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0637527306.80"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Specialist Outpatient Palliative Care Team \u201cPalliativPartner Hamburg GbR\u201d, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Specialist Outpatient Palliative Care Team \u201cPalliativPartner Hamburg GbR\u201d, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Goldbach", 
        "givenName": "Sven", 
        "id": "sg:person.016140517735.76", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.016140517735.76"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Specialist Outpatient Palliative Care Team \u201eDas Palliativteam\u201c, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Specialist Outpatient Palliative Care Team \u201eDas Palliativteam\u201c, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Rommel", 
        "givenName": "Annette", 
        "id": "sg:person.011030407535.06", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.011030407535.06"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Palliative Care Ward, Asklepios Hospital Rissen, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Palliative Care Ward, Asklepios Hospital Rissen, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "M\u00fcller", 
        "givenName": "Marten", 
        "id": "sg:person.07750730122.87", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.07750730122.87"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Specialist Outpatient Palliative Care Team Hamburg-West, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Specialist Outpatient Palliative Care Team Hamburg-West, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Kirsch", 
        "givenName": "Denise", 
        "id": "sg:person.010546310522.95", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.010546310522.95"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Palliative Care Ward, Agaplesion Diakonie Hospital, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Palliative Care Ward, Agaplesion Diakonie Hospital, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Kopplin-Foertsch", 
        "givenName": "Katrin", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/grid.13648.38", 
          "name": [
            "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Messerer", 
        "givenName": "Julia", 
        "id": "sg:person.012141251522.25", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.012141251522.25"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/grid.13648.38", 
          "name": [
            "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "K\u00f6nig", 
        "givenName": "Louise", 
        "id": "sg:person.012736632122.94", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.012736632122.94"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Specialist Outpatient Palliative Care Team \u201cPalliativPartner Hamburg GbR\u201d, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "Specialist Outpatient Palliative Care Team \u201cPalliativPartner Hamburg GbR\u201d, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Schulz-Kindermann", 
        "givenName": "Frank", 
        "id": "sg:person.0770020042.49", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0770020042.49"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/grid.13648.38", 
          "name": [
            "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Bokemeyer", 
        "givenName": "Carsten", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany", 
          "id": "http://www.grid.ac/institutes/grid.13648.38", 
          "name": [
            "Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Oechsle", 
        "givenName": "Karin", 
        "id": "sg:person.0676242341.69", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0676242341.69"
        ], 
        "type": "Person"
      }
    ], 
    "citation": [
      {
        "id": "sg:pub.10.1007/s00520-016-3483-9", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1027001048", 
          "https://doi.org/10.1007/s00520-016-3483-9"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/978-3-662-49756-2", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1001916954", 
          "https://doi.org/10.1007/978-3-662-49756-2"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/s12904-021-00880-6", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1143203950", 
          "https://doi.org/10.1186/s12904-021-00880-6"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/s12916-020-01829-x", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1132935972", 
          "https://doi.org/10.1186/s12916-020-01829-x"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s00103-020-03240-6", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1132595803", 
          "https://doi.org/10.1007/s00103-020-03240-6"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s00520-016-3260-9", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1047608325", 
          "https://doi.org/10.1007/s00520-016-3260-9"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/978-3-030-27080-3_18", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1123042807", 
          "https://doi.org/10.1007/978-3-030-27080-3_18"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/978-3-642-16491-0", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1109709699", 
          "https://doi.org/10.1007/978-3-642-16491-0"
        ], 
        "type": "CreativeWork"
      }
    ], 
    "datePublished": "2022-03-22", 
    "datePublishedReg": "2022-03-22", 
    "description": "BackgroundPersonal last wishes of people facing a life-limiting illness may change closer to death and may vary across different forms of specialist palliative care (SPC).AimsTo explore the presence and common themes of last wishes over time and according to the SPC settings (inpatient vs. home-based SPC), and to identify factors associated to having a last wish.MethodsPatients enrolled in a longitudinal study completed questionnaires at the onset (baseline, t0) and within the first 6\u00a0weeks (follow-up, t1) of SPC including an open-ended question on their personal\u00a0last wishes. Last wishes were content analyzed, and all \u00a0wishes were coded for presence or absence of each of the identified themes. Changes of last wishes (t0-t1) were analyzed by a McNemar test. The chi-square-test was used to compare the two SPC settings. Predictors for the presence of a last wish were identified by logistic regression analysis.ResultsThree hundred sixty-one patients (mean age, 69.5\u00a0years; 49% female) answered at t0, and 130 at t1. In cross-sectional analyses, the presence of last wishes was higher at t0 (67%) than at t1 (59%). Comparisons revealed a higher presence of last wishes among inpatients than those in home-based SPC at t0 (78% vs. 62%; p\u2009=\u2009.002), but not at t1. Inpatient SPC (OR\u2009=\u20091.987, p\u2009=\u2009.011) and greater physical symptom burden over the past week (OR\u2009=\u20091.168, p\u2009<\u2009.001) predicted presence of a last wish at t0. Common themes of last wishes were Travel, Activities, Regaining health, Quality of life, Being with family and friends, Dying comfortably, Turn back time, and Taking care of final matters. The most frequent theme was Travel, at both t0 (31%) and t1 (39%). Themes did not differ between SPC settings, neither at t0 nor at t1. Longitudinal analyses (t0-t1) showed no significant intra-personal changes in the presence or any themes of last wishes over time.ConclusionsIn this late phase of their illness, many patients voiced last wishes. Our study suggests working with such wishes as a framework for person-centered care. Comparisons of SPC settings indicate that individualized approaches to patients\u2019 last wishes, rather than setting-specific approaches, may be important.", 
    "genre": "article", 
    "id": "sg:pub.10.1186/s12904-022-00928-1", 
    "isAccessibleForFree": true, 
    "isPartOf": [
      {
        "id": "sg:journal.1028435", 
        "issn": [
          "1472-684X"
        ], 
        "name": "BMC Palliative Care", 
        "publisher": "Springer Nature", 
        "type": "Periodical"
      }, 
      {
        "issueNumber": "1", 
        "type": "PublicationIssue"
      }, 
      {
        "type": "PublicationVolume", 
        "volumeNumber": "21"
      }
    ], 
    "keywords": [
      "specialist palliative care", 
      "life-limiting illness", 
      "palliative care", 
      "greater physical symptom burden", 
      "last wishes", 
      "physical symptom burden", 
      "longitudinal observational study", 
      "ResultsThree hundred sixty", 
      "logistic regression analysis", 
      "setting-specific approaches", 
      "quality of life", 
      "person-centred care", 
      "patient's last wishes", 
      "cross-sectional analysis", 
      "symptom burden", 
      "observational study", 
      "past week", 
      "McNemar test", 
      "illness", 
      "care", 
      "longitudinal study", 
      "patients", 
      "regression analysis", 
      "longitudinal analysis", 
      "late phase", 
      "weeks", 
      "common themes", 
      "T1", 
      "setting", 
      "MethodsPatients", 
      "ended question", 
      "inpatients", 
      "T0", 
      "wishes", 
      "AimsTo", 
      "higher presence", 
      "study", 
      "death", 
      "burden", 
      "ConclusionsIn", 
      "presence", 
      "predictors", 
      "onset", 
      "health", 
      "questionnaire", 
      "such wishes", 
      "test", 
      "people", 
      "changes", 
      "findings", 
      "frequent themes", 
      "themes", 
      "time", 
      "factors", 
      "absence", 
      "activity", 
      "analysis", 
      "life", 
      "different forms", 
      "comparison", 
      "sixties", 
      "family", 
      "quality", 
      "friends", 
      "travel", 
      "approach", 
      "questions", 
      "form", 
      "content", 
      "phase", 
      "matter", 
      "framework", 
      "final matter"
    ], 
    "name": "What are the personal last wishes of people with a life-limiting illness? Findings from a longitudinal observational study in specialist palliative care", 
    "pagination": "38", 
    "productId": [
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1146474120"
        ]
      }, 
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1186/s12904-022-00928-1"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "35317813"
        ]
      }
    ], 
    "sameAs": [
      "https://doi.org/10.1186/s12904-022-00928-1", 
      "https://app.dimensions.ai/details/publication/pub.1146474120"
    ], 
    "sdDataset": "articles", 
    "sdDatePublished": "2022-09-02T16:07", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-springernature-scigraph/baseset/20220902/entities/gbq_results/article/article_926.jsonl", 
    "type": "ScholarlyArticle", 
    "url": "https://doi.org/10.1186/s12904-022-00928-1"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1186/s12904-022-00928-1'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1186/s12904-022-00928-1'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1186/s12904-022-00928-1'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1186/s12904-022-00928-1'


 

This table displays all metadata directly associated to this object as RDF triples.

300 TRIPLES      21 PREDICATES      116 URIs      100 LITERALS      17 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1186/s12904-022-00928-1 schema:about N1bd65f20a3264a459948315b69ff4374
2 N1e2053a2f957450daf236424ee5967a6
3 N270c72f3fb1d466f9d9983a891415bb7
4 N43712e81153b465aa8e40dcbfb6b950a
5 N66114f6f6d8a4a18ac5051cdae23f885
6 N661ba6a9a1b44317bed6586be4409705
7 N784d63e054a74578a8d640da7d92df07
8 Nb11c58831e4f4cd0adcf0a71b4b3e202
9 Ndbb4ee4466ae41daa5bc67c5d0ad95a3
10 Nf877a96d0da9468c99bee5c57420658b
11 anzsrc-for:11
12 anzsrc-for:1117
13 schema:author N9ffb781bfc384e3d8674aa1c806fd860
14 schema:citation sg:pub.10.1007/978-3-030-27080-3_18
15 sg:pub.10.1007/978-3-642-16491-0
16 sg:pub.10.1007/978-3-662-49756-2
17 sg:pub.10.1007/s00103-020-03240-6
18 sg:pub.10.1007/s00520-016-3260-9
19 sg:pub.10.1007/s00520-016-3483-9
20 sg:pub.10.1186/s12904-021-00880-6
21 sg:pub.10.1186/s12916-020-01829-x
22 schema:datePublished 2022-03-22
23 schema:datePublishedReg 2022-03-22
24 schema:description BackgroundPersonal last wishes of people facing a life-limiting illness may change closer to death and may vary across different forms of specialist palliative care (SPC).AimsTo explore the presence and common themes of last wishes over time and according to the SPC settings (inpatient vs. home-based SPC), and to identify factors associated to having a last wish.MethodsPatients enrolled in a longitudinal study completed questionnaires at the onset (baseline, t0) and within the first 6 weeks (follow-up, t1) of SPC including an open-ended question on their personal last wishes. Last wishes were content analyzed, and all  wishes were coded for presence or absence of each of the identified themes. Changes of last wishes (t0-t1) were analyzed by a McNemar test. The chi-square-test was used to compare the two SPC settings. Predictors for the presence of a last wish were identified by logistic regression analysis.ResultsThree hundred sixty-one patients (mean age, 69.5 years; 49% female) answered at t0, and 130 at t1. In cross-sectional analyses, the presence of last wishes was higher at t0 (67%) than at t1 (59%). Comparisons revealed a higher presence of last wishes among inpatients than those in home-based SPC at t0 (78% vs. 62%; p = .002), but not at t1. Inpatient SPC (OR = 1.987, p = .011) and greater physical symptom burden over the past week (OR = 1.168, p < .001) predicted presence of a last wish at t0. Common themes of last wishes were Travel, Activities, Regaining health, Quality of life, Being with family and friends, Dying comfortably, Turn back time, and Taking care of final matters. The most frequent theme was Travel, at both t0 (31%) and t1 (39%). Themes did not differ between SPC settings, neither at t0 nor at t1. Longitudinal analyses (t0-t1) showed no significant intra-personal changes in the presence or any themes of last wishes over time.ConclusionsIn this late phase of their illness, many patients voiced last wishes. Our study suggests working with such wishes as a framework for person-centered care. Comparisons of SPC settings indicate that individualized approaches to patients’ last wishes, rather than setting-specific approaches, may be important.
25 schema:genre article
26 schema:isAccessibleForFree true
27 schema:isPartOf N75e5c82dd9b94a95aa02d6b4eb120c4e
28 Nc5ffb47fa3df4454b23e0da516c2380c
29 sg:journal.1028435
30 schema:keywords AimsTo
31 ConclusionsIn
32 McNemar test
33 MethodsPatients
34 ResultsThree hundred sixty
35 T0
36 T1
37 absence
38 activity
39 analysis
40 approach
41 burden
42 care
43 changes
44 common themes
45 comparison
46 content
47 cross-sectional analysis
48 death
49 different forms
50 ended question
51 factors
52 family
53 final matter
54 findings
55 form
56 framework
57 frequent themes
58 friends
59 greater physical symptom burden
60 health
61 higher presence
62 illness
63 inpatients
64 last wishes
65 late phase
66 life
67 life-limiting illness
68 logistic regression analysis
69 longitudinal analysis
70 longitudinal observational study
71 longitudinal study
72 matter
73 observational study
74 onset
75 palliative care
76 past week
77 patient's last wishes
78 patients
79 people
80 person-centred care
81 phase
82 physical symptom burden
83 predictors
84 presence
85 quality
86 quality of life
87 questionnaire
88 questions
89 regression analysis
90 setting
91 setting-specific approaches
92 sixties
93 specialist palliative care
94 study
95 such wishes
96 symptom burden
97 test
98 themes
99 time
100 travel
101 weeks
102 wishes
103 schema:name What are the personal last wishes of people with a life-limiting illness? Findings from a longitudinal observational study in specialist palliative care
104 schema:pagination 38
105 schema:productId N86fdbf8329f449eaabf0f06d998925a4
106 Naab91ceb3f884bc39cd09bfc6ba982e8
107 Nfd77fd3b3fa34c9e8168a50f5ad2d787
108 schema:sameAs https://app.dimensions.ai/details/publication/pub.1146474120
109 https://doi.org/10.1186/s12904-022-00928-1
110 schema:sdDatePublished 2022-09-02T16:07
111 schema:sdLicense https://scigraph.springernature.com/explorer/license/
112 schema:sdPublisher N48aeb812c2e14c908be198e679469089
113 schema:url https://doi.org/10.1186/s12904-022-00928-1
114 sgo:license sg:explorer/license/
115 sgo:sdDataset articles
116 rdf:type schema:ScholarlyArticle
117 N164c74ae934b49e192c59aca6f8a4d9d schema:affiliation grid-institutes:grid.13648.38
118 schema:familyName Bokemeyer
119 schema:givenName Carsten
120 rdf:type schema:Person
121 N1bd65f20a3264a459948315b69ff4374 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
122 schema:name Patient Preference
123 rdf:type schema:DefinedTerm
124 N1e2053a2f957450daf236424ee5967a6 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
125 schema:name Male
126 rdf:type schema:DefinedTerm
127 N270c72f3fb1d466f9d9983a891415bb7 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
128 schema:name Surveys and Questionnaires
129 rdf:type schema:DefinedTerm
130 N2934c41e13c14d7383edc9a83c743802 rdf:first sg:person.012736632122.94
131 rdf:rest Nb30437a392b143c6bb2c2465544deb80
132 N43712e81153b465aa8e40dcbfb6b950a schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
133 schema:name Critical Illness
134 rdf:type schema:DefinedTerm
135 N48aeb812c2e14c908be198e679469089 schema:name Springer Nature - SN SciGraph project
136 rdf:type schema:Organization
137 N4fb84dcf15d847adb07c3fc33f09756c rdf:first sg:person.0637527306.80
138 rdf:rest N80c3aa56010d40fe96f10ba94d15e69f
139 N53cda0876ae2407e8a4bad0c61eacbfa rdf:first sg:person.011030407535.06
140 rdf:rest N611e160c7a1f4d1492c35458b7f66908
141 N611e160c7a1f4d1492c35458b7f66908 rdf:first sg:person.07750730122.87
142 rdf:rest Nbb39f47c36be45d6b462fda4265da174
143 N63e08614f0454438a82b5c27f2e57ede rdf:first N164c74ae934b49e192c59aca6f8a4d9d
144 rdf:rest Ned8e56bada6f4420a6b4661ef6505e94
145 N66114f6f6d8a4a18ac5051cdae23f885 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
146 schema:name Cross-Sectional Studies
147 rdf:type schema:DefinedTerm
148 N661ba6a9a1b44317bed6586be4409705 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
149 schema:name Female
150 rdf:type schema:DefinedTerm
151 N75e5c82dd9b94a95aa02d6b4eb120c4e schema:issueNumber 1
152 rdf:type schema:PublicationIssue
153 N784d63e054a74578a8d640da7d92df07 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
154 schema:name Palliative Care
155 rdf:type schema:DefinedTerm
156 N80c3aa56010d40fe96f10ba94d15e69f rdf:first sg:person.016140517735.76
157 rdf:rest N53cda0876ae2407e8a4bad0c61eacbfa
158 N86fdbf8329f449eaabf0f06d998925a4 schema:name pubmed_id
159 schema:value 35317813
160 rdf:type schema:PropertyValue
161 N9ffb781bfc384e3d8674aa1c806fd860 rdf:first sg:person.01154453474.55
162 rdf:rest Ne9a3195f29074103aa6eb94955e3b784
163 Na74799363b6c46c8ac9d9be849fe5793 schema:affiliation grid-institutes:None
164 schema:familyName Kopplin-Foertsch
165 schema:givenName Katrin
166 rdf:type schema:Person
167 Naab91ceb3f884bc39cd09bfc6ba982e8 schema:name doi
168 schema:value 10.1186/s12904-022-00928-1
169 rdf:type schema:PropertyValue
170 Nb11c58831e4f4cd0adcf0a71b4b3e202 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
171 schema:name Longitudinal Studies
172 rdf:type schema:DefinedTerm
173 Nb30437a392b143c6bb2c2465544deb80 rdf:first sg:person.0770020042.49
174 rdf:rest N63e08614f0454438a82b5c27f2e57ede
175 Nbb39f47c36be45d6b462fda4265da174 rdf:first sg:person.010546310522.95
176 rdf:rest Nff263fbd67aa43a48eb1336d6ca817d4
177 Nc5ffb47fa3df4454b23e0da516c2380c schema:volumeNumber 21
178 rdf:type schema:PublicationVolume
179 Ndbb4ee4466ae41daa5bc67c5d0ad95a3 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
180 schema:name Humans
181 rdf:type schema:DefinedTerm
182 Ne9a3195f29074103aa6eb94955e3b784 rdf:first sg:person.014460507473.81
183 rdf:rest N4fb84dcf15d847adb07c3fc33f09756c
184 Ned8e56bada6f4420a6b4661ef6505e94 rdf:first sg:person.0676242341.69
185 rdf:rest rdf:nil
186 Nf877a96d0da9468c99bee5c57420658b schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
187 schema:name Aged
188 rdf:type schema:DefinedTerm
189 Nfcefb8f0d4bb4406b0d7dcb1c39742f8 rdf:first sg:person.012141251522.25
190 rdf:rest N2934c41e13c14d7383edc9a83c743802
191 Nfd77fd3b3fa34c9e8168a50f5ad2d787 schema:name dimensions_id
192 schema:value pub.1146474120
193 rdf:type schema:PropertyValue
194 Nff263fbd67aa43a48eb1336d6ca817d4 rdf:first Na74799363b6c46c8ac9d9be849fe5793
195 rdf:rest Nfcefb8f0d4bb4406b0d7dcb1c39742f8
196 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
197 schema:name Medical and Health Sciences
198 rdf:type schema:DefinedTerm
199 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
200 schema:name Public Health and Health Services
201 rdf:type schema:DefinedTerm
202 sg:journal.1028435 schema:issn 1472-684X
203 schema:name BMC Palliative Care
204 schema:publisher Springer Nature
205 rdf:type schema:Periodical
206 sg:person.010546310522.95 schema:affiliation grid-institutes:None
207 schema:familyName Kirsch
208 schema:givenName Denise
209 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.010546310522.95
210 rdf:type schema:Person
211 sg:person.011030407535.06 schema:affiliation grid-institutes:None
212 schema:familyName Rommel
213 schema:givenName Annette
214 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.011030407535.06
215 rdf:type schema:Person
216 sg:person.01154453474.55 schema:affiliation grid-institutes:grid.13648.38
217 schema:familyName Ullrich
218 schema:givenName Anneke
219 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01154453474.55
220 rdf:type schema:Person
221 sg:person.012141251522.25 schema:affiliation grid-institutes:grid.13648.38
222 schema:familyName Messerer
223 schema:givenName Julia
224 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.012141251522.25
225 rdf:type schema:Person
226 sg:person.012736632122.94 schema:affiliation grid-institutes:grid.13648.38
227 schema:familyName König
228 schema:givenName Louise
229 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.012736632122.94
230 rdf:type schema:Person
231 sg:person.014460507473.81 schema:affiliation grid-institutes:None
232 schema:familyName Hollburg
233 schema:givenName Wiebke
234 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.014460507473.81
235 rdf:type schema:Person
236 sg:person.016140517735.76 schema:affiliation grid-institutes:None
237 schema:familyName Goldbach
238 schema:givenName Sven
239 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.016140517735.76
240 rdf:type schema:Person
241 sg:person.0637527306.80 schema:affiliation grid-institutes:grid.13648.38
242 schema:familyName Schulz
243 schema:givenName Holger
244 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0637527306.80
245 rdf:type schema:Person
246 sg:person.0676242341.69 schema:affiliation grid-institutes:grid.13648.38
247 schema:familyName Oechsle
248 schema:givenName Karin
249 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0676242341.69
250 rdf:type schema:Person
251 sg:person.0770020042.49 schema:affiliation grid-institutes:None
252 schema:familyName Schulz-Kindermann
253 schema:givenName Frank
254 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0770020042.49
255 rdf:type schema:Person
256 sg:person.07750730122.87 schema:affiliation grid-institutes:None
257 schema:familyName Müller
258 schema:givenName Marten
259 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.07750730122.87
260 rdf:type schema:Person
261 sg:pub.10.1007/978-3-030-27080-3_18 schema:sameAs https://app.dimensions.ai/details/publication/pub.1123042807
262 https://doi.org/10.1007/978-3-030-27080-3_18
263 rdf:type schema:CreativeWork
264 sg:pub.10.1007/978-3-642-16491-0 schema:sameAs https://app.dimensions.ai/details/publication/pub.1109709699
265 https://doi.org/10.1007/978-3-642-16491-0
266 rdf:type schema:CreativeWork
267 sg:pub.10.1007/978-3-662-49756-2 schema:sameAs https://app.dimensions.ai/details/publication/pub.1001916954
268 https://doi.org/10.1007/978-3-662-49756-2
269 rdf:type schema:CreativeWork
270 sg:pub.10.1007/s00103-020-03240-6 schema:sameAs https://app.dimensions.ai/details/publication/pub.1132595803
271 https://doi.org/10.1007/s00103-020-03240-6
272 rdf:type schema:CreativeWork
273 sg:pub.10.1007/s00520-016-3260-9 schema:sameAs https://app.dimensions.ai/details/publication/pub.1047608325
274 https://doi.org/10.1007/s00520-016-3260-9
275 rdf:type schema:CreativeWork
276 sg:pub.10.1007/s00520-016-3483-9 schema:sameAs https://app.dimensions.ai/details/publication/pub.1027001048
277 https://doi.org/10.1007/s00520-016-3483-9
278 rdf:type schema:CreativeWork
279 sg:pub.10.1186/s12904-021-00880-6 schema:sameAs https://app.dimensions.ai/details/publication/pub.1143203950
280 https://doi.org/10.1186/s12904-021-00880-6
281 rdf:type schema:CreativeWork
282 sg:pub.10.1186/s12916-020-01829-x schema:sameAs https://app.dimensions.ai/details/publication/pub.1132935972
283 https://doi.org/10.1186/s12916-020-01829-x
284 rdf:type schema:CreativeWork
285 grid-institutes:None schema:alternateName Palliative Care Ward, Agaplesion Diakonie Hospital, Hamburg, Germany
286 Palliative Care Ward, Asklepios Hospital Rissen, Hamburg, Germany
287 Specialist Outpatient Palliative Care Team Hamburg-West, Hamburg, Germany
288 Specialist Outpatient Palliative Care Team “PalliativPartner Hamburg GbR”, Hamburg, Germany
289 Specialist Outpatient Palliative Care Team „Das Palliativteam“, Hamburg, Germany
290 schema:name Palliative Care Ward, Agaplesion Diakonie Hospital, Hamburg, Germany
291 Palliative Care Ward, Asklepios Hospital Rissen, Hamburg, Germany
292 Specialist Outpatient Palliative Care Team Hamburg-West, Hamburg, Germany
293 Specialist Outpatient Palliative Care Team “PalliativPartner Hamburg GbR”, Hamburg, Germany
294 Specialist Outpatient Palliative Care Team „Das Palliativteam“, Hamburg, Germany
295 rdf:type schema:Organization
296 grid-institutes:grid.13648.38 schema:alternateName Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany
297 Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany
298 schema:name Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany
299 Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany
300 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...