Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care ... View Full Text


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Article Info

DATE

2021-11-25

AUTHORS

Anneke Ullrich, Holger Schulz, Sven Goldbach, Wiebke Hollburg, Annette Rommel, Marten Müller, Denise Kirsch, Katrin Kopplin-Förtsch, Julia Messerer, Louise König, Frank Schulz-Kindermann, Carsten Bokemeyer, Karin Oechsle

ABSTRACT

BackgroundWe investigated the need for additional professional support and associated factors in patients (pts) at initiation and in the course of in- and outpatient specialist palliative care (I-SPC/O-SPC).MethodsPts entering an urban SPC network consecutively completed questionnaires on psychosocial/spiritual problems and support needs within 72 h (T0) as well as within the first 6 weeks (T1) of SPC. Hierarchical linear regression analysis was used to investigate the impact of sociodemographic / disease-related variables, psychological / physical burden, social support, and SPC setting on the extent of support needs.ResultsFour hundred twenty-five pts (70 years, 48% female, 91% cancer, 67% O-SPC) answered at T0, and 167 at T1. At T0, main problems related to transportation, usual activities, and dependency (83–89%). At T1, most prevalent problems also related to transportation and usual activities and additionally to light housework (82–86%). At T0, support needs were highest for transportation, light housework, and usual activities (35–41%). Cross-sectional comparisons of SPC settings revealed higher problem scores in O-SPC compared to I-SPC at T0 (p = .039), but not at T1. Support need scores were higher in O-SPC at T0 (p < .001), but lower at T1 (p = .039). Longitudinal analyses showed a decrease of support need scores over time, independent from the SPC setting. At T0, higher distress (p = .047), anxiety/depression (p < .001), physical symptom burden (p < .001) and I-SPC (p < .001) were associated with higher support need scores (at T1: only higher distress, p = .037).ConclusionNeed for additional professional psychosocial/spiritual support was identified in up to 40% of pts. with higher need at the beginning of O-SPC than of I-SPC. During SPC, this need decreased in both settings, but got lower in O-SPC than in I-SPC over time. Support need scores were not only associated with psychological, but also physical burden. More... »

PAGES

182

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  • Identifiers

    URI

    http://scigraph.springernature.com/pub.10.1186/s12904-021-00880-6

    DOI

    http://dx.doi.org/10.1186/s12904-021-00880-6

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1143203950

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/34823535


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