Self-perceptions from people with Down syndrome in Japan View Full Text


Ontology type: schema:ScholarlyArticle     


Article Info

DATE

2018-05

AUTHORS

Mio Wakai, Rina Takahashi, Satomi Higashigawa, Masami Ikeda, Junko Yotsumoto, Hironao Numabe

ABSTRACT

Self-perception of people with Down Syndrome (DS) was originally studied in the United States in 2011; this study indicated that 99% of people with DS are happy with their lives. In this study, we investigated self-perceptions of people with DS in Japan and compared the results to the previous study made in the United States. The participants (n = 300) were 12 years old or older and members of Japan Down Syndrome Society (JDS). The questionnaire was collected between 30 October 2015 and 26 November 2015. Of 96(32%) responses, 76 (97%) agreed they are happy with their lives. We found that most people with DS in Japan also feel positive about themselves and their lives. Along with the start of Non-Invasive Prenatal Testing in Japan, DS draws an attention from Japanese people because maternal age has been increasing. This has resulted in the growth of the number of prenatal tests marketed in Japan. Therefore, we expect our results to be relevant to genetic counseling for the couples considering prenatal tests or parents raising their children with DS so that they have a clearer image about life with DS and can better visualize their life plans. More... »

PAGES

669-672

Identifiers

URI

http://scigraph.springernature.com/pub.10.1038/s10038-018-0412-4

DOI

http://dx.doi.org/10.1038/s10038-018-0412-4

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1101037278

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/29449634


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171 https://www.grid.ac/institutes/grid.418490.0 schema:alternateName Chiba Cancer Center
172 schema:name Department of Genetic Counseling, Graduate School of Humanities and Sciences, Ochanomizu University, Tokyo, Japan
173 Division of Chemotherapy and Cancer Diagnosis, Chiba Cancer Center, Chiba, Japan
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175 https://www.grid.ac/institutes/grid.444497.e schema:alternateName Jumonji University
176 schema:name Department of Human Developmental Psychology, Jumonji University, Saitama, Japan
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