Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2021-09-06

AUTHORS

Valerie Umaefulam, Terri-Lynn Fox, Glen Hazlewood, Nick Bansback, Claire E. H. Barber, Cheryl Barnabe

ABSTRACT

BackgroundPatient decision aids (PtDAs) enable shared decision-making between patients and healthcare providers. Adaptations to PtDAs for use with populations facing inequities in healthcare can improve the relevancy of information presented, incorporate appropriate cultural context, and address health literacy concerns. Our objective was to adapt the Early RA (rheumatoid arthritis) PtDA for use with Canadian Indigenous patients.MethodsThe Early RA PtDA was modified through an iterative process using data obtained from semi-structured interviews of two sequential cohorts of Indigenous patients with RA. Interview data were analyzed using thematic analysis.ResultsSeven participants provided initial feedback on the existing PtDA. The modifications they suggested were made and shared with another nine participants to confirm acceptability and provide further feedback. The first cohort suggested revisions to clarify medical and cost coverage information, include Indigenous traditional healing practice options, simplify text, and include Indigenous images and colors aligned with Canadian Indigenous community representation. Additional revisions were suggested by the second cohort to increase the legibility of the text, insert more Indigenous imagery, address formulary coverage for non-status First Nations patients, and include information about lifestyle factors in managing RA.ConclusionIncorporating Indigenous-specific adaptations in the design of PtDAs may increase use and relevancy to support engagement in treatment decisions, thereby supporting health-equity oriented health service interventions. Indigenous patient-specific evidence and translation of key words into the end-users’ Indigenous languages should be included for implementation of the PtDA. More... »

PAGES

233-243

References to SciGraph publications

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  • 2016-06-06. Are cancer-related decision aids appropriate for socially disadvantaged patients? A systematic review of US randomized controlled trials in BMC MEDICAL INFORMATICS AND DECISION MAKING
  • 2020-02-27. Importance of Indigenous elders’ contributions to individual and community wellness: results from a scoping review on social participation and intergenerational solidarity in CANADIAN JOURNAL OF PUBLIC HEALTH
  • 2014-11-25. The design of a low literacy decision aid about rheumatoid arthritis medications developed in three languages for use during the clinical encounter in BMC MEDICAL INFORMATICS AND DECISION MAKING
  • 2020-05-29. Health Literacy and Shared Decision-making: Exploring the Relationship to Enable Meaningful Patient Engagement in Healthcare in JOURNAL OF GENERAL INTERNAL MEDICINE
  • 2014-08-01. Development and preliminary user testing of the DCIDA (Dynamic computer interactive decision application) for ‘nudging’ patients towards high quality decisions in BMC MEDICAL INFORMATICS AND DECISION MAKING
  • 2017-01-19. Involving members of vulnerable populations in the development of patient decision aids: a mixed methods sequential explanatory study in BMC MEDICAL INFORMATICS AND DECISION MAKING
  • 2015-01-28. Cultural adaptation of a shared decision making tool with Aboriginal women: a qualitative study in BMC MEDICAL INFORMATICS AND DECISION MAKING
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    URI

    http://scigraph.springernature.com/pub.10.1007/s40271-021-00546-8

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    http://dx.doi.org/10.1007/s40271-021-00546-8

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1140899343

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/34486098


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