From patients to partners: participant-centric initiatives in biomedical research View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2012-04-03

AUTHORS

Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M. Fullerton, Nadja Kanellopoulou, David Lund, Daniel G. MacArthur, Deborah Mascalzoni, James Shepherd, Patrick L. Taylor, Sharon F. Terry, Stefan F. Winter

ABSTRACT

Participant-centred initiatives use social media technologies to allow long-term interactive partnerships to be established between study participants and researchers. These varied initiatives improve research governance and quality and give participants greater knowledge of and control over how their data are used.

PAGES

371-376

Journal

TITLE

Nature Reviews Genetics

ISSUE

5

VOLUME

13

Author Affiliations

From Grant

Identifiers

URI

http://scigraph.springernature.com/pub.10.1038/nrg3218

DOI

http://dx.doi.org/10.1038/nrg3218

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1027704301

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/22473380


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