Stakeholders’ views on the value of outcomes from clinical genetic and genomic interventions View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2018-10-31

AUTHORS

Maren T. Scheuner, Marcia M. Russell, Catherine Chanfreau-Coffinier, Jane Peredo, Elizabeth M. Yano, Alison B. Hamilton, Barbara Lerner, Dawn Provenzale, Sara J. Knight, Corrine I. Voils

ABSTRACT

ABSTRACTPurposeRobust evidence about the value of clinical genomic interventions (CGIs), such as genetic/genomic testing or clinical genetic evaluation, is limited. We obtained stakeholders’ perspectives on outcomes from CGIs to help inform their value.MethodsWe used an adapted Delphi expert panel process. Two anonymous survey rounds assessed the value of 44 CGI outcomes and whether a third party should pay for them, with discussion in between rounds.ResultsSixty-six panelists responded to the first-round survey and 60 to the second. Policy-makers/payers gave the lowest ratings for value and researchers gave the highest. Patients/consumers had the most uncertainty about value and payment by a third party. Uncertainty about value was observed when evidence of proven health benefit was lacking, potential harms outweighed benefits for reproductive outcomes, and outcomes had only personal utility for individuals or family members. Agreement about outcomes for which a third party should not pay included prevention through surgery with unproven health benefits, establishing ancestry, parental consanguinity, and paternity.ConclusionResearch is needed to understand factors contributing to uncertainty and stakeholder differences about the value of CGI outcomes. Reaching consensus will accelerate the creation of metrics to generate the evidence needed to inform value and guide policies that promote availability, uptake, and coverage of CGIs. More... »

PAGES

1371-1380

Identifiers

URI

http://scigraph.springernature.com/pub.10.1038/s41436-018-0344-6

DOI

http://dx.doi.org/10.1038/s41436-018-0344-6

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1107906829

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/30377384


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Public Health and Health Services", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Attitude of Health Personnel", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Delphi Technique", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Genetic Testing", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Genomics", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Humans", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Stakeholder Participation", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Surveys and Questionnaires", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA", 
          "id": "http://www.grid.ac/institutes/grid.428235.a", 
          "name": [
            "Department of Pediatrics, Division of Medical Genetics, University of California\u2013San Francisco, San Francisco, CA, USA", 
            "San Francisco VA Healthcare System, San Francisco, CA, USA", 
            "VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Scheuner", 
        "givenName": "Maren T.", 
        "id": "sg:person.0601372407.54", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0601372407.54"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Department of Surgery, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA", 
          "id": "http://www.grid.ac/institutes/grid.19006.3e", 
          "name": [
            "VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA", 
            "VA Greater Los Angeles Healthcare System, Los Angeles, CA, USA", 
            "Department of Surgery, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Russell", 
        "givenName": "Marcia M.", 
        "id": "sg:person.01011664014.18", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01011664014.18"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "VA Salt Lake City Healthcare System, Salt Lake City, UT, USA", 
          "id": "http://www.grid.ac/institutes/grid.280807.5", 
          "name": [
            "VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA", 
            "VA Salt Lake City Healthcare System, Salt Lake City, UT, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Chanfreau-Coffinier", 
        "givenName": "Catherine", 
        "id": "sg:person.01235373226.85", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01235373226.85"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "VA Greater Los Angeles Healthcare System, Los Angeles, CA, USA", 
          "id": "http://www.grid.ac/institutes/grid.417119.b", 
          "name": [
            "VA Greater Los Angeles Healthcare System, Los Angeles, CA, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Peredo", 
        "givenName": "Jane", 
        "id": "sg:person.01361662250.21", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01361662250.21"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Department of Health Policy & Management, UCLA Fielding School of Public Health, Los Angeles, CA, USA", 
          "id": "http://www.grid.ac/institutes/grid.19006.3e", 
          "name": [
            "VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA", 
            "Department of Health Policy & Management, UCLA Fielding School of Public Health, Los Angeles, CA, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Yano", 
        "givenName": "Elizabeth M.", 
        "id": "sg:person.01120047620.99", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01120047620.99"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA", 
          "id": "http://www.grid.ac/institutes/grid.19006.3e", 
          "name": [
            "VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA", 
            "Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Hamilton", 
        "givenName": "Alison B.", 
        "id": "sg:person.01141060134.39", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01141060134.39"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "VA Boston Healthcare System, Boston, MA, USA", 
          "id": "http://www.grid.ac/institutes/grid.410370.1", 
          "name": [
            "VA Boston Healthcare System, Boston, MA, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Lerner", 
        "givenName": "Barbara", 
        "id": "sg:person.0757527540.82", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0757527540.82"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Duke University School of Medicine, Durham, NC, USA", 
          "id": "http://www.grid.ac/institutes/grid.26009.3d", 
          "name": [
            "VA Cooperative Studies Program Epidemiology Center, Durham, NC, USA", 
            "Duke University School of Medicine, Durham, NC, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Provenzale", 
        "givenName": "Dawn", 
        "id": "sg:person.01065503522.82", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01065503522.82"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Department of Medicine, Division of Epidemiology, University of Utah, Salt Lake City, UT, USA", 
          "id": "http://www.grid.ac/institutes/grid.223827.e", 
          "name": [
            "VA Salt Lake City Healthcare System, Salt Lake City, UT, USA", 
            "Department of Medicine, Division of Epidemiology, University of Utah, Salt Lake City, UT, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Knight", 
        "givenName": "Sara J.", 
        "id": "sg:person.011602035142.00", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.011602035142.00"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Department of Surgery, University of Wisconsin School of Medicine and Public Health, Madison, WI, USA", 
          "id": "http://www.grid.ac/institutes/grid.14003.36", 
          "name": [
            "William S. Middleton Memorial Veterans Hospital, Madison, WI, USA", 
            "Department of Surgery, University of Wisconsin School of Medicine and Public Health, Madison, WI, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Voils", 
        "givenName": "Corrine I.", 
        "id": "sg:person.01107755030.54", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01107755030.54"
        ], 
        "type": "Person"
      }
    ], 
    "citation": [
      {
        "id": "sg:pub.10.1038/s41431-018-0095-5", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1100895349", 
          "https://doi.org/10.1038/s41431-018-0095-5"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/ejhg.2017.10", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1084127979", 
          "https://doi.org/10.1038/ejhg.2017.10"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/gim.2016.186", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1017469703", 
          "https://doi.org/10.1038/gim.2016.186"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s10897-014-9817-1", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1041195895", 
          "https://doi.org/10.1007/s10897-014-9817-1"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/gim.2012.157", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1030195158", 
          "https://doi.org/10.1038/gim.2012.157"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/gim.2012.74", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1045270901", 
          "https://doi.org/10.1038/gim.2012.74"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/gim.2014.76", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1031186617", 
          "https://doi.org/10.1038/gim.2014.76"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s10897-014-9745-0", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1046445413", 
          "https://doi.org/10.1007/s10897-014-9745-0"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/gim.2013.94", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1020083360", 
          "https://doi.org/10.1038/gim.2013.94"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/gim.2016.109", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1002570207", 
          "https://doi.org/10.1038/gim.2016.109"
        ], 
        "type": "CreativeWork"
      }
    ], 
    "datePublished": "2018-10-31", 
    "datePublishedReg": "2018-10-31", 
    "description": "ABSTRACTPurposeRobust evidence about the value of clinical genomic interventions (CGIs), such as genetic/genomic testing or clinical genetic evaluation, is limited. We obtained stakeholders\u2019 perspectives on outcomes from CGIs to help inform their value.MethodsWe used an adapted Delphi expert panel process. Two anonymous survey rounds assessed the value of 44 CGI outcomes and whether a third party should pay for them, with discussion in between rounds.ResultsSixty-six panelists responded to the first-round survey and 60 to the second. Policy-makers/payers gave the lowest ratings for value and researchers gave the highest. Patients/consumers had the most uncertainty about value and payment by a third party. Uncertainty about value was observed when evidence of proven health benefit was lacking, potential harms outweighed benefits for reproductive outcomes, and outcomes had only personal utility for individuals or family members. Agreement about outcomes for which a third party should not pay included prevention through surgery with unproven health benefits, establishing ancestry, parental consanguinity, and paternity.ConclusionResearch is needed to understand factors contributing to uncertainty and stakeholder differences about the value of CGI outcomes. Reaching consensus will accelerate the creation of metrics to generate the evidence needed to inform value and guide policies that promote availability, uptake, and coverage of CGIs.", 
    "genre": "article", 
    "id": "sg:pub.10.1038/s41436-018-0344-6", 
    "inLanguage": "en", 
    "isAccessibleForFree": true, 
    "isPartOf": [
      {
        "id": "sg:journal.1119411", 
        "issn": [
          "1098-3600", 
          "1530-0366"
        ], 
        "name": "Genetics in Medicine", 
        "publisher": "Springer Nature", 
        "type": "Periodical"
      }, 
      {
        "issueNumber": "6", 
        "type": "PublicationIssue"
      }, 
      {
        "type": "PublicationVolume", 
        "volumeNumber": "21"
      }
    ], 
    "keywords": [
      "first-round survey", 
      "health benefits", 
      "clinical genetic evaluation", 
      "reproductive outcomes", 
      "patients/consumers", 
      "parental consanguinity", 
      "outcomes", 
      "expert panel process", 
      "anonymous survey", 
      "potential harm", 
      "genomic testing", 
      "family members", 
      "value of outcomes", 
      "intervention", 
      "genomic interventions", 
      "panel process", 
      "ResultsSixty", 
      "evidence", 
      "surgery", 
      "MethodsWe", 
      "lower ratings", 
      "prevention", 
      "benefits", 
      "genetic evaluation", 
      "consanguinity", 
      "payers", 
      "survey", 
      "harm", 
      "individuals", 
      "personal utility", 
      "uptake", 
      "ConclusionResearch", 
      "factors", 
      "differences", 
      "testing", 
      "stakeholder views", 
      "consensus", 
      "evaluation", 
      "ratings", 
      "values", 
      "utility", 
      "ancestry", 
      "Delphi expert panel process", 
      "rounds", 
      "seconds", 
      "members", 
      "most uncertainty", 
      "availability", 
      "panelists", 
      "creation of metrics", 
      "view", 
      "coverage", 
      "discussion", 
      "paternity", 
      "perspective", 
      "third party", 
      "payments", 
      "researchers", 
      "consumers", 
      "stakeholders", 
      "process", 
      "parties", 
      "policy", 
      "agreement", 
      "stakeholder differences", 
      "uncertainty", 
      "creation", 
      "metrics", 
      "CGIs", 
      "adapted Delphi expert panel process", 
      "CGI outcomes", 
      "unproven health benefits", 
      "coverage of CGIs"
    ], 
    "name": "Stakeholders\u2019 views on the value of outcomes from clinical genetic and genomic interventions", 
    "pagination": "1371-1380", 
    "productId": [
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1107906829"
        ]
      }, 
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1038/s41436-018-0344-6"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "30377384"
        ]
      }
    ], 
    "sameAs": [
      "https://doi.org/10.1038/s41436-018-0344-6", 
      "https://app.dimensions.ai/details/publication/pub.1107906829"
    ], 
    "sdDataset": "articles", 
    "sdDatePublished": "2021-11-01T18:33", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-springernature-scigraph/baseset/20211101/entities/gbq_results/article/article_782.jsonl", 
    "type": "ScholarlyArticle", 
    "url": "https://doi.org/10.1038/s41436-018-0344-6"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1038/s41436-018-0344-6'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1038/s41436-018-0344-6'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1038/s41436-018-0344-6'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1038/s41436-018-0344-6'


 

This table displays all metadata directly associated to this object as RDF triples.

299 TRIPLES      22 PREDICATES      116 URIs      98 LITERALS      14 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1038/s41436-018-0344-6 schema:about N10dbae52122346eda4f41aaf08053f98
2 N178ddcb5fc8d47dc81d2d7fb5c7f2bd5
3 N25421dbae07447cea3d83b302799a1d8
4 N37d752a9680d43da90ab27a7433d337d
5 N7a9e7574dadb41d7bd488312327f6d19
6 Ne25bdcf4ef164b87a1c9cb0db4855367
7 Nf344546e19574eebbb1658a4727179a8
8 anzsrc-for:11
9 anzsrc-for:1117
10 schema:author Nbda8a8447091451ab0af9a7e9db03d9c
11 schema:citation sg:pub.10.1007/s10897-014-9745-0
12 sg:pub.10.1007/s10897-014-9817-1
13 sg:pub.10.1038/ejhg.2017.10
14 sg:pub.10.1038/gim.2012.157
15 sg:pub.10.1038/gim.2012.74
16 sg:pub.10.1038/gim.2013.94
17 sg:pub.10.1038/gim.2014.76
18 sg:pub.10.1038/gim.2016.109
19 sg:pub.10.1038/gim.2016.186
20 sg:pub.10.1038/s41431-018-0095-5
21 schema:datePublished 2018-10-31
22 schema:datePublishedReg 2018-10-31
23 schema:description ABSTRACTPurposeRobust evidence about the value of clinical genomic interventions (CGIs), such as genetic/genomic testing or clinical genetic evaluation, is limited. We obtained stakeholders’ perspectives on outcomes from CGIs to help inform their value.MethodsWe used an adapted Delphi expert panel process. Two anonymous survey rounds assessed the value of 44 CGI outcomes and whether a third party should pay for them, with discussion in between rounds.ResultsSixty-six panelists responded to the first-round survey and 60 to the second. Policy-makers/payers gave the lowest ratings for value and researchers gave the highest. Patients/consumers had the most uncertainty about value and payment by a third party. Uncertainty about value was observed when evidence of proven health benefit was lacking, potential harms outweighed benefits for reproductive outcomes, and outcomes had only personal utility for individuals or family members. Agreement about outcomes for which a third party should not pay included prevention through surgery with unproven health benefits, establishing ancestry, parental consanguinity, and paternity.ConclusionResearch is needed to understand factors contributing to uncertainty and stakeholder differences about the value of CGI outcomes. Reaching consensus will accelerate the creation of metrics to generate the evidence needed to inform value and guide policies that promote availability, uptake, and coverage of CGIs.
24 schema:genre article
25 schema:inLanguage en
26 schema:isAccessibleForFree true
27 schema:isPartOf N77795143a8054689ab61d17829ee5b65
28 N8d084c445251408cbb9afa9fa5c502c0
29 sg:journal.1119411
30 schema:keywords CGI outcomes
31 CGIs
32 ConclusionResearch
33 Delphi expert panel process
34 MethodsWe
35 ResultsSixty
36 adapted Delphi expert panel process
37 agreement
38 ancestry
39 anonymous survey
40 availability
41 benefits
42 clinical genetic evaluation
43 consanguinity
44 consensus
45 consumers
46 coverage
47 coverage of CGIs
48 creation
49 creation of metrics
50 differences
51 discussion
52 evaluation
53 evidence
54 expert panel process
55 factors
56 family members
57 first-round survey
58 genetic evaluation
59 genomic interventions
60 genomic testing
61 harm
62 health benefits
63 individuals
64 intervention
65 lower ratings
66 members
67 metrics
68 most uncertainty
69 outcomes
70 panel process
71 panelists
72 parental consanguinity
73 parties
74 paternity
75 patients/consumers
76 payers
77 payments
78 personal utility
79 perspective
80 policy
81 potential harm
82 prevention
83 process
84 ratings
85 reproductive outcomes
86 researchers
87 rounds
88 seconds
89 stakeholder differences
90 stakeholder views
91 stakeholders
92 surgery
93 survey
94 testing
95 third party
96 uncertainty
97 unproven health benefits
98 uptake
99 utility
100 value of outcomes
101 values
102 view
103 schema:name Stakeholders’ views on the value of outcomes from clinical genetic and genomic interventions
104 schema:pagination 1371-1380
105 schema:productId N0207734249874c33b590f67f07286914
106 Ned2649ba67b9446ead4d33b7bd695c61
107 Nf23337d9c83545fabc2128245c2e105d
108 schema:sameAs https://app.dimensions.ai/details/publication/pub.1107906829
109 https://doi.org/10.1038/s41436-018-0344-6
110 schema:sdDatePublished 2021-11-01T18:33
111 schema:sdLicense https://scigraph.springernature.com/explorer/license/
112 schema:sdPublisher N8bdfc77f6bde4fbca54c7d7fd4d8d309
113 schema:url https://doi.org/10.1038/s41436-018-0344-6
114 sgo:license sg:explorer/license/
115 sgo:sdDataset articles
116 rdf:type schema:ScholarlyArticle
117 N0207734249874c33b590f67f07286914 schema:name doi
118 schema:value 10.1038/s41436-018-0344-6
119 rdf:type schema:PropertyValue
120 N10dbae52122346eda4f41aaf08053f98 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
121 schema:name Stakeholder Participation
122 rdf:type schema:DefinedTerm
123 N178ddcb5fc8d47dc81d2d7fb5c7f2bd5 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
124 schema:name Surveys and Questionnaires
125 rdf:type schema:DefinedTerm
126 N25421dbae07447cea3d83b302799a1d8 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
127 schema:name Genetic Testing
128 rdf:type schema:DefinedTerm
129 N37d752a9680d43da90ab27a7433d337d schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
130 schema:name Genomics
131 rdf:type schema:DefinedTerm
132 N3f9360bd1e074a3faa66930b1ca22a3d rdf:first sg:person.0757527540.82
133 rdf:rest Ne36b5b5f382a4c63bbe7fbad47dad4dd
134 N4c1ca774651949cf9444b8318e2ae41b rdf:first sg:person.01107755030.54
135 rdf:rest rdf:nil
136 N5a04bff93eb5443cb298680bd91a6a36 rdf:first sg:person.01235373226.85
137 rdf:rest N846df774938b42878b5814373fe1bd04
138 N77795143a8054689ab61d17829ee5b65 schema:issueNumber 6
139 rdf:type schema:PublicationIssue
140 N7a9e7574dadb41d7bd488312327f6d19 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
141 schema:name Delphi Technique
142 rdf:type schema:DefinedTerm
143 N846df774938b42878b5814373fe1bd04 rdf:first sg:person.01361662250.21
144 rdf:rest N953cc985ec554c1abfcf3728d02cd0f3
145 N8bdfc77f6bde4fbca54c7d7fd4d8d309 schema:name Springer Nature - SN SciGraph project
146 rdf:type schema:Organization
147 N8d084c445251408cbb9afa9fa5c502c0 schema:volumeNumber 21
148 rdf:type schema:PublicationVolume
149 N953cc985ec554c1abfcf3728d02cd0f3 rdf:first sg:person.01120047620.99
150 rdf:rest Nddc3fd8f4312423ab4b5d9ac0d31471d
151 N97c778af02a24cbba3e83b916fc464be rdf:first sg:person.011602035142.00
152 rdf:rest N4c1ca774651949cf9444b8318e2ae41b
153 Nbda8a8447091451ab0af9a7e9db03d9c rdf:first sg:person.0601372407.54
154 rdf:rest Ne2f1530833d7463eac25cc10e1a51e7e
155 Nddc3fd8f4312423ab4b5d9ac0d31471d rdf:first sg:person.01141060134.39
156 rdf:rest N3f9360bd1e074a3faa66930b1ca22a3d
157 Ne25bdcf4ef164b87a1c9cb0db4855367 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
158 schema:name Attitude of Health Personnel
159 rdf:type schema:DefinedTerm
160 Ne2f1530833d7463eac25cc10e1a51e7e rdf:first sg:person.01011664014.18
161 rdf:rest N5a04bff93eb5443cb298680bd91a6a36
162 Ne36b5b5f382a4c63bbe7fbad47dad4dd rdf:first sg:person.01065503522.82
163 rdf:rest N97c778af02a24cbba3e83b916fc464be
164 Ned2649ba67b9446ead4d33b7bd695c61 schema:name pubmed_id
165 schema:value 30377384
166 rdf:type schema:PropertyValue
167 Nf23337d9c83545fabc2128245c2e105d schema:name dimensions_id
168 schema:value pub.1107906829
169 rdf:type schema:PropertyValue
170 Nf344546e19574eebbb1658a4727179a8 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
171 schema:name Humans
172 rdf:type schema:DefinedTerm
173 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
174 schema:name Medical and Health Sciences
175 rdf:type schema:DefinedTerm
176 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
177 schema:name Public Health and Health Services
178 rdf:type schema:DefinedTerm
179 sg:journal.1119411 schema:issn 1098-3600
180 1530-0366
181 schema:name Genetics in Medicine
182 schema:publisher Springer Nature
183 rdf:type schema:Periodical
184 sg:person.01011664014.18 schema:affiliation grid-institutes:grid.19006.3e
185 schema:familyName Russell
186 schema:givenName Marcia M.
187 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01011664014.18
188 rdf:type schema:Person
189 sg:person.01065503522.82 schema:affiliation grid-institutes:grid.26009.3d
190 schema:familyName Provenzale
191 schema:givenName Dawn
192 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01065503522.82
193 rdf:type schema:Person
194 sg:person.01107755030.54 schema:affiliation grid-institutes:grid.14003.36
195 schema:familyName Voils
196 schema:givenName Corrine I.
197 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01107755030.54
198 rdf:type schema:Person
199 sg:person.01120047620.99 schema:affiliation grid-institutes:grid.19006.3e
200 schema:familyName Yano
201 schema:givenName Elizabeth M.
202 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01120047620.99
203 rdf:type schema:Person
204 sg:person.01141060134.39 schema:affiliation grid-institutes:grid.19006.3e
205 schema:familyName Hamilton
206 schema:givenName Alison B.
207 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01141060134.39
208 rdf:type schema:Person
209 sg:person.011602035142.00 schema:affiliation grid-institutes:grid.223827.e
210 schema:familyName Knight
211 schema:givenName Sara J.
212 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.011602035142.00
213 rdf:type schema:Person
214 sg:person.01235373226.85 schema:affiliation grid-institutes:grid.280807.5
215 schema:familyName Chanfreau-Coffinier
216 schema:givenName Catherine
217 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01235373226.85
218 rdf:type schema:Person
219 sg:person.01361662250.21 schema:affiliation grid-institutes:grid.417119.b
220 schema:familyName Peredo
221 schema:givenName Jane
222 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01361662250.21
223 rdf:type schema:Person
224 sg:person.0601372407.54 schema:affiliation grid-institutes:grid.428235.a
225 schema:familyName Scheuner
226 schema:givenName Maren T.
227 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0601372407.54
228 rdf:type schema:Person
229 sg:person.0757527540.82 schema:affiliation grid-institutes:grid.410370.1
230 schema:familyName Lerner
231 schema:givenName Barbara
232 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0757527540.82
233 rdf:type schema:Person
234 sg:pub.10.1007/s10897-014-9745-0 schema:sameAs https://app.dimensions.ai/details/publication/pub.1046445413
235 https://doi.org/10.1007/s10897-014-9745-0
236 rdf:type schema:CreativeWork
237 sg:pub.10.1007/s10897-014-9817-1 schema:sameAs https://app.dimensions.ai/details/publication/pub.1041195895
238 https://doi.org/10.1007/s10897-014-9817-1
239 rdf:type schema:CreativeWork
240 sg:pub.10.1038/ejhg.2017.10 schema:sameAs https://app.dimensions.ai/details/publication/pub.1084127979
241 https://doi.org/10.1038/ejhg.2017.10
242 rdf:type schema:CreativeWork
243 sg:pub.10.1038/gim.2012.157 schema:sameAs https://app.dimensions.ai/details/publication/pub.1030195158
244 https://doi.org/10.1038/gim.2012.157
245 rdf:type schema:CreativeWork
246 sg:pub.10.1038/gim.2012.74 schema:sameAs https://app.dimensions.ai/details/publication/pub.1045270901
247 https://doi.org/10.1038/gim.2012.74
248 rdf:type schema:CreativeWork
249 sg:pub.10.1038/gim.2013.94 schema:sameAs https://app.dimensions.ai/details/publication/pub.1020083360
250 https://doi.org/10.1038/gim.2013.94
251 rdf:type schema:CreativeWork
252 sg:pub.10.1038/gim.2014.76 schema:sameAs https://app.dimensions.ai/details/publication/pub.1031186617
253 https://doi.org/10.1038/gim.2014.76
254 rdf:type schema:CreativeWork
255 sg:pub.10.1038/gim.2016.109 schema:sameAs https://app.dimensions.ai/details/publication/pub.1002570207
256 https://doi.org/10.1038/gim.2016.109
257 rdf:type schema:CreativeWork
258 sg:pub.10.1038/gim.2016.186 schema:sameAs https://app.dimensions.ai/details/publication/pub.1017469703
259 https://doi.org/10.1038/gim.2016.186
260 rdf:type schema:CreativeWork
261 sg:pub.10.1038/s41431-018-0095-5 schema:sameAs https://app.dimensions.ai/details/publication/pub.1100895349
262 https://doi.org/10.1038/s41431-018-0095-5
263 rdf:type schema:CreativeWork
264 grid-institutes:grid.14003.36 schema:alternateName Department of Surgery, University of Wisconsin School of Medicine and Public Health, Madison, WI, USA
265 schema:name Department of Surgery, University of Wisconsin School of Medicine and Public Health, Madison, WI, USA
266 William S. Middleton Memorial Veterans Hospital, Madison, WI, USA
267 rdf:type schema:Organization
268 grid-institutes:grid.19006.3e schema:alternateName Department of Health Policy & Management, UCLA Fielding School of Public Health, Los Angeles, CA, USA
269 Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA
270 Department of Surgery, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA
271 schema:name Department of Health Policy & Management, UCLA Fielding School of Public Health, Los Angeles, CA, USA
272 Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA
273 Department of Surgery, David Geffen School of Medicine at UCLA, Los Angeles, CA, USA
274 VA Greater Los Angeles Healthcare System, Los Angeles, CA, USA
275 VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA
276 rdf:type schema:Organization
277 grid-institutes:grid.223827.e schema:alternateName Department of Medicine, Division of Epidemiology, University of Utah, Salt Lake City, UT, USA
278 schema:name Department of Medicine, Division of Epidemiology, University of Utah, Salt Lake City, UT, USA
279 VA Salt Lake City Healthcare System, Salt Lake City, UT, USA
280 rdf:type schema:Organization
281 grid-institutes:grid.26009.3d schema:alternateName Duke University School of Medicine, Durham, NC, USA
282 schema:name Duke University School of Medicine, Durham, NC, USA
283 VA Cooperative Studies Program Epidemiology Center, Durham, NC, USA
284 rdf:type schema:Organization
285 grid-institutes:grid.280807.5 schema:alternateName VA Salt Lake City Healthcare System, Salt Lake City, UT, USA
286 schema:name VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA
287 VA Salt Lake City Healthcare System, Salt Lake City, UT, USA
288 rdf:type schema:Organization
289 grid-institutes:grid.410370.1 schema:alternateName VA Boston Healthcare System, Boston, MA, USA
290 schema:name VA Boston Healthcare System, Boston, MA, USA
291 rdf:type schema:Organization
292 grid-institutes:grid.417119.b schema:alternateName VA Greater Los Angeles Healthcare System, Los Angeles, CA, USA
293 schema:name VA Greater Los Angeles Healthcare System, Los Angeles, CA, USA
294 rdf:type schema:Organization
295 grid-institutes:grid.428235.a schema:alternateName VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA
296 schema:name Department of Pediatrics, Division of Medical Genetics, University of California–San Francisco, San Francisco, CA, USA
297 San Francisco VA Healthcare System, San Francisco, CA, USA
298 VA HSR&D Center for the Study of Healthcare Innovation Implementation and Policy, Los Angeles, CA, USA
299 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...