Patient reported outcomes for preschool children with recurrent wheeze View Full Text


Ontology type: schema:ScholarlyArticle     


Article Info

DATE

2019-12

AUTHORS

Makrinioti Heidi, Keating Emily, Holden Benjamin, Coren Michael, Klaber Robert, Blair Mitch, Griffiths Chris, Watson Mando, Bush Andrew

ABSTRACT

Children with preschool wheeze regularly attend UK emergency departments. There is no international consensus on any specific personalised management approach. This paper describes the first attempt to co-design patient-centred outcomes with families. Preschool wheezers' parents participated in semi-structured interviews and focus-group discussions to air their concerns and identify potential additional support. Fifty-seven families participated in these interviews. From these, themes were defined through qualitative content analysis. Parental experience was mapped to the patient pathway and seven important personalised outcomes were described. These can be used to inform a tool which following further validation could potentially support management of children with preschool wheeze and provide an additional patient focused clinical outcome measure in audit and research. More... »

PAGES

7

Identifiers

URI

http://scigraph.springernature.com/pub.10.1038/s41533-019-0120-3

DOI

http://dx.doi.org/10.1038/s41533-019-0120-3

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1112987567

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/30914646


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