Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2019-09-23

AUTHORS

Dmitry Khodyakov, Sean Grant, Brian Denger, Kathi Kinnett, Ann Martin, Holly Peay, Ian Coulter

ABSTRACT

Patients and caregivers are increasingly recognized as key stakeholders in developing clinical practice guidelines (CPGs). Online engagement approaches offer the promise of a rigorous, scalable, and convenient engagement method. This paper illustrates how an online modified-Delphi approach could be used to engage patients, caregivers, and other stakeholder in CPG development. It provides practical guidance for conducting online modified-Delphi panels that covers (1) joint development of the engagement approach with relevant stakeholders, (2) adaptation of methods used by experts in guideline development, (3) pilot testing, (4) participant recruitment, (5) determining panel size and composition, (6) building participant capacity, (7) facilitation of two-way interaction, (8) continuous engagement and retention of participants, (9) rigorous data analysis, (10) evaluation of engagement activities, and (11) result dissemination. The paper is based on a recently completed study about engaging individuals with Duchenne muscular dystrophy (DMD) and their caregivers in determining the patient-centeredness of DMD care guidelines. More... »

PAGES

11-21

References to SciGraph publications

  • 2019-08-20. Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy in ORPHANET JOURNAL OF RARE DISEASES
  • 2016-11-09. Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges in THE PATIENT - PATIENT-CENTERED OUTCOMES RESEARCH
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  • 2017-01-17. Moving from Patient Advocacy to Partnership: A Long and Bumpy Road in THE PATIENT - PATIENT-CENTERED OUTCOMES RESEARCH
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  • 2017-10-13. Practical Considerations for Using Online Methods to Engage Patients in Guideline Development in THE PATIENT - PATIENT-CENTERED OUTCOMES RESEARCH
  • 2011-12-23. Conducting Online Expert panels: a feasibility and experimental replicability study in BMC MEDICAL RESEARCH METHODOLOGY
  • 2016-01-07. SEaRCH™ expert panel process: streamlining the link between evidence and practice in BMC RESEARCH NOTES
  • 2014-04-10. Evaluation of the acceptability, feasibility and effectiveness of two methods of involving patients with disability in developing clinical guidelines: study protocol of a randomized pragmatic pilot trial in TRIALS
  • 2018-04-16. Impact of patient involvement on clinical practice guideline development: a parallel group study in IMPLEMENTATION SCIENCE
  • 2015-07-10. Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned in JOURNAL OF GENERAL INTERNAL MEDICINE
  • 2014-10-04. Optimizing the use of expert panel reference diagnoses in diagnostic studies of multidimensional syndromes in BMC NEUROLOGY
  • Identifiers

    URI

    http://scigraph.springernature.com/pub.10.1007/s40271-019-00389-4

    DOI

    http://dx.doi.org/10.1007/s40271-019-00389-4

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1121186225

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/31544219


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