Coding practice in national and regional kidney biopsy registries View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2021-05-24

AUTHORS

Amélie Dendooven, Han Peetermans, Mark Helbert, Tri Q. Nguyen, Niels Marcussen, Michio Nagata, Loreto Gesualdo, Agnieszka Perkowska-Ptasinska, Cristina Capusa, Juan M. López-Gómez, Colin Geddes, Myrurgia A. Abdul-Hamid, Mårten Segelmark, Rosnawati Yahya, Mariela Garau, Russell Villanueva, Anthony Dorman, Sean Barbour, Ronald Cornet, Helmut Hopfer, Kerstin Amann, Sabine Leh

ABSTRACT

BackgroundKidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practice.MethodsA literature search was undertaken to identify biopsy registries for medical kidney diseases. These data were supplemented with information from personal contacts and from registry websites. A questionnaire was sent to all identified registries, investigating age of registries, scope, method of coding, possible mapping to international terminologies as well as self-reported problems and suggestions for improvement.ResultsSixteen regional or national kidney biopsy registries were identified, of which 11 were older than 10 years. Most registries were located either in Europe (10/16) or in Asia (4/16). Registries most often use a proprietary coding system (12/16). Only a few of these coding systems were mapped to SNOMED CT (1), older SNOMED versions (2) or ERA-EDTA PRD (3). Lack of maintenance and updates of the coding system was the most commonly reported problem.ConclusionsThere were large gaps in the global coverage of kidney biopsy registries. Limited use of international coding systems among existing registries hampers interoperability and exchange of data. The study underlines that the use of a common and uniform coding system is necessary to fully realize the potential of kidney biopsy registries. More... »

PAGES

193

Identifiers

URI

http://scigraph.springernature.com/pub.10.1186/s12882-021-02365-3

DOI

http://dx.doi.org/10.1186/s12882-021-02365-3

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1138308616

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/34030637


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24 schema:description BackgroundKidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practice.MethodsA literature search was undertaken to identify biopsy registries for medical kidney diseases. These data were supplemented with information from personal contacts and from registry websites. A questionnaire was sent to all identified registries, investigating age of registries, scope, method of coding, possible mapping to international terminologies as well as self-reported problems and suggestions for improvement.ResultsSixteen regional or national kidney biopsy registries were identified, of which 11 were older than 10 years. Most registries were located either in Europe (10/16) or in Asia (4/16). Registries most often use a proprietary coding system (12/16). Only a few of these coding systems were mapped to SNOMED CT (1), older SNOMED versions (2) or ERA-EDTA PRD (3). Lack of maintenance and updates of the coding system was the most commonly reported problem.ConclusionsThere were large gaps in the global coverage of kidney biopsy registries. Limited use of international coding systems among existing registries hampers interoperability and exchange of data. The study underlines that the use of a common and uniform coding system is necessary to fully realize the potential of kidney biopsy registries.
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398 Ghent University Hospital, Ghent, Belgium
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