Transplant center practices for psychosocial assessment and management of pediatric hematopoietic stem cell donors. View Full Text


Ontology type: schema:ScholarlyArticle     


Article Info

DATE

2019-04-10

AUTHORS

Lori Wiener, Jennifer A Hoag, Wendy Pelletier, Nirali N Shah, Bronwen E Shaw, Michael A Pulsipher, Jessica Bruce, Peter Bader, Andre M Willasch, Arnaud Dalissier, Gregory Guilcher, Chloe Anthias, Dennis L Confer, Jennifer A Sees, Brent Logan, Galen E Switzer

ABSTRACT

Understanding the potential emotional and psychological risks of pediatric sibling HSC donation is an area of research that remains in its infancy. A cross-sectional survey was distributed electronically to directors at all CIBMTR and EBMT centers to describe current transplant center practices for obtaining assent, preparation for the physical/emotional experiences of donation, and monitoring the post-donation well-being of pediatric donors (<18 years of age). Respondents were 45/91 (49%) and 66/144 (46%) of CIBMTR and EBMT centers, respectively. Although 78% of centers reported having a mechanism in place to ensure donor free assent, centers also reported only limited assessment of psychosocial suitability to manage the emotional risks of donation. More than half of centers reported no psychosocial follow-up assessment post-donation. Few centers have policies in place to address donor psychological needs. Future investigations should include medical and psychosocial outcomes following full integration of comprehensive psychosocial screening and surveillance of pediatric donors. More... »

Identifiers

URI

http://scigraph.springernature.com/pub.10.1038/s41409-019-0515-3

DOI

http://dx.doi.org/10.1038/s41409-019-0515-3

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1113355991

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/30971776


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Public Health and Health Services", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "National Institutes of Health", 
          "id": "https://www.grid.ac/institutes/grid.94365.3d", 
          "name": [
            "Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health Bethesda, Bethesda, MD, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Wiener", 
        "givenName": "Lori", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Medical College of Wisconsin", 
          "id": "https://www.grid.ac/institutes/grid.30760.32", 
          "name": [
            "Medical College of Wisconsin, Department of Pediatrics, Division of Hematology, Oncology and Blood and Marrow Transplant, Milwaukee, WI, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Hoag", 
        "givenName": "Jennifer A", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Alberta Children's Hospital", 
          "id": "https://www.grid.ac/institutes/grid.413571.5", 
          "name": [
            "Pediatric Hematology/Oncology/Blood & Marrow Transplant Program, Alberta Children's Hospital, Calgary, AB, Canada."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Pelletier", 
        "givenName": "Wendy", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "National Institutes of Health", 
          "id": "https://www.grid.ac/institutes/grid.94365.3d", 
          "name": [
            "Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health Bethesda, Bethesda, MD, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Shah", 
        "givenName": "Nirali N", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Medical College of Wisconsin", 
          "id": "https://www.grid.ac/institutes/grid.30760.32", 
          "name": [
            "CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Shaw", 
        "givenName": "Bronwen E", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Children's Hospital of Los Angeles", 
          "id": "https://www.grid.ac/institutes/grid.239546.f", 
          "name": [
            "Division of Hematology, Oncology, and BMT, Children's Hospital Los Angeles, Los Angeles, CA, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Pulsipher", 
        "givenName": "Michael A", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Pittsburgh", 
          "id": "https://www.grid.ac/institutes/grid.21925.3d", 
          "name": [
            "Departments of Medicine, Psychiatry, Clinical and Translational Science, University of Pittsburgh, Pittsburgh, PA, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Bruce", 
        "givenName": "Jessica", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University Hospital Frankfurt", 
          "id": "https://www.grid.ac/institutes/grid.411088.4", 
          "name": [
            "Department for Children and Adolescents, Division for Stem Cell Transplantation and Immunology, University Hospital Frankfurt, Frankfurt am Main, Germany."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Bader", 
        "givenName": "Peter", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University Hospital Frankfurt", 
          "id": "https://www.grid.ac/institutes/grid.411088.4", 
          "name": [
            "Department for Children and Adolescents, Division for Stem Cell Transplantation and Immunology, University Hospital Frankfurt, Frankfurt am Main, Germany."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Willasch", 
        "givenName": "Andre M", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "H\u00f4pital Saint-Antoine", 
          "id": "https://www.grid.ac/institutes/grid.412370.3", 
          "name": [
            "EBMT Paris study office/CEREST-TC, Department of Haematology, Saint Antoine Hospital, INSERM UMR 938, Paris, France."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Dalissier", 
        "givenName": "Arnaud", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Calgary", 
          "id": "https://www.grid.ac/institutes/grid.22072.35", 
          "name": [
            "Pediatric Hematology/Oncology/Blood & Marrow Transplant Program, Alberta Children's Hospital, Calgary, AB, Canada.", 
            "Departments of Oncology and Paediatrics, University of Calgary, Calgary, AB, Canada."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Guilcher", 
        "givenName": "Gregory", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Royal Marsden NHS Foundation Trust", 
          "id": "https://www.grid.ac/institutes/grid.5072.0", 
          "name": [
            "Anthony Nolan Research Institute, Anthony Nolan Trust, London, UK.", 
            "Department of Haemato-Oncology, Royal Marsden NHS Foundation Trust, London, UK."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Anthias", 
        "givenName": "Chloe", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "name": [
            "National Marrow Donor Program/Be The Match\u00ae, Minneapolis, MN, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Confer", 
        "givenName": "Dennis L", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "name": [
            "CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Sees", 
        "givenName": "Jennifer A", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Medical College of Wisconsin", 
          "id": "https://www.grid.ac/institutes/grid.30760.32", 
          "name": [
            "CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI, USA."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Logan", 
        "givenName": "Brent", 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "VA Pittsburgh Healthcare System", 
          "id": "https://www.grid.ac/institutes/grid.413935.9", 
          "name": [
            "Departments of Medicine, Psychiatry, Clinical and Translational Science, University of Pittsburgh, Pittsburgh, PA, USA. gswitzer@pitt.edu.", 
            "Center for Health Equity Research and Promotion, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, PA, USA. gswitzer@pitt.edu."
          ], 
          "type": "Organization"
        }, 
        "familyName": "Switzer", 
        "givenName": "Galen E", 
        "type": "Person"
      }
    ], 
    "citation": [
      {
        "id": "https://doi.org/10.1002/pon.4044", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1002284167"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/pbc.25675", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006327181"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/pbc.25675", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006327181"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/pbc.25675", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006327181"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/pbc.25675", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006327181"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/pbc.25675", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006327181"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2012.102", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1006772946", 
          "https://doi.org/10.1038/bmt.2012.102"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1097/01.ncc.0000290811.06948.2c", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1007874550"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1097/01.ncc.0000290811.06948.2c", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1007874550"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1097/01.ncc.0000290811.06948.2c", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1007874550"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1111/j.1440-1754.2011.02165.x", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1012003271"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1634/theoncologist.2011-0446", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1013868088"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2014.224", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1017335627", 
          "https://doi.org/10.1038/bmt.2014.224"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1300/j010v27n01_06", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1017980758"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1300/j010v27n01_06", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1017980758"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.bbmt.2015.08.017", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1018051847"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2014-0375", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1019169236"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.pedn.2012.09.004", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1021959449"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1093/jpepsy/jsg010", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1024712454"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.pedn.2014.12.012", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1025226119"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1136/archdischild-2015-310001", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1028145298"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1177/1043454203262698", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1029273290"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1177/1043454203262698", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1029273290"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2010.74", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1032018963", 
          "https://doi.org/10.1038/bmt.2010.74"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2010.74", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1032018963", 
          "https://doi.org/10.1038/bmt.2010.74"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.ejca.2013.11.004", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1034811355"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1300/j077v05n02_07", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1040228412"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2013-3067", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1042701304"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.jpeds.2016.07.009", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1045000966"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.bbmt.2015.11.009", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1045500701"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.bbmt.2015.11.009", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1045500701"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.bbmt.2015.11.009", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1045500701"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2015.152", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1045842462", 
          "https://doi.org/10.1038/bmt.2015.152"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2009-3078", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1046776455"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1300/j077v15n03_04", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1047831728"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1002/pon.1222", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1051403427"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/sj.bmt.1704743", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1052240972", 
          "https://doi.org/10.1038/sj.bmt.1704743"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1542/peds.2016-1057", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1079400820"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2017.34", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1084127788", 
          "https://doi.org/10.1038/bmt.2017.34"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1016/j.bbmt.2017.05.035", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1085962259"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/leu.2017.199", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1086134525", 
          "https://doi.org/10.1038/leu.2017.199"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/bmt.2017.124", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1086169852", 
          "https://doi.org/10.1038/bmt.2017.124"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "https://doi.org/10.1080/07347332.2018.1489443", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1107900518"
        ], 
        "type": "CreativeWork"
      }
    ], 
    "datePublished": "2019-04-10", 
    "datePublishedReg": "2019-04-10", 
    "description": "Understanding the potential emotional and psychological risks of pediatric sibling HSC donation is an area of research that remains in its infancy. A cross-sectional survey was distributed electronically to directors at all CIBMTR and EBMT centers to describe current transplant center practices for obtaining assent, preparation for the physical/emotional experiences of donation, and monitoring the post-donation well-being of pediatric donors (<18 years of age). Respondents were 45/91 (49%) and 66/144 (46%) of CIBMTR and EBMT centers, respectively. Although 78% of centers reported having a mechanism in place to ensure donor free assent, centers also reported only limited assessment of psychosocial suitability to manage the emotional risks of donation. More than half of centers reported no psychosocial follow-up assessment post-donation. Few centers have policies in place to address donor psychological needs. Future investigations should include medical and psychosocial outcomes following full integration of comprehensive psychosocial screening and surveillance of pediatric donors.", 
    "genre": "research_article", 
    "id": "sg:pub.10.1038/s41409-019-0515-3", 
    "inLanguage": [
      "en"
    ], 
    "isAccessibleForFree": false, 
    "isPartOf": [
      {
        "id": "sg:journal.1096890", 
        "issn": [
          "0268-3369", 
          "1476-5365"
        ], 
        "name": "Bone Marrow Transplantation", 
        "type": "Periodical"
      }
    ], 
    "name": "Transplant center practices for psychosocial assessment and management of pediatric hematopoietic stem cell donors.", 
    "productId": [
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1038/s41409-019-0515-3"
        ]
      }, 
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1113355991"
        ]
      }, 
      {
        "name": "nlm_unique_id", 
        "type": "PropertyValue", 
        "value": [
          "8702459"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "30971776"
        ]
      }
    ], 
    "sameAs": [
      "https://doi.org/10.1038/s41409-019-0515-3", 
      "https://app.dimensions.ai/details/publication/pub.1113355991"
    ], 
    "sdDataset": "articles", 
    "sdDatePublished": "2019-04-15T09:14", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-uberresearch-data-dimensions-target-20181106-alternative/cleanup/v134/2549eaecd7973599484d7c17b260dba0a4ecb94b/merge/v9/a6c9fde33151104705d4d7ff012ea9563521a3ce/jats-lookup/v90/0000000376_0000000376/records_56164_00000006.jsonl", 
    "type": "ScholarlyArticle", 
    "url": "http://www.nature.com/articles/s41409-019-0515-3"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1038/s41409-019-0515-3'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1038/s41409-019-0515-3'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1038/s41409-019-0515-3'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1038/s41409-019-0515-3'


 

This table displays all metadata directly associated to this object as RDF triples.

286 TRIPLES      20 PREDICATES      56 URIs      16 LITERALS      6 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1038/s41409-019-0515-3 schema:about anzsrc-for:11
2 anzsrc-for:1117
3 schema:author N5d11292f2b614be09341848fdfc761ef
4 schema:citation sg:pub.10.1038/bmt.2010.74
5 sg:pub.10.1038/bmt.2012.102
6 sg:pub.10.1038/bmt.2014.224
7 sg:pub.10.1038/bmt.2015.152
8 sg:pub.10.1038/bmt.2017.124
9 sg:pub.10.1038/bmt.2017.34
10 sg:pub.10.1038/leu.2017.199
11 sg:pub.10.1038/sj.bmt.1704743
12 https://doi.org/10.1002/pbc.25675
13 https://doi.org/10.1002/pon.1222
14 https://doi.org/10.1002/pon.4044
15 https://doi.org/10.1016/j.bbmt.2015.08.017
16 https://doi.org/10.1016/j.bbmt.2015.11.009
17 https://doi.org/10.1016/j.bbmt.2017.05.035
18 https://doi.org/10.1016/j.ejca.2013.11.004
19 https://doi.org/10.1016/j.jpeds.2016.07.009
20 https://doi.org/10.1016/j.pedn.2012.09.004
21 https://doi.org/10.1016/j.pedn.2014.12.012
22 https://doi.org/10.1080/07347332.2018.1489443
23 https://doi.org/10.1093/jpepsy/jsg010
24 https://doi.org/10.1097/01.ncc.0000290811.06948.2c
25 https://doi.org/10.1111/j.1440-1754.2011.02165.x
26 https://doi.org/10.1136/archdischild-2015-310001
27 https://doi.org/10.1177/1043454203262698
28 https://doi.org/10.1300/j010v27n01_06
29 https://doi.org/10.1300/j077v05n02_07
30 https://doi.org/10.1300/j077v15n03_04
31 https://doi.org/10.1542/peds.2009-3078
32 https://doi.org/10.1542/peds.2013-3067
33 https://doi.org/10.1542/peds.2014-0375
34 https://doi.org/10.1542/peds.2016-1057
35 https://doi.org/10.1634/theoncologist.2011-0446
36 schema:datePublished 2019-04-10
37 schema:datePublishedReg 2019-04-10
38 schema:description Understanding the potential emotional and psychological risks of pediatric sibling HSC donation is an area of research that remains in its infancy. A cross-sectional survey was distributed electronically to directors at all CIBMTR and EBMT centers to describe current transplant center practices for obtaining assent, preparation for the physical/emotional experiences of donation, and monitoring the post-donation well-being of pediatric donors (<18 years of age). Respondents were 45/91 (49%) and 66/144 (46%) of CIBMTR and EBMT centers, respectively. Although 78% of centers reported having a mechanism in place to ensure donor free assent, centers also reported only limited assessment of psychosocial suitability to manage the emotional risks of donation. More than half of centers reported no psychosocial follow-up assessment post-donation. Few centers have policies in place to address donor psychological needs. Future investigations should include medical and psychosocial outcomes following full integration of comprehensive psychosocial screening and surveillance of pediatric donors.
39 schema:genre research_article
40 schema:inLanguage en
41 schema:isAccessibleForFree false
42 schema:isPartOf sg:journal.1096890
43 schema:name Transplant center practices for psychosocial assessment and management of pediatric hematopoietic stem cell donors.
44 schema:productId N78210fd20f81428eb3ea6f7317b2cff9
45 N87272037f83c4f4982b4fc73c23b7c79
46 N88245408c2fb42b387241101b26f4973
47 Nc52fbcbec9ee4f6684e5c074f2888587
48 schema:sameAs https://app.dimensions.ai/details/publication/pub.1113355991
49 https://doi.org/10.1038/s41409-019-0515-3
50 schema:sdDatePublished 2019-04-15T09:14
51 schema:sdLicense https://scigraph.springernature.com/explorer/license/
52 schema:sdPublisher N62b8446ae26144ec97b61aa92ec19db1
53 schema:url http://www.nature.com/articles/s41409-019-0515-3
54 sgo:license sg:explorer/license/
55 sgo:sdDataset articles
56 rdf:type schema:ScholarlyArticle
57 N096ec8bcb88944c9821ae8ebcffe133b rdf:first N5940397cc17e46baaa4777a3f11dc21a
58 rdf:rest N76539b38794648c4a98a83d0d0b1cc75
59 N12675ea547ec48f2b1214aee88689b2f schema:affiliation https://www.grid.ac/institutes/grid.412370.3
60 schema:familyName Dalissier
61 schema:givenName Arnaud
62 rdf:type schema:Person
63 N1671291fd91e4642a2c26fffef4ce1b2 schema:affiliation https://www.grid.ac/institutes/grid.94365.3d
64 schema:familyName Wiener
65 schema:givenName Lori
66 rdf:type schema:Person
67 N19bedb5b615e4cae9511e88e18e85f0c rdf:first N4807e70624ee4a2a88a7c85e21b5c140
68 rdf:rest N096ec8bcb88944c9821ae8ebcffe133b
69 N288091063bce4f9e933a99efc3ecc04a schema:affiliation https://www.grid.ac/institutes/grid.22072.35
70 schema:familyName Guilcher
71 schema:givenName Gregory
72 rdf:type schema:Person
73 N2916c05c9876437dbec736a6ac877ac0 rdf:first Nb7b38afbce6b40d18131e45966452410
74 rdf:rest N8020078035474dff8c54cc2a036199de
75 N44de1d83f5214598a0c4f52f740851ce schema:affiliation https://www.grid.ac/institutes/grid.30760.32
76 schema:familyName Logan
77 schema:givenName Brent
78 rdf:type schema:Person
79 N4807e70624ee4a2a88a7c85e21b5c140 schema:affiliation https://www.grid.ac/institutes/grid.30760.32
80 schema:familyName Shaw
81 schema:givenName Bronwen E
82 rdf:type schema:Person
83 N4a8038f1024a4b99a6868b5f62a9c464 rdf:first Nd9229354716f472fbf138b98f1a0e6a7
84 rdf:rest N994852a1f5b14a24ac287fc49b2ca6b5
85 N4e59542b9ad94f158c74d61ae7dc3a11 schema:affiliation N5c3b2f6515e54f22981f570f9aa0ef81
86 schema:familyName Confer
87 schema:givenName Dennis L
88 rdf:type schema:Person
89 N4eae1471da744d26a571f4771c51e22d rdf:first N80980fbfb50743d8a2aaec2073214394
90 rdf:rest N4a8038f1024a4b99a6868b5f62a9c464
91 N5940397cc17e46baaa4777a3f11dc21a schema:affiliation https://www.grid.ac/institutes/grid.239546.f
92 schema:familyName Pulsipher
93 schema:givenName Michael A
94 rdf:type schema:Person
95 N5c3b2f6515e54f22981f570f9aa0ef81 schema:name National Marrow Donor Program/Be The Match®, Minneapolis, MN, USA.
96 rdf:type schema:Organization
97 N5d11292f2b614be09341848fdfc761ef rdf:first N1671291fd91e4642a2c26fffef4ce1b2
98 rdf:rest N4eae1471da744d26a571f4771c51e22d
99 N60eae89bf8cd4df1b822eee8d164f0f5 rdf:first Necc097f1ad434465869d00a8e798c6d0
100 rdf:rest Nb1b28eb25d2f4e599481941e78d4f0e9
101 N62b8446ae26144ec97b61aa92ec19db1 schema:name Springer Nature - SN SciGraph project
102 rdf:type schema:Organization
103 N651287b29ed64fa38855a5a9987c2f46 schema:affiliation https://www.grid.ac/institutes/grid.21925.3d
104 schema:familyName Bruce
105 schema:givenName Jessica
106 rdf:type schema:Person
107 N717055aa741e426abe4600a2358b2d93 rdf:first N288091063bce4f9e933a99efc3ecc04a
108 rdf:rest N89a365ea89b647eea96b38e905497dd3
109 N76539b38794648c4a98a83d0d0b1cc75 rdf:first N651287b29ed64fa38855a5a9987c2f46
110 rdf:rest Nc1133aa001b743a9a99e1b4291f6fe05
111 N78210fd20f81428eb3ea6f7317b2cff9 schema:name nlm_unique_id
112 schema:value 8702459
113 rdf:type schema:PropertyValue
114 N8020078035474dff8c54cc2a036199de rdf:first N44de1d83f5214598a0c4f52f740851ce
115 rdf:rest Nb5c1ac94b80e4a38b12266eb7402c40f
116 N80980fbfb50743d8a2aaec2073214394 schema:affiliation https://www.grid.ac/institutes/grid.30760.32
117 schema:familyName Hoag
118 schema:givenName Jennifer A
119 rdf:type schema:Person
120 N87272037f83c4f4982b4fc73c23b7c79 schema:name dimensions_id
121 schema:value pub.1113355991
122 rdf:type schema:PropertyValue
123 N88245408c2fb42b387241101b26f4973 schema:name pubmed_id
124 schema:value 30971776
125 rdf:type schema:PropertyValue
126 N89a365ea89b647eea96b38e905497dd3 rdf:first N8b99b74e6e4e4e7199712b7a157d1377
127 rdf:rest Ncc4f59bd60584d9481413bea917ead3e
128 N8b99b74e6e4e4e7199712b7a157d1377 schema:affiliation https://www.grid.ac/institutes/grid.5072.0
129 schema:familyName Anthias
130 schema:givenName Chloe
131 rdf:type schema:Person
132 N919998ddafa3466385ff04dac03bf5f6 schema:affiliation https://www.grid.ac/institutes/grid.94365.3d
133 schema:familyName Shah
134 schema:givenName Nirali N
135 rdf:type schema:Person
136 N994852a1f5b14a24ac287fc49b2ca6b5 rdf:first N919998ddafa3466385ff04dac03bf5f6
137 rdf:rest N19bedb5b615e4cae9511e88e18e85f0c
138 N9bc7ab6f56374a7e81ee2f912d0f35f2 schema:affiliation https://www.grid.ac/institutes/grid.411088.4
139 schema:familyName Bader
140 schema:givenName Peter
141 rdf:type schema:Person
142 Nae212c293ed247dabbbb80e9e660be11 schema:name CIBMTR® (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN, USA.
143 rdf:type schema:Organization
144 Nb1b28eb25d2f4e599481941e78d4f0e9 rdf:first N12675ea547ec48f2b1214aee88689b2f
145 rdf:rest N717055aa741e426abe4600a2358b2d93
146 Nb5c1ac94b80e4a38b12266eb7402c40f rdf:first Ncfaf6bd3cd3642ef81007f72417cae82
147 rdf:rest rdf:nil
148 Nb7b38afbce6b40d18131e45966452410 schema:affiliation Nae212c293ed247dabbbb80e9e660be11
149 schema:familyName Sees
150 schema:givenName Jennifer A
151 rdf:type schema:Person
152 Nc1133aa001b743a9a99e1b4291f6fe05 rdf:first N9bc7ab6f56374a7e81ee2f912d0f35f2
153 rdf:rest N60eae89bf8cd4df1b822eee8d164f0f5
154 Nc52fbcbec9ee4f6684e5c074f2888587 schema:name doi
155 schema:value 10.1038/s41409-019-0515-3
156 rdf:type schema:PropertyValue
157 Ncc4f59bd60584d9481413bea917ead3e rdf:first N4e59542b9ad94f158c74d61ae7dc3a11
158 rdf:rest N2916c05c9876437dbec736a6ac877ac0
159 Ncfaf6bd3cd3642ef81007f72417cae82 schema:affiliation https://www.grid.ac/institutes/grid.413935.9
160 schema:familyName Switzer
161 schema:givenName Galen E
162 rdf:type schema:Person
163 Nd9229354716f472fbf138b98f1a0e6a7 schema:affiliation https://www.grid.ac/institutes/grid.413571.5
164 schema:familyName Pelletier
165 schema:givenName Wendy
166 rdf:type schema:Person
167 Necc097f1ad434465869d00a8e798c6d0 schema:affiliation https://www.grid.ac/institutes/grid.411088.4
168 schema:familyName Willasch
169 schema:givenName Andre M
170 rdf:type schema:Person
171 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
172 schema:name Medical and Health Sciences
173 rdf:type schema:DefinedTerm
174 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
175 schema:name Public Health and Health Services
176 rdf:type schema:DefinedTerm
177 sg:journal.1096890 schema:issn 0268-3369
178 1476-5365
179 schema:name Bone Marrow Transplantation
180 rdf:type schema:Periodical
181 sg:pub.10.1038/bmt.2010.74 schema:sameAs https://app.dimensions.ai/details/publication/pub.1032018963
182 https://doi.org/10.1038/bmt.2010.74
183 rdf:type schema:CreativeWork
184 sg:pub.10.1038/bmt.2012.102 schema:sameAs https://app.dimensions.ai/details/publication/pub.1006772946
185 https://doi.org/10.1038/bmt.2012.102
186 rdf:type schema:CreativeWork
187 sg:pub.10.1038/bmt.2014.224 schema:sameAs https://app.dimensions.ai/details/publication/pub.1017335627
188 https://doi.org/10.1038/bmt.2014.224
189 rdf:type schema:CreativeWork
190 sg:pub.10.1038/bmt.2015.152 schema:sameAs https://app.dimensions.ai/details/publication/pub.1045842462
191 https://doi.org/10.1038/bmt.2015.152
192 rdf:type schema:CreativeWork
193 sg:pub.10.1038/bmt.2017.124 schema:sameAs https://app.dimensions.ai/details/publication/pub.1086169852
194 https://doi.org/10.1038/bmt.2017.124
195 rdf:type schema:CreativeWork
196 sg:pub.10.1038/bmt.2017.34 schema:sameAs https://app.dimensions.ai/details/publication/pub.1084127788
197 https://doi.org/10.1038/bmt.2017.34
198 rdf:type schema:CreativeWork
199 sg:pub.10.1038/leu.2017.199 schema:sameAs https://app.dimensions.ai/details/publication/pub.1086134525
200 https://doi.org/10.1038/leu.2017.199
201 rdf:type schema:CreativeWork
202 sg:pub.10.1038/sj.bmt.1704743 schema:sameAs https://app.dimensions.ai/details/publication/pub.1052240972
203 https://doi.org/10.1038/sj.bmt.1704743
204 rdf:type schema:CreativeWork
205 https://doi.org/10.1002/pbc.25675 schema:sameAs https://app.dimensions.ai/details/publication/pub.1006327181
206 rdf:type schema:CreativeWork
207 https://doi.org/10.1002/pon.1222 schema:sameAs https://app.dimensions.ai/details/publication/pub.1051403427
208 rdf:type schema:CreativeWork
209 https://doi.org/10.1002/pon.4044 schema:sameAs https://app.dimensions.ai/details/publication/pub.1002284167
210 rdf:type schema:CreativeWork
211 https://doi.org/10.1016/j.bbmt.2015.08.017 schema:sameAs https://app.dimensions.ai/details/publication/pub.1018051847
212 rdf:type schema:CreativeWork
213 https://doi.org/10.1016/j.bbmt.2015.11.009 schema:sameAs https://app.dimensions.ai/details/publication/pub.1045500701
214 rdf:type schema:CreativeWork
215 https://doi.org/10.1016/j.bbmt.2017.05.035 schema:sameAs https://app.dimensions.ai/details/publication/pub.1085962259
216 rdf:type schema:CreativeWork
217 https://doi.org/10.1016/j.ejca.2013.11.004 schema:sameAs https://app.dimensions.ai/details/publication/pub.1034811355
218 rdf:type schema:CreativeWork
219 https://doi.org/10.1016/j.jpeds.2016.07.009 schema:sameAs https://app.dimensions.ai/details/publication/pub.1045000966
220 rdf:type schema:CreativeWork
221 https://doi.org/10.1016/j.pedn.2012.09.004 schema:sameAs https://app.dimensions.ai/details/publication/pub.1021959449
222 rdf:type schema:CreativeWork
223 https://doi.org/10.1016/j.pedn.2014.12.012 schema:sameAs https://app.dimensions.ai/details/publication/pub.1025226119
224 rdf:type schema:CreativeWork
225 https://doi.org/10.1080/07347332.2018.1489443 schema:sameAs https://app.dimensions.ai/details/publication/pub.1107900518
226 rdf:type schema:CreativeWork
227 https://doi.org/10.1093/jpepsy/jsg010 schema:sameAs https://app.dimensions.ai/details/publication/pub.1024712454
228 rdf:type schema:CreativeWork
229 https://doi.org/10.1097/01.ncc.0000290811.06948.2c schema:sameAs https://app.dimensions.ai/details/publication/pub.1007874550
230 rdf:type schema:CreativeWork
231 https://doi.org/10.1111/j.1440-1754.2011.02165.x schema:sameAs https://app.dimensions.ai/details/publication/pub.1012003271
232 rdf:type schema:CreativeWork
233 https://doi.org/10.1136/archdischild-2015-310001 schema:sameAs https://app.dimensions.ai/details/publication/pub.1028145298
234 rdf:type schema:CreativeWork
235 https://doi.org/10.1177/1043454203262698 schema:sameAs https://app.dimensions.ai/details/publication/pub.1029273290
236 rdf:type schema:CreativeWork
237 https://doi.org/10.1300/j010v27n01_06 schema:sameAs https://app.dimensions.ai/details/publication/pub.1017980758
238 rdf:type schema:CreativeWork
239 https://doi.org/10.1300/j077v05n02_07 schema:sameAs https://app.dimensions.ai/details/publication/pub.1040228412
240 rdf:type schema:CreativeWork
241 https://doi.org/10.1300/j077v15n03_04 schema:sameAs https://app.dimensions.ai/details/publication/pub.1047831728
242 rdf:type schema:CreativeWork
243 https://doi.org/10.1542/peds.2009-3078 schema:sameAs https://app.dimensions.ai/details/publication/pub.1046776455
244 rdf:type schema:CreativeWork
245 https://doi.org/10.1542/peds.2013-3067 schema:sameAs https://app.dimensions.ai/details/publication/pub.1042701304
246 rdf:type schema:CreativeWork
247 https://doi.org/10.1542/peds.2014-0375 schema:sameAs https://app.dimensions.ai/details/publication/pub.1019169236
248 rdf:type schema:CreativeWork
249 https://doi.org/10.1542/peds.2016-1057 schema:sameAs https://app.dimensions.ai/details/publication/pub.1079400820
250 rdf:type schema:CreativeWork
251 https://doi.org/10.1634/theoncologist.2011-0446 schema:sameAs https://app.dimensions.ai/details/publication/pub.1013868088
252 rdf:type schema:CreativeWork
253 https://www.grid.ac/institutes/grid.21925.3d schema:alternateName University of Pittsburgh
254 schema:name Departments of Medicine, Psychiatry, Clinical and Translational Science, University of Pittsburgh, Pittsburgh, PA, USA.
255 rdf:type schema:Organization
256 https://www.grid.ac/institutes/grid.22072.35 schema:alternateName University of Calgary
257 schema:name Departments of Oncology and Paediatrics, University of Calgary, Calgary, AB, Canada.
258 Pediatric Hematology/Oncology/Blood & Marrow Transplant Program, Alberta Children's Hospital, Calgary, AB, Canada.
259 rdf:type schema:Organization
260 https://www.grid.ac/institutes/grid.239546.f schema:alternateName Children's Hospital of Los Angeles
261 schema:name Division of Hematology, Oncology, and BMT, Children's Hospital Los Angeles, Los Angeles, CA, USA.
262 rdf:type schema:Organization
263 https://www.grid.ac/institutes/grid.30760.32 schema:alternateName Medical College of Wisconsin
264 schema:name CIBMTR® (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI, USA.
265 Medical College of Wisconsin, Department of Pediatrics, Division of Hematology, Oncology and Blood and Marrow Transplant, Milwaukee, WI, USA.
266 rdf:type schema:Organization
267 https://www.grid.ac/institutes/grid.411088.4 schema:alternateName University Hospital Frankfurt
268 schema:name Department for Children and Adolescents, Division for Stem Cell Transplantation and Immunology, University Hospital Frankfurt, Frankfurt am Main, Germany.
269 rdf:type schema:Organization
270 https://www.grid.ac/institutes/grid.412370.3 schema:alternateName Hôpital Saint-Antoine
271 schema:name EBMT Paris study office/CEREST-TC, Department of Haematology, Saint Antoine Hospital, INSERM UMR 938, Paris, France.
272 rdf:type schema:Organization
273 https://www.grid.ac/institutes/grid.413571.5 schema:alternateName Alberta Children's Hospital
274 schema:name Pediatric Hematology/Oncology/Blood & Marrow Transplant Program, Alberta Children's Hospital, Calgary, AB, Canada.
275 rdf:type schema:Organization
276 https://www.grid.ac/institutes/grid.413935.9 schema:alternateName VA Pittsburgh Healthcare System
277 schema:name Center for Health Equity Research and Promotion, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, PA, USA. gswitzer@pitt.edu.
278 Departments of Medicine, Psychiatry, Clinical and Translational Science, University of Pittsburgh, Pittsburgh, PA, USA. gswitzer@pitt.edu.
279 rdf:type schema:Organization
280 https://www.grid.ac/institutes/grid.5072.0 schema:alternateName Royal Marsden NHS Foundation Trust
281 schema:name Anthony Nolan Research Institute, Anthony Nolan Trust, London, UK.
282 Department of Haemato-Oncology, Royal Marsden NHS Foundation Trust, London, UK.
283 rdf:type schema:Organization
284 https://www.grid.ac/institutes/grid.94365.3d schema:alternateName National Institutes of Health
285 schema:name Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health Bethesda, Bethesda, MD, USA.
286 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...