Legal issues in governing genetic biobanks: the Italian framework as a case study for the implications for citizen’s health through ... View Full Text


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Article Info

DATE

2017-09-18

AUTHORS

Cinzia Piciocchi, Rossana Ducato, Lucia Martinelli, Silvia Perra, Marta Tomasi, Carla Zuddas, Deborah Mascalzoni

ABSTRACT

This paper outlines some of the challenges faced by regulation of genetic biobanking, using case studies coming from the Italian legal system. The governance of genetic resources in the context of genetic biobanks in Italy is discussed, as an example of the stratification of different inputs and rules: EU law, national law, orders made by authorities and soft law, which need to be integrated with ethical principles, technological strategies and solutions. After providing an overview of the Italian legal regulation of genetic data processing, it considers the fate of genetic material and IP rights in the event of a biobank's insolvency. To this end, it analyses two case studies: a controversial bankruptcy case which occurred in Sardinia, one of the first examples of private and public partnership biobanks. Another case study considered is the Chris project: an example of partnership between a research institute in Bolzano and the South Tyrolean Health System. Both cases seem to point in the same direction, suggesting expediency of promoting and improving public-private partnerships to manage biological tissues and biotrust to conciliate patent law and public interest. More... »

PAGES

177-190

References to SciGraph publications

  • 2010-12-29. Caught you: threats to confidentiality due to the public release of large-scale genetic data sets in BMC MEDICAL ETHICS
  • 2013-08-01. Recommendations for returning genomic incidental findings? We need to talk! in GENETICS IN MEDICINE
  • 2017-01-25. Dynamic Consent: a potential solution to some of the challenges of modern biomedical research in BMC MEDICAL ETHICS
  • 2015-11-05. The Cooperative Health Research in South Tyrol (CHRIS) study: rationale, objectives, and preliminary results in JOURNAL OF TRANSLATIONAL MEDICINE
  • 2011-10-04. Bridging consent: from toll bridges to lift bridges? in BMC MEDICAL GENOMICS
  • 2005-08. The Babel of genetic data terminology in NATURE BIOTECHNOLOGY
  • 2013-06-19. Data sharing in large research consortia: experiences and recommendations from ENGAGE in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2014-09-24. International Charter of principles for sharing bio-specimens and data in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2016-04-06. ‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2012-11-03. Informed Consent and Research Biobanks: A Challenge in Three Dimensions in COMPARATIVE ISSUES IN THE GOVERNANCE OF RESEARCH BIOBANKS
  • 2007-07-19. The informed consent aftermath of the genetic revolution. An Italian example of implementation in MEDICINE, HEALTH CARE AND PHILOSOPHY
  • 2011-06-26. Closure of population biobanks and direct-to-consumer genetic testing companies in HUMAN GENETICS
  • 2016-02-10. Improving the informed consent process in international collaborative rare disease research: effective consent for effective research in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2013-06-20. ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing in GENETICS IN MEDICINE
  • 2014-02-27. A human rights approach to an international code of conduct for genomic and clinical data sharing in HUMAN GENETICS
  • 2009-05. Data sharing in genomics — re-shaping scientific practice in NATURE REVIEWS GENETICS
  • 1999-06-01. AKEntAnnos. The Sardinia Study of Extreme Longevity in AGING CLINICAL AND EXPERIMENTAL RESEARCH
  • 2010-06-08. Genomic research and wide data sharing: Views of prospective participants in GENETICS IN MEDICINE
  • 2000-10. Italy toasts Sardinia with SharDNA in NATURE BIOTECHNOLOGY
  • 2014-05-07. Dynamic consent: a patient interface for twenty-first century research networks in EUROPEAN JOURNAL OF HUMAN GENETICS
  • 2011-07-14. Towards a data sharing Code of Conduct for international genomic research in GENOME MEDICINE
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    43 Italy
    44 Research Institute
    45 Sardinia
    46 South Tyrolean Health System
    47 Tyrolean Health System
    48 authorities
    49 bankruptcy cases
    50 biobank's insolvency
    51 biobanking
    52 biological tissues
    53 case study
    54 cases
    55 challenges
    56 citizens' health
    57 context
    58 controversial bankruptcy case
    59 data processing
    60 different inputs
    61 direction
    62 end
    63 ethical principles
    64 events
    65 example
    66 examples of partnerships
    67 expediency
    68 fate
    69 first example
    70 framework
    71 genetic biobanking
    72 genetic biobanks
    73 genetic data processing
    74 genetic material
    75 genetic resources
    76 governance
    77 health
    78 health system
    79 implications
    80 initiatives
    81 input
    82 insolvency
    83 interest
    84 issues
    85 law
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    88 legal system
    89 materials
    90 national law
    91 order
    92 overview
    93 paper
    94 partnership
    95 partnership biobanks
    96 patent law
    97 principles
    98 processing
    99 project
    100 public interest
    101 public partnership biobanks
    102 public-private initiatives
    103 public-private partnerships
    104 regulation
    105 resources
    106 rights
    107 rules
    108 same direction
    109 soft law
    110 solution
    111 strategies
    112 stratification
    113 study
    114 system
    115 technological strategies
    116 tissue
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