“Being proactive, not reactive”: exploring perceptions of genetic testing among White, Latinx, and Pacific Islander Populations View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2021-08-20

AUTHORS

Daniel Chavez-Yenter, Jennie Vagher, Margaret F. Clayton, Mary Rindler, Masha Shukovich, Kimberly A. Kaphingst

ABSTRACT

Genetic testing is becoming an integral part of healthcare, but evidence suggests that both race and ethnicity influence access to and utilization of genetic testing. Given this barrier, data are needed on the perceptions of genetic testing in racial and ethnic minority groups. The purpose of this study was to explore the perceptions of three types of genetic testing (genetic testing for adult-onset conditions, prenatal screening, and newborn screening) in a sample of US participants who identified as White, Pacific Islander, and Latinx (10 dyads from each group for 60 participants total). Data were collected through semi-structured dyadic interviews and assessed using thematic analysis. The major themes were knowledge as empowering, knowledge as stressful, and predictive nature of prenatal testing and newborn screening. Some differences were seen in themes by race and ethnicity. A sense of collective and familial health appeared to be a more important theme for Pacific Islander and Latinx participants compared to White participants. Adult-onset genetic testing was viewed variously across all groups with some noting how it may increase anxiety, particularly if the disease screened for was unable to be prevented with action. All three groups reported on the positives of prenatal testing and newborn screening yet often were confused on the differences between them. This study presents novel perceptions of genetic testing in participants from diverse communities across three types of genetic testing. Genetic healthcare providers should incorporate participants’ perceptions, values, and beliefs into their counseling delivery as a way to engage with diverse communities. More... »

PAGES

617-630

References to SciGraph publications

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  • 2017-07-08. Leveraging community-based participatory research capacity to recruit Pacific Islanders into a genetics study in JOURNAL OF COMMUNITY GENETICS
  • 2015-12-21. Participation of low-income women in genetic cancer risk assessment and BRCA 1/2 testing: the experience of a safety-net institution in JOURNAL OF COMMUNITY GENETICS
  • Identifiers

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    http://scigraph.springernature.com/pub.10.1007/s12687-021-00542-3

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    DIMENSIONS

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    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/34415555


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    29 schema:description Genetic testing is becoming an integral part of healthcare, but evidence suggests that both race and ethnicity influence access to and utilization of genetic testing. Given this barrier, data are needed on the perceptions of genetic testing in racial and ethnic minority groups. The purpose of this study was to explore the perceptions of three types of genetic testing (genetic testing for adult-onset conditions, prenatal screening, and newborn screening) in a sample of US participants who identified as White, Pacific Islander, and Latinx (10 dyads from each group for 60 participants total). Data were collected through semi-structured dyadic interviews and assessed using thematic analysis. The major themes were knowledge as empowering, knowledge as stressful, and predictive nature of prenatal testing and newborn screening. Some differences were seen in themes by race and ethnicity. A sense of collective and familial health appeared to be a more important theme for Pacific Islander and Latinx participants compared to White participants. Adult-onset genetic testing was viewed variously across all groups with some noting how it may increase anxiety, particularly if the disease screened for was unable to be prevented with action. All three groups reported on the positives of prenatal testing and newborn screening yet often were confused on the differences between them. This study presents novel perceptions of genetic testing in participants from diverse communities across three types of genetic testing. Genetic healthcare providers should incorporate participants’ perceptions, values, and beliefs into their counseling delivery as a way to engage with diverse communities.
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    37 Islander populations
    38 Islanders
    39 Latinx
    40 Latinx participants
    41 Pacific Islander populations
    42 Pacific Islanders
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    44 access
    45 action
    46 analysis
    47 anxiety
    48 barriers
    49 beliefs
    50 community
    51 counseling delivery
    52 data
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    54 differences
    55 disease
    56 diverse communities
    57 dyadic interviews
    58 empowering
    59 ethnic minority groups
    60 ethnicity
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    62 evidence
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    64 genetic testing
    65 genetics healthcare providers
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    68 healthcare
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    105 schema:name “Being proactive, not reactive”: exploring perceptions of genetic testing among White, Latinx, and Pacific Islander Populations
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