Patient-Centered Cancer Care Programs in Italy: Benchmarking Global Patient Education Initiatives View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2016-06

AUTHORS

Ivana Truccolo, Chiara Cipolat Mis, Silvia Cervo, Luigino Dal Maso, Marilena Bongiovanni, Alessandra Bearz, Ivana Sartor, Paolo Baldo, Emanuela Ferrarin, Lucia Fratino, Maurizio Mascarin, Mario Roncadin, Maria Antonietta Annunziata, Barbara Muzzatti, Paolo De Paoli

ABSTRACT

In Italy, educational programs for cancer patients are currently provided by the national government, scientific societies, and patient advocate organizations. Several gaps limit their effectiveness, including the lack of coordinated efforts, poor involvement of patient feedback in the planning of programs, as well as a lack of resources on innovative cancer-related topics. This process is parallel to a strong shift in the attitude of patients towards health in general and taking charge of their own health conditions in particular. The National Cancer Institute in the USA and the Organization of European Cancer Institutes encourage comprehensive cancer centers in providing educational programs conceived to overcome these gaps. The goal of this paper is to identify and describe the key elements necessary to develop a global patient education program and provide recommendations for strategies with practical examples for implementation in the daily activities of cancer institutes. A multidisciplinary committee was established for patient education, including patient representatives as equal partners, to define, implement, verify, and evaluate the fundamental steps for establishing a comprehensive education program. Six essential topics were identified for the program: appropriate communication of cancer epidemiology, clinical trial information, new therapeutic technologies, support in the use of medicines, psycho-oncological interventions, age-personalized approaches, and training programs for healthcare providers. Integration of these topics along with patient feedback is the key to a successful model for educational programs. An integrated educational program can transform a comprehensive cancer center to an institution that provides research and care for and with patients. More... »

PAGES

405-412

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/s13187-015-0805-4

DOI

http://dx.doi.org/10.1007/s13187-015-0805-4

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1026977622

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/25773134


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