Motivations for data sharing—views of research participants from four European countries: A DIRECT study View Full Text


Ontology type: schema:ScholarlyArticle     


Article Info

DATE

2019-05

AUTHORS

Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten, Jane Kaye

ABSTRACT

The purpose of this study was to explore and compare different countries in what motivated research participants' decisions whether to share their de-identified data. We investigated European DIRECT (Diabetes Research on Patient Stratification) research project participants' desire for control over sharing different types of their de-identified data, and with who data could be shared in the future after the project ends. A cross-sectional survey was disseminated among DIRECT project participants. The results found that there was a significant association between country and attitudes towards advancing research, protecting privacy, and beliefs about risks and benefits to sharing data. When given the choice to have control, some participants (<50% overall) indicated that having control over what data is shared and with whom was important; and control over what data types are shared was less important than respondents deciding who data are shared with. Danish respondents indicated higher odds of desire to control data types shared, and Dutch respondents showed higher odds of desire to control who data will be shared with. Overall, what research participants expect in terms of control over data sharing needs to be considered and aligned with sharing for future research and re-use of data. Our findings show that even with de-identified data, respondents prioritise privacy above all else. This study argues to move research participants from passive participation in biomedical research to considering their opinions about data sharing and control of de-identified biomedical data. More... »

PAGES

1-9

References to SciGraph publications

  • 2013-01. Publics and biobanks: Pan-European diversity and the challenge of responsible innovation in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2014-06. Discovery of biomarkers for glycaemic deterioration before and after the onset of type 2 diabetes: rationale and design of the epidemiological studies within the IMI DIRECT Consortium in DIABETOLOGIA
  • 2017-12. Dynamic Consent: a potential solution to some of the challenges of modern biomedical research in BMC MEDICAL ETHICS
  • 2015-02. Dynamic consent: a patient interface for twenty-first century research networks in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2015-12. Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis in BMC MEDICAL ETHICS
  • 2008-11. Subjects matter: a survey of public opinions about a large genetic cohort study in GENETICS IN MEDICINE
  • 2011-11. To share or not to share: A randomized trial of consent for data sharing in genome research in GENETICS IN MEDICINE
  • 2018-09-28. Sharing data for future research—engaging participants’ views about data governance beyond the original project: a DIRECT Study in GENETICS IN MEDICINE
  • 2010-08. Genomic research and wide data sharing: Views of prospective participants in GENETICS IN MEDICINE
  • 2013-10. Biobanking for research: a survey of patient population attitudes and understanding in JOURNAL OF COMMUNITY GENETICS
  • 2016-12. A survey of patient perspectives on the research use of health information and biospecimens in BMC MEDICAL ETHICS
  • Identifiers

    URI

    http://scigraph.springernature.com/pub.10.1038/s41431-019-0344-2

    DOI

    http://dx.doi.org/10.1038/s41431-019-0344-2

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1111773797

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/30700834


    Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
    Incoming Citations Browse incoming citations for this publication using opencitations.net

    JSON-LD is the canonical representation for SciGraph data.

    TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

    [
      {
        "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
        "about": [
          {
            "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
            "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
            "name": "Public Health and Health Services", 
            "type": "DefinedTerm"
          }, 
          {
            "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
            "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
            "name": "Medical and Health Sciences", 
            "type": "DefinedTerm"
          }
        ], 
        "author": [
          {
            "affiliation": {
              "alternateName": "University of Oxford", 
              "id": "https://www.grid.ac/institutes/grid.4991.5", 
              "name": [
                "HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Shah", 
            "givenName": "Nisha", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Oxford", 
              "id": "https://www.grid.ac/institutes/grid.4991.5", 
              "name": [
                "HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Coathup", 
            "givenName": "Victoria", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Oxford", 
              "id": "https://www.grid.ac/institutes/grid.4991.5", 
              "name": [
                "HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Teare", 
            "givenName": "Harriet", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Dundee", 
              "id": "https://www.grid.ac/institutes/grid.8241.f", 
              "name": [
                "Division of Molecular and Clinical Medicine, University of Dundee, Dundee, UK"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Forgie", 
            "givenName": "Ian", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "Lund University", 
              "id": "https://www.grid.ac/institutes/grid.4514.4", 
              "name": [
                "Department of Clinical Sciences, Genetic and Molecular Epidemiology Unit, Lund University, Lund, Sweden"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Giordano", 
            "givenName": "Giuseppe Nicola", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Copenhagen", 
              "id": "https://www.grid.ac/institutes/grid.5254.6", 
              "name": [
                "The Novo Nordisk Foundation Center for Basic Metabolic Research, Section of Metabolic Genetics, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Hansen", 
            "givenName": "Tue Haldor", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "VU University Medical Center", 
              "id": "https://www.grid.ac/institutes/grid.16872.3a", 
              "name": [
                "Department of Epidemiology and Biostatistics, VU Medical centre, Amsterdam, The Netherlands"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Groeneveld", 
            "givenName": "Lenka", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Exeter", 
              "id": "https://www.grid.ac/institutes/grid.8391.3", 
              "name": [
                "NIHR Exeter Clinical Research Facility, University of Exeter Medical School, Exeter, UK"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Hudson", 
            "givenName": "Michelle", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Dundee", 
              "id": "https://www.grid.ac/institutes/grid.8241.f", 
              "name": [
                "Division of Population Health & Genomics, School of Medicine, University of Dundee, Dundee, UK"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Pearson", 
            "givenName": "Ewan", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "Sanofi (Germany)", 
              "id": "https://www.grid.ac/institutes/grid.420214.1", 
              "name": [
                "Translational Medicine & Early Development, Sanofi-Aventis Deutschland GmbH, Frankfurt, Germany"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Ruetten", 
            "givenName": "Hartmut", 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "University of Melbourne", 
              "id": "https://www.grid.ac/institutes/grid.1008.9", 
              "name": [
                "HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK", 
                "Melbourne Law School, University of Melbourne, Melbourne, Australia"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Kaye", 
            "givenName": "Jane", 
            "type": "Person"
          }
        ], 
        "citation": [
          {
            "id": "https://doi.org/10.1159/000336541", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1000340679"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1097/gim.0b013e3182227589", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1001951678", 
              "https://doi.org/10.1097/gim.0b013e3182227589"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1097/gim.0b013e3182227589", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1001951678", 
              "https://doi.org/10.1097/gim.0b013e3182227589"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1097/gim.0b013e31818bb3ab", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1010948009", 
              "https://doi.org/10.1097/gim.0b013e31818bb3ab"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1097/gim.0b013e31818bb3ab", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1010948009", 
              "https://doi.org/10.1097/gim.0b013e31818bb3ab"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s00125-014-3216-x", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1012557304", 
              "https://doi.org/10.1007/s00125-014-3216-x"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s00125-014-3216-x", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1012557304", 
              "https://doi.org/10.1007/s00125-014-3216-x"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1371/journal.pmed.1001937", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1013141607"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1038/ejhg.2014.71", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1016468032", 
              "https://doi.org/10.1038/ejhg.2014.71"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1093/jamia/ocv014", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1018164343"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1016/j.ajhg.2009.10.002", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1022341266"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12910-015-0053-5", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1022995454", 
              "https://doi.org/10.1186/s12910-015-0053-5"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s12687-013-0146-0", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1025906573", 
              "https://doi.org/10.1007/s12687-013-0146-0"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1159/000324705", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1031222044"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1097/gim.0b013e3181e38f9e", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1034625577", 
              "https://doi.org/10.1097/gim.0b013e3181e38f9e"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1097/gim.0b013e3181e38f9e", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1034625577", 
              "https://doi.org/10.1097/gim.0b013e3181e38f9e"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1159/000276767", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1038559077"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1038/ejhg.2012.104", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1040069458", 
              "https://doi.org/10.1038/ejhg.2012.104"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1136/bmjopen-2013-003056", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1041027910"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12910-016-0130-4", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1041789421", 
              "https://doi.org/10.1186/s12910-016-0130-4"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12910-016-0130-4", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1041789421", 
              "https://doi.org/10.1186/s12910-016-0130-4"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1016/j.ijmedinf.2015.01.008", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1041925119"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1159/000334718", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1043992201"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1586/14737159.2014.961917", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1051319529"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1089/bio.2014.0032", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1059235464"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1126/science.1199000", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1062463012"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12910-016-0162-9", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1074198870", 
              "https://doi.org/10.1186/s12910-016-0162-9"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12910-016-0162-9", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1074198870", 
              "https://doi.org/10.1186/s12910-016-0162-9"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://app.dimensions.ai/details/publication/pub.1079084414", 
            "type": "CreativeWork"
          }, 
          {
            "id": "https://doi.org/10.1016/j.ajhg.2017.01.021", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1083743345"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1038/s41436-018-0299-7", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1107255835", 
              "https://doi.org/10.1038/s41436-018-0299-7"
            ], 
            "type": "CreativeWork"
          }
        ], 
        "datePublished": "2019-05", 
        "datePublishedReg": "2019-05-01", 
        "description": "The purpose of this study was to explore and compare different countries in what motivated research participants' decisions whether to share their de-identified data. We investigated European DIRECT (Diabetes Research on Patient Stratification) research project participants' desire for control over sharing different types of their de-identified data, and with who data could be shared in the future after the project ends. A cross-sectional survey was disseminated among DIRECT project participants. The results found that there was a significant association between country and attitudes towards advancing research, protecting privacy, and beliefs about risks and benefits to sharing data. When given the choice to have control, some participants (<50% overall) indicated that having control over what data is shared and with whom was important; and control over what data types are shared was less important than respondents deciding who data are shared with. Danish respondents indicated higher odds of desire to control data types shared, and Dutch respondents showed higher odds of desire to control who data will be shared with. Overall, what research participants expect in terms of control over data sharing needs to be considered and aligned with sharing for future research and re-use of data. Our findings show that even with de-identified data, respondents prioritise privacy above all else. This study argues to move research participants from passive participation in biomedical research to considering their opinions about data sharing and control of de-identified biomedical data.", 
        "genre": "research_article", 
        "id": "sg:pub.10.1038/s41431-019-0344-2", 
        "inLanguage": [
          "en"
        ], 
        "isAccessibleForFree": false, 
        "isFundedItemOf": [
          {
            "id": "sg:grant.5495318", 
            "type": "MonetaryGrant"
          }
        ], 
        "isPartOf": [
          {
            "id": "sg:journal.1103410", 
            "issn": [
              "1018-4813", 
              "1476-5438"
            ], 
            "name": "European Journal of Human Genetics", 
            "type": "Periodical"
          }, 
          {
            "issueNumber": "5", 
            "type": "PublicationIssue"
          }, 
          {
            "type": "PublicationVolume", 
            "volumeNumber": "27"
          }
        ], 
        "name": "Motivations for data sharing\u2014views of research participants from four European countries: A DIRECT study", 
        "pagination": "1-9", 
        "productId": [
          {
            "name": "doi", 
            "type": "PropertyValue", 
            "value": [
              "10.1038/s41431-019-0344-2"
            ]
          }, 
          {
            "name": "readcube_id", 
            "type": "PropertyValue", 
            "value": [
              "61c72c5bcb869e72a363c6d6a38b91b07ae675089018fd6c28bd9c37001268dd"
            ]
          }, 
          {
            "name": "dimensions_id", 
            "type": "PropertyValue", 
            "value": [
              "pub.1111773797"
            ]
          }, 
          {
            "name": "nlm_unique_id", 
            "type": "PropertyValue", 
            "value": [
              "9302235"
            ]
          }, 
          {
            "name": "pubmed_id", 
            "type": "PropertyValue", 
            "value": [
              "30700834"
            ]
          }
        ], 
        "sameAs": [
          "https://doi.org/10.1038/s41431-019-0344-2", 
          "https://app.dimensions.ai/details/publication/pub.1111773797"
        ], 
        "sdDataset": "articles", 
        "sdDatePublished": "2019-04-15T09:11", 
        "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
        "sdPublisher": {
          "name": "Springer Nature - SN SciGraph project", 
          "type": "Organization"
        }, 
        "sdSource": "s3://com-uberresearch-data-dimensions-target-20181106-alternative/cleanup/v134/2549eaecd7973599484d7c17b260dba0a4ecb94b/merge/v9/a6c9fde33151104705d4d7ff012ea9563521a3ce/jats-lookup/v90/0000000376_0000000376/records_56158_00000006.jsonl", 
        "type": "ScholarlyArticle", 
        "url": "https://www.nature.com/articles/s41431-019-0344-2"
      }
    ]
     

    Download the RDF metadata as:  json-ld nt turtle xml License info

    HOW TO GET THIS DATA PROGRAMMATICALLY:

    JSON-LD is a popular format for linked data which is fully compatible with JSON.

    curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1038/s41431-019-0344-2'

    N-Triples is a line-based linked data format ideal for batch operations.

    curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1038/s41431-019-0344-2'

    Turtle is a human-readable linked data format.

    curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1038/s41431-019-0344-2'

    RDF/XML is a standard XML format for linked data.

    curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1038/s41431-019-0344-2'


     

    This table displays all metadata directly associated to this object as RDF triples.

    238 TRIPLES      21 PREDICATES      54 URIs      21 LITERALS      9 BLANK NODES

    Subject Predicate Object
    1 sg:pub.10.1038/s41431-019-0344-2 schema:about anzsrc-for:11
    2 anzsrc-for:1117
    3 schema:author N5631b8aba4184f78824a616a735be99c
    4 schema:citation sg:pub.10.1007/s00125-014-3216-x
    5 sg:pub.10.1007/s12687-013-0146-0
    6 sg:pub.10.1038/ejhg.2012.104
    7 sg:pub.10.1038/ejhg.2014.71
    8 sg:pub.10.1038/s41436-018-0299-7
    9 sg:pub.10.1097/gim.0b013e31818bb3ab
    10 sg:pub.10.1097/gim.0b013e3181e38f9e
    11 sg:pub.10.1097/gim.0b013e3182227589
    12 sg:pub.10.1186/s12910-015-0053-5
    13 sg:pub.10.1186/s12910-016-0130-4
    14 sg:pub.10.1186/s12910-016-0162-9
    15 https://app.dimensions.ai/details/publication/pub.1079084414
    16 https://doi.org/10.1016/j.ajhg.2009.10.002
    17 https://doi.org/10.1016/j.ajhg.2017.01.021
    18 https://doi.org/10.1016/j.ijmedinf.2015.01.008
    19 https://doi.org/10.1089/bio.2014.0032
    20 https://doi.org/10.1093/jamia/ocv014
    21 https://doi.org/10.1126/science.1199000
    22 https://doi.org/10.1136/bmjopen-2013-003056
    23 https://doi.org/10.1159/000276767
    24 https://doi.org/10.1159/000324705
    25 https://doi.org/10.1159/000334718
    26 https://doi.org/10.1159/000336541
    27 https://doi.org/10.1371/journal.pmed.1001937
    28 https://doi.org/10.1586/14737159.2014.961917
    29 schema:datePublished 2019-05
    30 schema:datePublishedReg 2019-05-01
    31 schema:description The purpose of this study was to explore and compare different countries in what motivated research participants' decisions whether to share their de-identified data. We investigated European DIRECT (Diabetes Research on Patient Stratification) research project participants' desire for control over sharing different types of their de-identified data, and with who data could be shared in the future after the project ends. A cross-sectional survey was disseminated among DIRECT project participants. The results found that there was a significant association between country and attitudes towards advancing research, protecting privacy, and beliefs about risks and benefits to sharing data. When given the choice to have control, some participants (<50% overall) indicated that having control over what data is shared and with whom was important; and control over what data types are shared was less important than respondents deciding who data are shared with. Danish respondents indicated higher odds of desire to control data types shared, and Dutch respondents showed higher odds of desire to control who data will be shared with. Overall, what research participants expect in terms of control over data sharing needs to be considered and aligned with sharing for future research and re-use of data. Our findings show that even with de-identified data, respondents prioritise privacy above all else. This study argues to move research participants from passive participation in biomedical research to considering their opinions about data sharing and control of de-identified biomedical data.
    32 schema:genre research_article
    33 schema:inLanguage en
    34 schema:isAccessibleForFree false
    35 schema:isPartOf N3cd631ef946643afadb0f8fe35223bae
    36 N4904ce8f63c740afaac9aac27a974f43
    37 sg:journal.1103410
    38 schema:name Motivations for data sharing—views of research participants from four European countries: A DIRECT study
    39 schema:pagination 1-9
    40 schema:productId N2d314fb10fa347fcb230bf5bef8f69dd
    41 Na414775385e048d1aa4c4e7c2e3df792
    42 Nbe9fa30b1cd5409aab1c40bdbbdfdbc1
    43 Ndaadbf6cd730478cbf5e0ae83120be62
    44 Ne6bb2124e4734b849b8d44b0dccfd5e7
    45 schema:sameAs https://app.dimensions.ai/details/publication/pub.1111773797
    46 https://doi.org/10.1038/s41431-019-0344-2
    47 schema:sdDatePublished 2019-04-15T09:11
    48 schema:sdLicense https://scigraph.springernature.com/explorer/license/
    49 schema:sdPublisher N5bbf655a20254372874b1dcc5fdbf397
    50 schema:url https://www.nature.com/articles/s41431-019-0344-2
    51 sgo:license sg:explorer/license/
    52 sgo:sdDataset articles
    53 rdf:type schema:ScholarlyArticle
    54 N01f2c49fe8154481898cfbdf43851f8a rdf:first Nd17cde5c8c8c4e1893fc50b0cc6e9e05
    55 rdf:rest N54c0ed3d782044d5a1f1494b91498ea3
    56 N0498c4a8b1e547298fb47811d0e709a2 rdf:first N5abd1cec78de4eee9d3d3d84a5976261
    57 rdf:rest N1d387e3780ea4ee2ba8b4c2dddaeff62
    58 N07f55d2f911243f5948cebf9d7e5e099 rdf:first Naf3f46f9b622484aa6c4e14cfb6021dc
    59 rdf:rest N9f1a3de6753e4383823b33d2ecfc754a
    60 N1be494eb0f644b5fad36247152ffe0d9 rdf:first N8693cf8dea6e4dcd9d8a1bb4b27cbf33
    61 rdf:rest N4eedf7c35f584ad88840c0ef4a36a74e
    62 N1d387e3780ea4ee2ba8b4c2dddaeff62 rdf:first Na7bf74dd215d4f11bc26966060a889b0
    63 rdf:rest Nf3bd595519f847e4aa39d15febdbf6fe
    64 N2d314fb10fa347fcb230bf5bef8f69dd schema:name doi
    65 schema:value 10.1038/s41431-019-0344-2
    66 rdf:type schema:PropertyValue
    67 N2d9ad22f88b84fff9277313a40c3e5fe schema:affiliation https://www.grid.ac/institutes/grid.8241.f
    68 schema:familyName Pearson
    69 schema:givenName Ewan
    70 rdf:type schema:Person
    71 N3cd631ef946643afadb0f8fe35223bae schema:volumeNumber 27
    72 rdf:type schema:PublicationVolume
    73 N3ec694869caf47019dd1e79aa11937bf schema:affiliation https://www.grid.ac/institutes/grid.4991.5
    74 schema:familyName Teare
    75 schema:givenName Harriet
    76 rdf:type schema:Person
    77 N4904ce8f63c740afaac9aac27a974f43 schema:issueNumber 5
    78 rdf:type schema:PublicationIssue
    79 N4eedf7c35f584ad88840c0ef4a36a74e rdf:first N6235719868a64bffbac195b2874fd0ad
    80 rdf:rest rdf:nil
    81 N54c0ed3d782044d5a1f1494b91498ea3 rdf:first N3ec694869caf47019dd1e79aa11937bf
    82 rdf:rest N07f55d2f911243f5948cebf9d7e5e099
    83 N5631b8aba4184f78824a616a735be99c rdf:first N8122d06663c040848a1aa8258163f60a
    84 rdf:rest N01f2c49fe8154481898cfbdf43851f8a
    85 N5abd1cec78de4eee9d3d3d84a5976261 schema:affiliation https://www.grid.ac/institutes/grid.16872.3a
    86 schema:familyName Groeneveld
    87 schema:givenName Lenka
    88 rdf:type schema:Person
    89 N5bbf655a20254372874b1dcc5fdbf397 schema:name Springer Nature - SN SciGraph project
    90 rdf:type schema:Organization
    91 N6235719868a64bffbac195b2874fd0ad schema:affiliation https://www.grid.ac/institutes/grid.1008.9
    92 schema:familyName Kaye
    93 schema:givenName Jane
    94 rdf:type schema:Person
    95 N8122d06663c040848a1aa8258163f60a schema:affiliation https://www.grid.ac/institutes/grid.4991.5
    96 schema:familyName Shah
    97 schema:givenName Nisha
    98 rdf:type schema:Person
    99 N8693cf8dea6e4dcd9d8a1bb4b27cbf33 schema:affiliation https://www.grid.ac/institutes/grid.420214.1
    100 schema:familyName Ruetten
    101 schema:givenName Hartmut
    102 rdf:type schema:Person
    103 N92ff047c946e44459c2af9cad567620d schema:affiliation https://www.grid.ac/institutes/grid.5254.6
    104 schema:familyName Hansen
    105 schema:givenName Tue Haldor
    106 rdf:type schema:Person
    107 N9f1a3de6753e4383823b33d2ecfc754a rdf:first Ne426191d7d1a430fb2dbae96e4c56b25
    108 rdf:rest Ne294ae6feaf04b2280517843c777582b
    109 Na414775385e048d1aa4c4e7c2e3df792 schema:name readcube_id
    110 schema:value 61c72c5bcb869e72a363c6d6a38b91b07ae675089018fd6c28bd9c37001268dd
    111 rdf:type schema:PropertyValue
    112 Na7bf74dd215d4f11bc26966060a889b0 schema:affiliation https://www.grid.ac/institutes/grid.8391.3
    113 schema:familyName Hudson
    114 schema:givenName Michelle
    115 rdf:type schema:Person
    116 Naf3f46f9b622484aa6c4e14cfb6021dc schema:affiliation https://www.grid.ac/institutes/grid.8241.f
    117 schema:familyName Forgie
    118 schema:givenName Ian
    119 rdf:type schema:Person
    120 Nbe9fa30b1cd5409aab1c40bdbbdfdbc1 schema:name nlm_unique_id
    121 schema:value 9302235
    122 rdf:type schema:PropertyValue
    123 Nd17cde5c8c8c4e1893fc50b0cc6e9e05 schema:affiliation https://www.grid.ac/institutes/grid.4991.5
    124 schema:familyName Coathup
    125 schema:givenName Victoria
    126 rdf:type schema:Person
    127 Ndaadbf6cd730478cbf5e0ae83120be62 schema:name dimensions_id
    128 schema:value pub.1111773797
    129 rdf:type schema:PropertyValue
    130 Ne294ae6feaf04b2280517843c777582b rdf:first N92ff047c946e44459c2af9cad567620d
    131 rdf:rest N0498c4a8b1e547298fb47811d0e709a2
    132 Ne426191d7d1a430fb2dbae96e4c56b25 schema:affiliation https://www.grid.ac/institutes/grid.4514.4
    133 schema:familyName Giordano
    134 schema:givenName Giuseppe Nicola
    135 rdf:type schema:Person
    136 Ne6bb2124e4734b849b8d44b0dccfd5e7 schema:name pubmed_id
    137 schema:value 30700834
    138 rdf:type schema:PropertyValue
    139 Nf3bd595519f847e4aa39d15febdbf6fe rdf:first N2d9ad22f88b84fff9277313a40c3e5fe
    140 rdf:rest N1be494eb0f644b5fad36247152ffe0d9
    141 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
    142 schema:name Medical and Health Sciences
    143 rdf:type schema:DefinedTerm
    144 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
    145 schema:name Public Health and Health Services
    146 rdf:type schema:DefinedTerm
    147 sg:grant.5495318 http://pending.schema.org/fundedItem sg:pub.10.1038/s41431-019-0344-2
    148 rdf:type schema:MonetaryGrant
    149 sg:journal.1103410 schema:issn 1018-4813
    150 1476-5438
    151 schema:name European Journal of Human Genetics
    152 rdf:type schema:Periodical
    153 sg:pub.10.1007/s00125-014-3216-x schema:sameAs https://app.dimensions.ai/details/publication/pub.1012557304
    154 https://doi.org/10.1007/s00125-014-3216-x
    155 rdf:type schema:CreativeWork
    156 sg:pub.10.1007/s12687-013-0146-0 schema:sameAs https://app.dimensions.ai/details/publication/pub.1025906573
    157 https://doi.org/10.1007/s12687-013-0146-0
    158 rdf:type schema:CreativeWork
    159 sg:pub.10.1038/ejhg.2012.104 schema:sameAs https://app.dimensions.ai/details/publication/pub.1040069458
    160 https://doi.org/10.1038/ejhg.2012.104
    161 rdf:type schema:CreativeWork
    162 sg:pub.10.1038/ejhg.2014.71 schema:sameAs https://app.dimensions.ai/details/publication/pub.1016468032
    163 https://doi.org/10.1038/ejhg.2014.71
    164 rdf:type schema:CreativeWork
    165 sg:pub.10.1038/s41436-018-0299-7 schema:sameAs https://app.dimensions.ai/details/publication/pub.1107255835
    166 https://doi.org/10.1038/s41436-018-0299-7
    167 rdf:type schema:CreativeWork
    168 sg:pub.10.1097/gim.0b013e31818bb3ab schema:sameAs https://app.dimensions.ai/details/publication/pub.1010948009
    169 https://doi.org/10.1097/gim.0b013e31818bb3ab
    170 rdf:type schema:CreativeWork
    171 sg:pub.10.1097/gim.0b013e3181e38f9e schema:sameAs https://app.dimensions.ai/details/publication/pub.1034625577
    172 https://doi.org/10.1097/gim.0b013e3181e38f9e
    173 rdf:type schema:CreativeWork
    174 sg:pub.10.1097/gim.0b013e3182227589 schema:sameAs https://app.dimensions.ai/details/publication/pub.1001951678
    175 https://doi.org/10.1097/gim.0b013e3182227589
    176 rdf:type schema:CreativeWork
    177 sg:pub.10.1186/s12910-015-0053-5 schema:sameAs https://app.dimensions.ai/details/publication/pub.1022995454
    178 https://doi.org/10.1186/s12910-015-0053-5
    179 rdf:type schema:CreativeWork
    180 sg:pub.10.1186/s12910-016-0130-4 schema:sameAs https://app.dimensions.ai/details/publication/pub.1041789421
    181 https://doi.org/10.1186/s12910-016-0130-4
    182 rdf:type schema:CreativeWork
    183 sg:pub.10.1186/s12910-016-0162-9 schema:sameAs https://app.dimensions.ai/details/publication/pub.1074198870
    184 https://doi.org/10.1186/s12910-016-0162-9
    185 rdf:type schema:CreativeWork
    186 https://app.dimensions.ai/details/publication/pub.1079084414 schema:CreativeWork
    187 https://doi.org/10.1016/j.ajhg.2009.10.002 schema:sameAs https://app.dimensions.ai/details/publication/pub.1022341266
    188 rdf:type schema:CreativeWork
    189 https://doi.org/10.1016/j.ajhg.2017.01.021 schema:sameAs https://app.dimensions.ai/details/publication/pub.1083743345
    190 rdf:type schema:CreativeWork
    191 https://doi.org/10.1016/j.ijmedinf.2015.01.008 schema:sameAs https://app.dimensions.ai/details/publication/pub.1041925119
    192 rdf:type schema:CreativeWork
    193 https://doi.org/10.1089/bio.2014.0032 schema:sameAs https://app.dimensions.ai/details/publication/pub.1059235464
    194 rdf:type schema:CreativeWork
    195 https://doi.org/10.1093/jamia/ocv014 schema:sameAs https://app.dimensions.ai/details/publication/pub.1018164343
    196 rdf:type schema:CreativeWork
    197 https://doi.org/10.1126/science.1199000 schema:sameAs https://app.dimensions.ai/details/publication/pub.1062463012
    198 rdf:type schema:CreativeWork
    199 https://doi.org/10.1136/bmjopen-2013-003056 schema:sameAs https://app.dimensions.ai/details/publication/pub.1041027910
    200 rdf:type schema:CreativeWork
    201 https://doi.org/10.1159/000276767 schema:sameAs https://app.dimensions.ai/details/publication/pub.1038559077
    202 rdf:type schema:CreativeWork
    203 https://doi.org/10.1159/000324705 schema:sameAs https://app.dimensions.ai/details/publication/pub.1031222044
    204 rdf:type schema:CreativeWork
    205 https://doi.org/10.1159/000334718 schema:sameAs https://app.dimensions.ai/details/publication/pub.1043992201
    206 rdf:type schema:CreativeWork
    207 https://doi.org/10.1159/000336541 schema:sameAs https://app.dimensions.ai/details/publication/pub.1000340679
    208 rdf:type schema:CreativeWork
    209 https://doi.org/10.1371/journal.pmed.1001937 schema:sameAs https://app.dimensions.ai/details/publication/pub.1013141607
    210 rdf:type schema:CreativeWork
    211 https://doi.org/10.1586/14737159.2014.961917 schema:sameAs https://app.dimensions.ai/details/publication/pub.1051319529
    212 rdf:type schema:CreativeWork
    213 https://www.grid.ac/institutes/grid.1008.9 schema:alternateName University of Melbourne
    214 schema:name HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK
    215 Melbourne Law School, University of Melbourne, Melbourne, Australia
    216 rdf:type schema:Organization
    217 https://www.grid.ac/institutes/grid.16872.3a schema:alternateName VU University Medical Center
    218 schema:name Department of Epidemiology and Biostatistics, VU Medical centre, Amsterdam, The Netherlands
    219 rdf:type schema:Organization
    220 https://www.grid.ac/institutes/grid.420214.1 schema:alternateName Sanofi (Germany)
    221 schema:name Translational Medicine & Early Development, Sanofi-Aventis Deutschland GmbH, Frankfurt, Germany
    222 rdf:type schema:Organization
    223 https://www.grid.ac/institutes/grid.4514.4 schema:alternateName Lund University
    224 schema:name Department of Clinical Sciences, Genetic and Molecular Epidemiology Unit, Lund University, Lund, Sweden
    225 rdf:type schema:Organization
    226 https://www.grid.ac/institutes/grid.4991.5 schema:alternateName University of Oxford
    227 schema:name HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK
    228 rdf:type schema:Organization
    229 https://www.grid.ac/institutes/grid.5254.6 schema:alternateName University of Copenhagen
    230 schema:name The Novo Nordisk Foundation Center for Basic Metabolic Research, Section of Metabolic Genetics, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark
    231 rdf:type schema:Organization
    232 https://www.grid.ac/institutes/grid.8241.f schema:alternateName University of Dundee
    233 schema:name Division of Molecular and Clinical Medicine, University of Dundee, Dundee, UK
    234 Division of Population Health & Genomics, School of Medicine, University of Dundee, Dundee, UK
    235 rdf:type schema:Organization
    236 https://www.grid.ac/institutes/grid.8391.3 schema:alternateName University of Exeter
    237 schema:name NIHR Exeter Clinical Research Facility, University of Exeter Medical School, Exeter, UK
    238 rdf:type schema:Organization
     




    Preview window. Press ESC to close (or click here)


    ...