End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2018-12

AUTHORS

Isabelle Aujoulat, Séverine Henrard, Anne Charon, Anne-Britt Johansson, Jean-Paul Langhendries, Anne Mostaert, Danièle Vermeylen, Gaston Verellen, on behalf of the 11 neonatal intensive care units in the Wallonia-Brussels Federation

ABSTRACT

BACKGROUND: Very preterm birth (24 to < 32 week's gestation) is a major public health issue due to its prevalence, the clinical and ethical questions it raises and the associated costs. It raises two major clinical and ethical dilemma: (i) during the perinatal period, whether or not to actively manage a baby born very prematurely and (ii) during the postnatal period, whether or not to continue a curative treatment plan initiated at birth. The Wallonia-Brussels Federation in Belgium counts 11 neonatal intensive care units. METHODS: An inventory of key practices was compiled on the basis of an online questionnaire that was sent to the 65 neonatologists working in these units. The questionnaire investigated care-related decisions and practices during the antenatal, perinatal and postnatal periods, as well as personal opinions on the possibility of standardising and/or legislating for end-of-life decisions and practices. The participation rate was 89% (n = 58). RESULTS: The results show a high level of homogeneity pointing to overall agreement on the main principles governing curative practice and the gestational age that can be actively managed given the current state of knowledge. There was, however, greater diversity regarding principles governing the transition to end-of-life care, as well as opinions about the need for a common protocol or law to govern such practices. CONCLUSION: Our results reflect the uncertainty inherent in the complex and diverse situations that are encountered in this extreme area of clinical practice, and call for qualitative research and expert debates to further document and make recommendations for best practices regarding several "gray zones" of end-of-life care in neonatology, so that high quality palliative care may be granted to all neonates concerned with end-of-life decisions. More... »

PAGES

206

Identifiers

URI

http://scigraph.springernature.com/pub.10.1186/s12887-018-1168-x

DOI

http://dx.doi.org/10.1186/s12887-018-1168-x

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1105142806

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/29945564


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1114", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Paediatrics and Reproductive Medicine", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Adult", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Attitude of Health Personnel", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Belgium", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Clinical Decision-Making", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Decision Making", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Female", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Gestational Age", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Humans", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Infant, Extremely Premature", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Infant, Newborn", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Intensive Care Units, Neonatal", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Male", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Middle Aged", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Neonatologists", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Parents", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Perinatal Care", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Practice Patterns, Physicians'", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Surveys and Questionnaires", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Terminal Care", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Uncertainty", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Withholding Treatment", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "Universit\u00e9 Catholique de Louvain", 
          "id": "https://www.grid.ac/institutes/grid.7942.8", 
          "name": [
            "Universit\u00e9 catholique de Louvain (UCL), Institute of Health and Society (IRSS), Clos chapelle-aux-champs, n\u00b0 30.14 - 1200, Brussels, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Aujoulat", 
        "givenName": "Isabelle", 
        "id": "sg:person.01224550350.07", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01224550350.07"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Universit\u00e9 Catholique de Louvain", 
          "id": "https://www.grid.ac/institutes/grid.7942.8", 
          "name": [
            "Universit\u00e9 catholique de Louvain (UCL), Institute of Health and Society (IRSS), Clos chapelle-aux-champs, n\u00b0 30.14 - 1200, Brussels, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Henrard", 
        "givenName": "S\u00e9verine", 
        "id": "sg:person.01015006134.65", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01015006134.65"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Grand Charleroi Hospital", 
          "id": "https://www.grid.ac/institutes/grid.490655.b", 
          "name": [
            "Grand H\u00f4pital de Charleroi (GHC), Charleroi, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Charon", 
        "givenName": "Anne", 
        "id": "sg:person.01212242124.24", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01212242124.24"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Queen Fabiola Children's University Hospital", 
          "id": "https://www.grid.ac/institutes/grid.412209.c", 
          "name": [
            "H\u00f4pital universitaire des enfants Reine Fabiola (HUDERF), Brussels, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Johansson", 
        "givenName": "Anne-Britt", 
        "id": "sg:person.01220170040.64", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01220170040.64"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "name": [
            "CHC-Clinique Saint-Vincent, Rocourt, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Langhendries", 
        "givenName": "Jean-Paul", 
        "id": "sg:person.016602436162.23", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.016602436162.23"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "name": [
            "Centre hospitalier r\u00e9gional (CHR) de Namur, Namur, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Mostaert", 
        "givenName": "Anne", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Erasmus Hospital", 
          "id": "https://www.grid.ac/institutes/grid.412157.4", 
          "name": [
            "H\u00f4pital Erasme, Brussels, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Vermeylen", 
        "givenName": "Dani\u00e8le", 
        "id": "sg:person.01332463060.43", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01332463060.43"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Cliniques Universitaires Saint-Luc", 
          "id": "https://www.grid.ac/institutes/grid.48769.34", 
          "name": [
            "Cliniques universitaires Saint-Luc, Brussels, Belgium"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Verellen", 
        "givenName": "Gaston", 
        "type": "Person"
      }, 
      {
        "familyName": "on behalf of the 11 neonatal intensive care units in the Wallonia-Brussels Federation", 
        "type": "Person"
      }
    ], 
    "citation": [
      {
        "id": "https://doi.org/10.1542/peds.2009-1060", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1002184516"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.jpainsymman.2012.11.008", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1002461693"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.earlhumdev.2011.12.002", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1003995022"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1053/j.semperi.2009.07.005", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006186211"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1136/fn.88.6.f492", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1015909940"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1067/mpd.2000.109144", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1015923837"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.earlhumdev.2012.01.002", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1015953843"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1056/nejmp058026", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1019393724"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.jpeds.2011.01.022", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1021327789"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/s0140-6736(00)02378-3", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1024224024"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.arcped.2007.02.030", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1025591110"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.arcped.2007.07.006", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1026479842"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1097/01.aog.0000284447.43442.55", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1027660172"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1097/01.aog.0000284447.43442.55", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1027660172"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/s0929-693x(00)00225-6", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1030937087"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1053/j.semperi.2013.07.006", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1036748221"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1111/apa.12421", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1036749701"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.jpeds.2012.12.008", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1046579625"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1353/hcr.2005.0025", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1050742200"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1136/archdischild-2013-305191", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1051009130"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1056/nejm200008103430601", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1053614869"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2003-0903-l", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1067823649"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2007-0513", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1067826104"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://app.dimensions.ai/details/publication/pub.1075010227", 
        "type": "CreativeWork"
      }
    ], 
    "datePublished": "2018-12", 
    "datePublishedReg": "2018-12-01", 
    "description": "BACKGROUND: Very preterm birth (24 to <\u200932\u00a0week's gestation) is a major public health issue due to its prevalence, the clinical and ethical questions it raises and the associated costs. It raises two major clinical and ethical dilemma: (i) during the perinatal period, whether or not to actively manage a baby born very prematurely and (ii) during the postnatal period, whether or not to continue a curative treatment plan initiated at birth. The Wallonia-Brussels Federation in Belgium counts 11 neonatal intensive care units.\nMETHODS: An inventory of key practices was compiled on the basis of an online questionnaire that was sent to the 65 neonatologists working in these units. The questionnaire investigated care-related decisions and practices during the antenatal, perinatal and postnatal periods, as well as personal opinions on the possibility of standardising and/or legislating for end-of-life decisions and practices. The participation rate was 89% (n\u2009=\u200958).\nRESULTS: The results show a high level of homogeneity pointing to overall agreement on the main principles governing curative practice and the gestational age that can be actively managed given the current state of knowledge. There was, however, greater diversity regarding principles governing the transition to end-of-life care, as well as opinions about the need for a common protocol or law to govern such practices.\nCONCLUSION: Our results reflect the uncertainty inherent in the complex and diverse situations that are encountered in this extreme area of clinical practice, and call for qualitative research and expert debates to further document and make recommendations for best practices regarding several \"gray zones\" of end-of-life care in neonatology, so that high quality palliative care may be granted to all neonates concerned with end-of-life decisions.", 
    "genre": "research_article", 
    "id": "sg:pub.10.1186/s12887-018-1168-x", 
    "inLanguage": [
      "en"
    ], 
    "isAccessibleForFree": true, 
    "isPartOf": [
      {
        "id": "sg:journal.1024635", 
        "issn": [
          "1471-2431"
        ], 
        "name": "BMC Pediatrics", 
        "type": "Periodical"
      }, 
      {
        "issueNumber": "1", 
        "type": "PublicationIssue"
      }, 
      {
        "type": "PublicationVolume", 
        "volumeNumber": "18"
      }
    ], 
    "name": "End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium", 
    "pagination": "206", 
    "productId": [
      {
        "name": "readcube_id", 
        "type": "PropertyValue", 
        "value": [
          "55d6a71b820ac3a3ac88f4d90461a4a6fe63516697896e7b452f6b0d02bd586f"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "29945564"
        ]
      }, 
      {
        "name": "nlm_unique_id", 
        "type": "PropertyValue", 
        "value": [
          "100967804"
        ]
      }, 
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1186/s12887-018-1168-x"
        ]
      }, 
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1105142806"
        ]
      }
    ], 
    "sameAs": [
      "https://doi.org/10.1186/s12887-018-1168-x", 
      "https://app.dimensions.ai/details/publication/pub.1105142806"
    ], 
    "sdDataset": "articles", 
    "sdDatePublished": "2019-04-11T12:36", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-uberresearch-data-dimensions-target-20181106-alternative/cleanup/v134/2549eaecd7973599484d7c17b260dba0a4ecb94b/merge/v9/a6c9fde33151104705d4d7ff012ea9563521a3ce/jats-lookup/v90/0000000363_0000000363/records_70028_00000002.jsonl", 
    "type": "ScholarlyArticle", 
    "url": "https://link.springer.com/10.1186%2Fs12887-018-1168-x"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1186/s12887-018-1168-x'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1186/s12887-018-1168-x'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1186/s12887-018-1168-x'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1186/s12887-018-1168-x'


 

This table displays all metadata directly associated to this object as RDF triples.

287 TRIPLES      21 PREDICATES      73 URIs      42 LITERALS      30 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1186/s12887-018-1168-x schema:about N1035db9668b241558fd9677c0684ab90
2 N157ea4fff1054c8783514026e92afcee
3 N1f5a978981074b50a01abf12be36e1df
4 N2654605aa99e4cb18b257538186b52c7
5 N26dd763525e84c3ab549eaa67cb59498
6 N28f55359c87b4894bb8a662e137478aa
7 N4f6369d529954aa0a8a3b61c3c4512a5
8 N575dbc676af146609c1bf8c8aa070a05
9 N59356b87fbc94a68801b352edc7a1b5e
10 N62b47fe5b11c443391b983067c7f7fdf
11 N6d61aecdb14c4d87a847af8020437a88
12 N937e133be2ac41e7a98643e8d50b3320
13 N96228abce84e4b2aa036f84b36b82bdb
14 Naee08797b7a54d4388ebffb605deccf3
15 Nce8d42c28d2e423f995cc9ef3b7e8582
16 Nd32a05b62b5c42f3a2a9689920eb751a
17 Ndeac139200b040c4975841b133408fb3
18 Ne5120a313e624bbf85258403f0451012
19 Ne6419b900aad4413b95eb16f9f1bbe10
20 Nead0baee30e14ec8853b40289c14898e
21 Nf7fa5f6fa98c455594e6474053ae1139
22 anzsrc-for:11
23 anzsrc-for:1114
24 schema:author N1d5f0f90200a4ccfbfd32532a309c208
25 schema:citation https://app.dimensions.ai/details/publication/pub.1075010227
26 https://doi.org/10.1016/j.arcped.2007.02.030
27 https://doi.org/10.1016/j.arcped.2007.07.006
28 https://doi.org/10.1016/j.earlhumdev.2011.12.002
29 https://doi.org/10.1016/j.earlhumdev.2012.01.002
30 https://doi.org/10.1016/j.jpainsymman.2012.11.008
31 https://doi.org/10.1016/j.jpeds.2011.01.022
32 https://doi.org/10.1016/j.jpeds.2012.12.008
33 https://doi.org/10.1016/s0140-6736(00)02378-3
34 https://doi.org/10.1016/s0929-693x(00)00225-6
35 https://doi.org/10.1053/j.semperi.2009.07.005
36 https://doi.org/10.1053/j.semperi.2013.07.006
37 https://doi.org/10.1056/nejm200008103430601
38 https://doi.org/10.1056/nejmp058026
39 https://doi.org/10.1067/mpd.2000.109144
40 https://doi.org/10.1097/01.aog.0000284447.43442.55
41 https://doi.org/10.1111/apa.12421
42 https://doi.org/10.1136/archdischild-2013-305191
43 https://doi.org/10.1136/fn.88.6.f492
44 https://doi.org/10.1353/hcr.2005.0025
45 https://doi.org/10.1542/peds.2003-0903-l
46 https://doi.org/10.1542/peds.2007-0513
47 https://doi.org/10.1542/peds.2009-1060
48 schema:datePublished 2018-12
49 schema:datePublishedReg 2018-12-01
50 schema:description BACKGROUND: Very preterm birth (24 to < 32 week's gestation) is a major public health issue due to its prevalence, the clinical and ethical questions it raises and the associated costs. It raises two major clinical and ethical dilemma: (i) during the perinatal period, whether or not to actively manage a baby born very prematurely and (ii) during the postnatal period, whether or not to continue a curative treatment plan initiated at birth. The Wallonia-Brussels Federation in Belgium counts 11 neonatal intensive care units. METHODS: An inventory of key practices was compiled on the basis of an online questionnaire that was sent to the 65 neonatologists working in these units. The questionnaire investigated care-related decisions and practices during the antenatal, perinatal and postnatal periods, as well as personal opinions on the possibility of standardising and/or legislating for end-of-life decisions and practices. The participation rate was 89% (n = 58). RESULTS: The results show a high level of homogeneity pointing to overall agreement on the main principles governing curative practice and the gestational age that can be actively managed given the current state of knowledge. There was, however, greater diversity regarding principles governing the transition to end-of-life care, as well as opinions about the need for a common protocol or law to govern such practices. CONCLUSION: Our results reflect the uncertainty inherent in the complex and diverse situations that are encountered in this extreme area of clinical practice, and call for qualitative research and expert debates to further document and make recommendations for best practices regarding several "gray zones" of end-of-life care in neonatology, so that high quality palliative care may be granted to all neonates concerned with end-of-life decisions.
51 schema:genre research_article
52 schema:inLanguage en
53 schema:isAccessibleForFree true
54 schema:isPartOf N5ee2bd84038747069d6bffea1c8d9c1d
55 N8e233214ec044326a3f5317dbca2cd9b
56 sg:journal.1024635
57 schema:name End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
58 schema:pagination 206
59 schema:productId N2dde342d7f5a4a37a7054a97ade45677
60 N762e37e56dae4c6ab34fa4563add08c7
61 N7edd2f5780864356ab3a03eeae04b947
62 N947b7c1cf1e24012b65a23f9878e7b1c
63 Neb51d6b090db491d948a13257b444955
64 schema:sameAs https://app.dimensions.ai/details/publication/pub.1105142806
65 https://doi.org/10.1186/s12887-018-1168-x
66 schema:sdDatePublished 2019-04-11T12:36
67 schema:sdLicense https://scigraph.springernature.com/explorer/license/
68 schema:sdPublisher N67123f9ca13a4c28a55d50c55c0f0cd1
69 schema:url https://link.springer.com/10.1186%2Fs12887-018-1168-x
70 sgo:license sg:explorer/license/
71 sgo:sdDataset articles
72 rdf:type schema:ScholarlyArticle
73 N04611e00f84b4681ba6dbb0fc0ad58a0 rdf:first sg:person.01015006134.65
74 rdf:rest Nd21829af9ad44f17ae908343859164d4
75 N1035db9668b241558fd9677c0684ab90 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
76 schema:name Parents
77 rdf:type schema:DefinedTerm
78 N129116413a6e4f6eb9c05cb33a30132c rdf:first sg:person.016602436162.23
79 rdf:rest N50fcc27556b14d528de03abdfe0bff68
80 N157ea4fff1054c8783514026e92afcee schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
81 schema:name Terminal Care
82 rdf:type schema:DefinedTerm
83 N1d5f0f90200a4ccfbfd32532a309c208 rdf:first sg:person.01224550350.07
84 rdf:rest N04611e00f84b4681ba6dbb0fc0ad58a0
85 N1f5a978981074b50a01abf12be36e1df schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
86 schema:name Surveys and Questionnaires
87 rdf:type schema:DefinedTerm
88 N2654605aa99e4cb18b257538186b52c7 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
89 schema:name Male
90 rdf:type schema:DefinedTerm
91 N26dd763525e84c3ab549eaa67cb59498 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
92 schema:name Decision Making
93 rdf:type schema:DefinedTerm
94 N28f55359c87b4894bb8a662e137478aa schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
95 schema:name Clinical Decision-Making
96 rdf:type schema:DefinedTerm
97 N2aa98ea146ca4023982b8801156d2ac3 schema:familyName on behalf of the 11 neonatal intensive care units in the Wallonia-Brussels Federation
98 rdf:type schema:Person
99 N2dde342d7f5a4a37a7054a97ade45677 schema:name pubmed_id
100 schema:value 29945564
101 rdf:type schema:PropertyValue
102 N33cafade398e4165bc43104924e72aa8 rdf:first N2aa98ea146ca4023982b8801156d2ac3
103 rdf:rest rdf:nil
104 N4f6369d529954aa0a8a3b61c3c4512a5 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
105 schema:name Uncertainty
106 rdf:type schema:DefinedTerm
107 N50fcc27556b14d528de03abdfe0bff68 rdf:first N6d9de0629b9a4d2cb9b95b2162d3aa24
108 rdf:rest Nb375dd7590614f06839482830f5e8a9f
109 N575dbc676af146609c1bf8c8aa070a05 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
110 schema:name Infant, Extremely Premature
111 rdf:type schema:DefinedTerm
112 N59356b87fbc94a68801b352edc7a1b5e schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
113 schema:name Middle Aged
114 rdf:type schema:DefinedTerm
115 N5ee2bd84038747069d6bffea1c8d9c1d schema:volumeNumber 18
116 rdf:type schema:PublicationVolume
117 N62b47fe5b11c443391b983067c7f7fdf schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
118 schema:name Adult
119 rdf:type schema:DefinedTerm
120 N67123f9ca13a4c28a55d50c55c0f0cd1 schema:name Springer Nature - SN SciGraph project
121 rdf:type schema:Organization
122 N6d61aecdb14c4d87a847af8020437a88 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
123 schema:name Practice Patterns, Physicians'
124 rdf:type schema:DefinedTerm
125 N6d9de0629b9a4d2cb9b95b2162d3aa24 schema:affiliation Ne8134089dd6e48fda99c1de25fd4bd69
126 schema:familyName Mostaert
127 schema:givenName Anne
128 rdf:type schema:Person
129 N762e37e56dae4c6ab34fa4563add08c7 schema:name readcube_id
130 schema:value 55d6a71b820ac3a3ac88f4d90461a4a6fe63516697896e7b452f6b0d02bd586f
131 rdf:type schema:PropertyValue
132 N7e8b8c4ae03c45e1b47c86a49ac2da74 rdf:first sg:person.01220170040.64
133 rdf:rest N129116413a6e4f6eb9c05cb33a30132c
134 N7edd2f5780864356ab3a03eeae04b947 schema:name dimensions_id
135 schema:value pub.1105142806
136 rdf:type schema:PropertyValue
137 N8e233214ec044326a3f5317dbca2cd9b schema:issueNumber 1
138 rdf:type schema:PublicationIssue
139 N937e133be2ac41e7a98643e8d50b3320 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
140 schema:name Withholding Treatment
141 rdf:type schema:DefinedTerm
142 N947b7c1cf1e24012b65a23f9878e7b1c schema:name doi
143 schema:value 10.1186/s12887-018-1168-x
144 rdf:type schema:PropertyValue
145 N96228abce84e4b2aa036f84b36b82bdb schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
146 schema:name Attitude of Health Personnel
147 rdf:type schema:DefinedTerm
148 Naee08797b7a54d4388ebffb605deccf3 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
149 schema:name Intensive Care Units, Neonatal
150 rdf:type schema:DefinedTerm
151 Nb375dd7590614f06839482830f5e8a9f rdf:first sg:person.01332463060.43
152 rdf:rest Ne08b338542e94627955850924c433bb2
153 Nce8d42c28d2e423f995cc9ef3b7e8582 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
154 schema:name Neonatologists
155 rdf:type schema:DefinedTerm
156 Nd21829af9ad44f17ae908343859164d4 rdf:first sg:person.01212242124.24
157 rdf:rest N7e8b8c4ae03c45e1b47c86a49ac2da74
158 Nd32a05b62b5c42f3a2a9689920eb751a schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
159 schema:name Gestational Age
160 rdf:type schema:DefinedTerm
161 Ndd1ecd8f9039432098cf8bd372e79690 schema:name CHC-Clinique Saint-Vincent, Rocourt, Belgium
162 rdf:type schema:Organization
163 Ndeac139200b040c4975841b133408fb3 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
164 schema:name Infant, Newborn
165 rdf:type schema:DefinedTerm
166 Ndefcd16efeb14d478d3854404bc14d15 schema:affiliation https://www.grid.ac/institutes/grid.48769.34
167 schema:familyName Verellen
168 schema:givenName Gaston
169 rdf:type schema:Person
170 Ne08b338542e94627955850924c433bb2 rdf:first Ndefcd16efeb14d478d3854404bc14d15
171 rdf:rest N33cafade398e4165bc43104924e72aa8
172 Ne5120a313e624bbf85258403f0451012 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
173 schema:name Perinatal Care
174 rdf:type schema:DefinedTerm
175 Ne6419b900aad4413b95eb16f9f1bbe10 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
176 schema:name Humans
177 rdf:type schema:DefinedTerm
178 Ne8134089dd6e48fda99c1de25fd4bd69 schema:name Centre hospitalier régional (CHR) de Namur, Namur, Belgium
179 rdf:type schema:Organization
180 Nead0baee30e14ec8853b40289c14898e schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
181 schema:name Belgium
182 rdf:type schema:DefinedTerm
183 Neb51d6b090db491d948a13257b444955 schema:name nlm_unique_id
184 schema:value 100967804
185 rdf:type schema:PropertyValue
186 Nf7fa5f6fa98c455594e6474053ae1139 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
187 schema:name Female
188 rdf:type schema:DefinedTerm
189 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
190 schema:name Medical and Health Sciences
191 rdf:type schema:DefinedTerm
192 anzsrc-for:1114 schema:inDefinedTermSet anzsrc-for:
193 schema:name Paediatrics and Reproductive Medicine
194 rdf:type schema:DefinedTerm
195 sg:journal.1024635 schema:issn 1471-2431
196 schema:name BMC Pediatrics
197 rdf:type schema:Periodical
198 sg:person.01015006134.65 schema:affiliation https://www.grid.ac/institutes/grid.7942.8
199 schema:familyName Henrard
200 schema:givenName Séverine
201 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01015006134.65
202 rdf:type schema:Person
203 sg:person.01212242124.24 schema:affiliation https://www.grid.ac/institutes/grid.490655.b
204 schema:familyName Charon
205 schema:givenName Anne
206 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01212242124.24
207 rdf:type schema:Person
208 sg:person.01220170040.64 schema:affiliation https://www.grid.ac/institutes/grid.412209.c
209 schema:familyName Johansson
210 schema:givenName Anne-Britt
211 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01220170040.64
212 rdf:type schema:Person
213 sg:person.01224550350.07 schema:affiliation https://www.grid.ac/institutes/grid.7942.8
214 schema:familyName Aujoulat
215 schema:givenName Isabelle
216 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01224550350.07
217 rdf:type schema:Person
218 sg:person.01332463060.43 schema:affiliation https://www.grid.ac/institutes/grid.412157.4
219 schema:familyName Vermeylen
220 schema:givenName Danièle
221 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01332463060.43
222 rdf:type schema:Person
223 sg:person.016602436162.23 schema:affiliation Ndd1ecd8f9039432098cf8bd372e79690
224 schema:familyName Langhendries
225 schema:givenName Jean-Paul
226 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.016602436162.23
227 rdf:type schema:Person
228 https://app.dimensions.ai/details/publication/pub.1075010227 schema:CreativeWork
229 https://doi.org/10.1016/j.arcped.2007.02.030 schema:sameAs https://app.dimensions.ai/details/publication/pub.1025591110
230 rdf:type schema:CreativeWork
231 https://doi.org/10.1016/j.arcped.2007.07.006 schema:sameAs https://app.dimensions.ai/details/publication/pub.1026479842
232 rdf:type schema:CreativeWork
233 https://doi.org/10.1016/j.earlhumdev.2011.12.002 schema:sameAs https://app.dimensions.ai/details/publication/pub.1003995022
234 rdf:type schema:CreativeWork
235 https://doi.org/10.1016/j.earlhumdev.2012.01.002 schema:sameAs https://app.dimensions.ai/details/publication/pub.1015953843
236 rdf:type schema:CreativeWork
237 https://doi.org/10.1016/j.jpainsymman.2012.11.008 schema:sameAs https://app.dimensions.ai/details/publication/pub.1002461693
238 rdf:type schema:CreativeWork
239 https://doi.org/10.1016/j.jpeds.2011.01.022 schema:sameAs https://app.dimensions.ai/details/publication/pub.1021327789
240 rdf:type schema:CreativeWork
241 https://doi.org/10.1016/j.jpeds.2012.12.008 schema:sameAs https://app.dimensions.ai/details/publication/pub.1046579625
242 rdf:type schema:CreativeWork
243 https://doi.org/10.1016/s0140-6736(00)02378-3 schema:sameAs https://app.dimensions.ai/details/publication/pub.1024224024
244 rdf:type schema:CreativeWork
245 https://doi.org/10.1016/s0929-693x(00)00225-6 schema:sameAs https://app.dimensions.ai/details/publication/pub.1030937087
246 rdf:type schema:CreativeWork
247 https://doi.org/10.1053/j.semperi.2009.07.005 schema:sameAs https://app.dimensions.ai/details/publication/pub.1006186211
248 rdf:type schema:CreativeWork
249 https://doi.org/10.1053/j.semperi.2013.07.006 schema:sameAs https://app.dimensions.ai/details/publication/pub.1036748221
250 rdf:type schema:CreativeWork
251 https://doi.org/10.1056/nejm200008103430601 schema:sameAs https://app.dimensions.ai/details/publication/pub.1053614869
252 rdf:type schema:CreativeWork
253 https://doi.org/10.1056/nejmp058026 schema:sameAs https://app.dimensions.ai/details/publication/pub.1019393724
254 rdf:type schema:CreativeWork
255 https://doi.org/10.1067/mpd.2000.109144 schema:sameAs https://app.dimensions.ai/details/publication/pub.1015923837
256 rdf:type schema:CreativeWork
257 https://doi.org/10.1097/01.aog.0000284447.43442.55 schema:sameAs https://app.dimensions.ai/details/publication/pub.1027660172
258 rdf:type schema:CreativeWork
259 https://doi.org/10.1111/apa.12421 schema:sameAs https://app.dimensions.ai/details/publication/pub.1036749701
260 rdf:type schema:CreativeWork
261 https://doi.org/10.1136/archdischild-2013-305191 schema:sameAs https://app.dimensions.ai/details/publication/pub.1051009130
262 rdf:type schema:CreativeWork
263 https://doi.org/10.1136/fn.88.6.f492 schema:sameAs https://app.dimensions.ai/details/publication/pub.1015909940
264 rdf:type schema:CreativeWork
265 https://doi.org/10.1353/hcr.2005.0025 schema:sameAs https://app.dimensions.ai/details/publication/pub.1050742200
266 rdf:type schema:CreativeWork
267 https://doi.org/10.1542/peds.2003-0903-l schema:sameAs https://app.dimensions.ai/details/publication/pub.1067823649
268 rdf:type schema:CreativeWork
269 https://doi.org/10.1542/peds.2007-0513 schema:sameAs https://app.dimensions.ai/details/publication/pub.1067826104
270 rdf:type schema:CreativeWork
271 https://doi.org/10.1542/peds.2009-1060 schema:sameAs https://app.dimensions.ai/details/publication/pub.1002184516
272 rdf:type schema:CreativeWork
273 https://www.grid.ac/institutes/grid.412157.4 schema:alternateName Erasmus Hospital
274 schema:name Hôpital Erasme, Brussels, Belgium
275 rdf:type schema:Organization
276 https://www.grid.ac/institutes/grid.412209.c schema:alternateName Queen Fabiola Children's University Hospital
277 schema:name Hôpital universitaire des enfants Reine Fabiola (HUDERF), Brussels, Belgium
278 rdf:type schema:Organization
279 https://www.grid.ac/institutes/grid.48769.34 schema:alternateName Cliniques Universitaires Saint-Luc
280 schema:name Cliniques universitaires Saint-Luc, Brussels, Belgium
281 rdf:type schema:Organization
282 https://www.grid.ac/institutes/grid.490655.b schema:alternateName Grand Charleroi Hospital
283 schema:name Grand Hôpital de Charleroi (GHC), Charleroi, Belgium
284 rdf:type schema:Organization
285 https://www.grid.ac/institutes/grid.7942.8 schema:alternateName Université Catholique de Louvain
286 schema:name Université catholique de Louvain (UCL), Institute of Health and Society (IRSS), Clos chapelle-aux-champs, n° 30.14 - 1200, Brussels, Belgium
287 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...