IMPACT webinars: Improving Patient Access to genetic Counselling and Testing using webinars—the Alberta experience with hypertrophic cardiomyopathy View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2021-11-11

AUTHORS

Susan Christian, Julia Tagoe, Lenore Delday, Francois P. Bernier, Ruth Kohut, Raechel Ferrier

ABSTRACT

Growing demand for genetic counselling and testing has created a need for innovative service delivery models to provide quality care in an efficient manner. The goal of this study was to develop and evaluate a patient-facing webinar providing pre-test genetic counselling to individuals with hypertrophic cardiomyopathy. A patient-facing webinar was developed and implemented between April 2019 and January 2021. It was evaluated using the Alberta Quality Matrix for Health framework, which considers the patient experience across the domains of effectiveness, appropriateness, acceptability, accessibility, and efficiency. The webinar group showed comparable scores to controls with regard to self-perceived knowledge and decisional conflict. The majority of patients reported that the webinar met their expectations and was an acceptable replacement for a 1:1 genetic counselling appointment. Finally, the webinar reduced genetic counsellor time to an average of 24 min per patient. Providing pre-test genetic counselling to index hypertrophic cardiomyopathy patients via a group webinar has achieved a high quality of care, and optimized use of provider and space resources. More... »

PAGES

81-89

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/s12687-021-00564-x

DOI

http://dx.doi.org/10.1007/s12687-021-00564-x

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1142540395

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/34766249


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