Standard set of network outcomes for traumatic spinal cord injury: a consensus-based approach using the Delphi method View Full Text


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Article Info

DATE

2022-03-24

AUTHORS

Thomas J. A. van Schaik, Martin H. Pouw, Armin Curt, Ilse J. W. van Nes, Marije Vos-van der Hulst, Miranda L. van Hooff

ABSTRACT

Study designConsensus study.ObjectivesThe purpose of this study is to define a standardized (network) outcomes set for traumatic spinal cord injury (t-SCI), covering the patient journey from acute to chronic rehabilitation phase, including patient-relevant outcomes, adequate measurement instruments, as well as case-mix and risk factors.SettingAcute Spinal Cord Injury (ASCI) Unit Nijmegen, the Netherlands.MethodsA modified Delphi method was performed, including a multidisciplinary panel of 19 health-care professionals with experience in t-SCI management. Formal consensus was reached after two web-based surveys, a face-to-face meeting, and a final confirmation round (threshold consensus: 70%).ResultsIn the first two Delphi rounds, 18/19 invited panelists (94.7%) responded and 10 panelists participated in the final meeting. The prefinal set was confirmed by all panelists. The standard set encompasses the three-tiered outcome hierarchy and consists of patient-reported and clinician-reported outcome domains and measurement instruments. Consensus was reached to include survival, degree of health or recovery, time to recovery, and return to normal activities, disutility of care or treatment process, sustainability of health and nature of recurrences, and long-term consequences of therapy. A measurement schedule was defined as well as for proposed casemix and risk factors, including demographics, clinical status, and treatment process.ConclusionA standard set of network outcomes is developed that could be implemented in hospitals and rehabilitation centers involved in the treatment of t-SCI. Using this standard set, comparison of the quality of care is possible and prognostic prediction of outcomes of treatment is feasible, so that each patient receives the right care at the right time in the right place. More... »

PAGES

1-10

References to SciGraph publications

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  • 2009-09-29. ICF Core Sets for individuals with spinal cord injury in the early post-acute context in SPINAL CORD
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  • 2016-04-01. The role of specialist units to provide focused care and complication avoidance following traumatic spinal cord injury: a systematic review in EUROPEAN SPINE JOURNAL
  • 2015-07-14. Pre-hospital and acute management of traumatic spinal cord injury in the Netherlands: survey results urge the need for standardisation in SPINAL CORD
  • 2011-04-05. Comparison of patients managed in specialised spinal rehabilitation units with those managed in non-specialised rehabilitation units in SPINAL CORD
  • 2010-12-07. Standardization of data analysis and reporting of results from the International Spinal Cord Injury Core Data Set in SPINAL CORD
  • 2015-02-10. Common data elements for spinal cord injury clinical research: a National Institute for Neurological Disorders and Stroke project in SPINAL CORD
  • 2017-04-27. Traumatic spinal cord injury in NATURE REVIEWS DISEASE PRIMERS
  • 2012-08-06. Developing core outcome sets for clinical trials: issues to consider in TRIALS
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    http://scigraph.springernature.com/pub.10.1038/s41393-022-00792-z

    DOI

    http://dx.doi.org/10.1038/s41393-022-00792-z

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    https://app.dimensions.ai/details/publication/pub.1146553873

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/35332273


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