Pragmatic and Ethical Challenges of Incorporating the Genome into the Electronic Health Record View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2014-12

AUTHORS

Adam A. Nishimura, Peter Tarczy-Hornoch, Brian H. Shirts

ABSTRACT

Recent successes in the use of gene sequencing for patient care highlight the potential of genomic medicine. For genomics to become a part of usual care, pertinent elements of a patient's genomic test must be communicated to the most appropriate care providers. Electronic medical records may serve as a useful tool for storing and disseminating genomic data. Yet, the structure of existing EMRs and the nature of genomic data pose a number of pragmatic and ethical challenges in their integration. Through a review of the recent genome-EMR integration literature, we explore concrete examples of these challenges, categorized under four key questions: What data will we store? How will we store it? How will we use it? How will we protect it? We conclude that genome-EMR integration requires a rigorous, multi-faceted and interdisciplinary approach of study. Problems facing the field are numerous, but few are intractable. More... »

PAGES

201-211

References to SciGraph publications

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/s40142-014-0051-9

DOI

http://dx.doi.org/10.1007/s40142-014-0051-9

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1007062118

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/26146597


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