Addressing ethical issues in H3Africa research – the views of research ethics committee members View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2015-12

AUTHORS

Jantina de Vries, Akin Abayomi, Katherine Littler, Ebony Madden, Sheryl McCurdy, Odile Ouwe Missi Oukem-Boyer, Janet Seeley, Ciara Staunton, Godfrey Tangwa, Paulina Tindana, Jennifer Troyer, The H3Africa Working Group on Ethics

ABSTRACT

In June 2014, the H3Africa Working Group on Ethics organised a workshop with members of over 40 research ethics committees from across Africa to discuss the ethical challenges raised in H3Africa research, and to receive input on the proposed H3Africa governance framework. Prominent amongst a myriad of ethical issues raised by meeting participants were concerns over consent for future use of samples and data, the role of community engagement in large international collaborative projects, and particular features of the governance of sample sharing. This report describes these concerns in detail and will be informative to researchers wishing to conduct genomic research on diseases pertinent to the African research context. More... »

PAGES

1

Identifiers

URI

http://scigraph.springernature.com/pub.10.1186/s11568-015-0006-6

DOI

http://dx.doi.org/10.1186/s11568-015-0006-6

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1033808953


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153 https://www.grid.ac/institutes/grid.415861.f schema:alternateName Uganda Virus Research Institute
154 schema:name MRC/UVRI Uganda Research Unit on AIDS, P.O. Box 49, Entebbe, Uganda
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156 https://www.grid.ac/institutes/grid.415943.e schema:alternateName Navrongo Health Research Centre
157 schema:name Navrongo Health Research Centre, Ghana Health Service, P.O.Box 114, Navrongo, Ghana
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159 https://www.grid.ac/institutes/grid.429651.d schema:alternateName National Center for Advancing Translational Sciences
160 schema:name Human Heredity and Health in Africa, National Human Genome Research Institute, NIH, 5635 Fishers Lane Suite 4076, 20852, Rockville, Maryland, USA
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162 https://www.grid.ac/institutes/grid.452260.7 schema:alternateName Centre de Recherche Médicale et Sanitaire
163 schema:name CERMES, 634 Bd de la Nation, PO Box 10887, YN034, Niamey, Niger
164 Cameroon Bioethics Initiative (CAMBIN), the Ark, Mendong, PO Box 31489, Yaoundé, Cameroon
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167 schema:name Wellcome Trust, Gibbs Building, 215 Euston Road, NW1 2BE, London, UK
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