The stay strong app as a self-management tool for first nations people with chronic kidney disease: a qualitative study View Full Text


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Article Info

DATE

2022-07-09

AUTHORS

Tricia Nagel, Kylie M. Dingwall, Michelle Sweet, David Kavanagh, Sandawana W Majoni, Cherian Sajiv, Alan Cass

ABSTRACT

BackgroundThe high burden of chronic kidney disease in First Nations peoples requires urgent attention. Empowering people to self-manage their own condition is key, along with promotion of traditional knowledge and empowerment of First Nations communities. This study explores the potential of a culturally responsive tool, already found to have high acceptability and feasibility among First Nations people, to support self-management for First Nations people with kidney failure. The Stay Strong app is a holistic wellbeing intervention. This study explores the suitability of the Stay Strong app to support self-management as shown by the readiness of participants to engage in goal setting. Data were collected during a clinical trial which followed adaption of research tools and procedures through collaboration between content and language experts, and community members with lived experience of kidney failure.MethodsFirst Nations (i.e., Aboriginal and Torres Strait Islander) participants receiving haemodialysis in the Northern Territory (n = 156) entered a three-arm, waitlist, single-blind randomised controlled trial which provided collaborative goal setting using the Stay Strong app at baseline or at 3 months. Qualitative data gathered during delivery of the intervention were examined using both content and thematic analysis.ResultsAlmost all participants (147, 94%) received a Stay Strong session: of these, 135 (92%) attended at least two sessions, and 83 (56%) set more than one wellbeing goal. Using a deductive approach to manifest content, 13 categories of goals were identified. The three most common were to: ‘connect with family or other people’, ‘go bush/be outdoors’ and ‘go home/be on country’. Analysis of latent content identified three themes throughout the goals: ‘social and emotional wellbeing’, ‘physical health’ and ‘cultural connection’.ConclusionThis study provides evidence of the suitability of the Stay Strong app for use as a chronic condition self-management tool. Participants set goals that addressed physical as well as social and emotional wellbeing needs, prioritising family, country, and cultural identity. The intervention aligns directly with self-management approaches that are holistic and prioritise individual empowerment. Implementation of self-management strategies into routine care remains a key challenge and further research is needed to establish drivers of success. More... »

PAGES

244

References to SciGraph publications

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    29 schema:description BackgroundThe high burden of chronic kidney disease in First Nations peoples requires urgent attention. Empowering people to self-manage their own condition is key, along with promotion of traditional knowledge and empowerment of First Nations communities. This study explores the potential of a culturally responsive tool, already found to have high acceptability and feasibility among First Nations people, to support self-management for First Nations people with kidney failure. The Stay Strong app is a holistic wellbeing intervention. This study explores the suitability of the Stay Strong app to support self-management as shown by the readiness of participants to engage in goal setting. Data were collected during a clinical trial which followed adaption of research tools and procedures through collaboration between content and language experts, and community members with lived experience of kidney failure.MethodsFirst Nations (i.e., Aboriginal and Torres Strait Islander) participants receiving haemodialysis in the Northern Territory (n = 156) entered a three-arm, waitlist, single-blind randomised controlled trial which provided collaborative goal setting using the Stay Strong app at baseline or at 3 months. Qualitative data gathered during delivery of the intervention were examined using both content and thematic analysis.ResultsAlmost all participants (147, 94%) received a Stay Strong session: of these, 135 (92%) attended at least two sessions, and 83 (56%) set more than one wellbeing goal. Using a deductive approach to manifest content, 13 categories of goals were identified. The three most common were to: ‘connect with family or other people’, ‘go bush/be outdoors’ and ‘go home/be on country’. Analysis of latent content identified three themes throughout the goals: ‘social and emotional wellbeing’, ‘physical health’ and ‘cultural connection’.ConclusionThis study provides evidence of the suitability of the Stay Strong app for use as a chronic condition self-management tool. Participants set goals that addressed physical as well as social and emotional wellbeing needs, prioritising family, country, and cultural identity. The intervention aligns directly with self-management approaches that are holistic and prioritise individual empowerment. Implementation of self-management strategies into routine care remains a key challenge and further research is needed to establish drivers of success.
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    36 ConclusionThis study
    37 First Nations communities
    38 First Nations people
    39 Nations communities
    40 Nations participants
    41 Nations people
    42 Northern Territory
    43 Strong App
    44 acceptability
    45 adaption
    46 analysis
    47 approach
    48 apps
    49 attention
    50 baseline
    51 burden
    52 care
    53 categories
    54 categories of goals
    55 challenges
    56 chronic kidney disease
    57 clinical trials
    58 collaboration
    59 collaborative goal setting
    60 community
    61 community members
    62 conditions
    63 connection
    64 content
    65 countries
    66 cultural connections
    67 cultural identity
    68 data
    69 deductive approach
    70 delivery
    71 disease
    72 drivers
    73 drivers of success
    74 emotional wellbeing
    75 empowerment
    76 evidence
    77 experience
    78 experts
    79 failure
    80 family
    81 feasibility
    82 further research
    83 goal
    84 goal setting
    85 haemodialysis
    86 health
    87 high acceptability
    88 high burden
    89 identity
    90 implementation
    91 individual empowerment
    92 intervention
    93 key challenges
    94 kidney disease
    95 kidney failure
    96 knowledge
    97 language experts
    98 latent content
    99 lived experience
    100 manifest content
    101 members
    102 months
    103 need
    104 own condition
    105 participants
    106 people
    107 physical health
    108 potential
    109 procedure
    110 promotion
    111 qualitative data
    112 qualitative study
    113 readiness
    114 readiness of participants
    115 research
    116 research tool
    117 responsive tool
    118 routine care
    119 self-management approach
    120 self-management strategies
    121 self-management tools
    122 sessions
    123 setting
    124 strategies
    125 study
    126 success
    127 suitability
    128 territory
    129 thematic analysis
    130 themes
    131 three-arm
    132 tool
    133 traditional knowledge
    134 trials
    135 urgent attention
    136 use
    137 wellbeing
    138 wellbeing interventions
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