Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2017-04-25

AUTHORS

Carolyn E. Schwartz, Victoria E. Powell, Adi Eldar-Lissai

ABSTRACT

AimsThe purpose of this article is to describe the psychometric development of the Hemophilia Caregiver Impact measure.MethodsQualitative interviews (n = 22) and a cross-sectional web-based study (n = 458) were implemented with caregivers of people with hemophilia. Classical test theory and item response theory analyses were implemented to evaluate the psychometric characteristics of the measure.ResultsThe study sample had a mean age of 39 and a median level of college education. It was predominantly female (88%), and had an average of two children. 85% of this study sample had at least one child with hemophilia. The final 36-item Hemophilia Caregiver Impact measure is composed of seven subscales assessing relevant negative aspects of caregiver impact (Burden Summary) as well as one subscale reflecting a positive aspect of caregiver impact (Positive Emotions). These two summary scores are orthogonal and can be used together in analyses examining negative and positive aspects of caregiver impact. The items included within each subscale reflect a unidimensional construct, demonstrate good item information and trace lines, and lack of local dependence. The resulting subscales demonstrate high reliability, and good construct validity. They show moderate incremental and discriminant validity.ConclusionsThe Hemophilia Caregiver Impact measure is a useful new tool for clinical research on hemophilia. In addition to having eight relevant subscales, the measure can also be summarized with two scores. This versatility can be useful in analyzing studies with very small samples, which is to be expected when dealing with a rare condition like hemophilia. More... »

PAGES

2551-2562

References to SciGraph publications

  • 2004-01-14. Caregiving process and caregiver burden: Conceptual models to guide research and practice in BMC PEDIATRICS
  • 2011-08-20. Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies in QUALITY OF LIFE RESEARCH
  • 2004-09-27. The PedsQL™ Family Impact Module: Preliminary reliability and validity in HEALTH AND QUALITY OF LIFE OUTCOMES
  • 2016-05-28. Validation of the American version of the CareGiver Oncology Quality of Life (CarGOQoL) questionnaire in HEALTH AND QUALITY OF LIFE OUTCOMES
  • 2013-01-04. ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research in QUALITY OF LIFE RESEARCH
  • 2011-11-13. ‘All the burden on all the carers’: exploring quality of life with family caregivers of Huntington’s disease patients in QUALITY OF LIFE RESEARCH
  • 2003-01. Family burden and quality of life in QUALITY OF LIFE RESEARCH
  • 1996-02. Measuring quality of life in the parents of children with asthma in QUALITY OF LIFE RESEARCH
  • 1997. Graded Response Model in HANDBOOK OF MODERN ITEM RESPONSE THEORY
  • 2009-06-19. Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items in QUALITY OF LIFE RESEARCH
  • 2011-11-30. Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer in QUALITY OF LIFE RESEARCH
  • 2016-01-07. Erratum to: psychometric evaluation of the Mental Health Continuum-Short Form (MHC-SF) in Chinese adolescents – a methodological study in HEALTH AND QUALITY OF LIFE OUTCOMES
  • Identifiers

    URI

    http://scigraph.springernature.com/pub.10.1007/s11136-017-1572-y

    DOI

    http://dx.doi.org/10.1007/s11136-017-1572-y

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1085059115

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/28444553


    Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
    Incoming Citations Browse incoming citations for this publication using opencitations.net

    JSON-LD is the canonical representation for SciGraph data.

    TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

    [
      {
        "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
        "about": [
          {
            "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/17", 
            "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
            "name": "Psychology and Cognitive Sciences", 
            "type": "DefinedTerm"
          }, 
          {
            "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1701", 
            "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
            "name": "Psychology", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Adaptation, Psychological", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Adult", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Caregivers", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Cross-Sectional Studies", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Female", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Hemophilia A", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Humans", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Male", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Psychometrics", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Quality of Life", 
            "type": "DefinedTerm"
          }, 
          {
            "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
            "name": "Surveys and Questionnaires", 
            "type": "DefinedTerm"
          }
        ], 
        "author": [
          {
            "affiliation": {
              "alternateName": "Departments of Medicine and Orthopaedic Surgery, Tufts University Medical School, Boston, MA, USA", 
              "id": "http://www.grid.ac/institutes/grid.429997.8", 
              "name": [
                "DeltaQuest Foundation, Inc., 31 Mitchell Road, 01742, Concord, MA, USA", 
                "Departments of Medicine and Orthopaedic Surgery, Tufts University Medical School, Boston, MA, USA"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Schwartz", 
            "givenName": "Carolyn E.", 
            "id": "sg:person.01023443306.50", 
            "sameAs": [
              "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01023443306.50"
            ], 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "DeltaQuest Foundation, Inc., 31 Mitchell Road, 01742, Concord, MA, USA", 
              "id": "http://www.grid.ac/institutes/grid.417398.0", 
              "name": [
                "DeltaQuest Foundation, Inc., 31 Mitchell Road, 01742, Concord, MA, USA"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Powell", 
            "givenName": "Victoria E.", 
            "id": "sg:person.013311706001.06", 
            "sameAs": [
              "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.013311706001.06"
            ], 
            "type": "Person"
          }, 
          {
            "affiliation": {
              "alternateName": "Biogen, Cambridge, MA, USA", 
              "id": "http://www.grid.ac/institutes/grid.417832.b", 
              "name": [
                "Biogen, Cambridge, MA, USA"
              ], 
              "type": "Organization"
            }, 
            "familyName": "Eldar-Lissai", 
            "givenName": "Adi", 
            "id": "sg:person.01216167011.45", 
            "sameAs": [
              "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01216167011.45"
            ], 
            "type": "Person"
          }
        ], 
        "citation": [
          {
            "id": "sg:pub.10.1007/s11136-009-9496-9", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1027239199", 
              "https://doi.org/10.1007/s11136-009-9496-9"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s11136-012-0344-y", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1017038140", 
              "https://doi.org/10.1007/s11136-012-0344-y"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s11136-011-0062-x", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1046452302", 
              "https://doi.org/10.1007/s11136-011-0062-x"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/1471-2431-4-1", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1019070478", 
              "https://doi.org/10.1186/1471-2431-4-1"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s11136-011-0072-8", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1042290368", 
              "https://doi.org/10.1007/s11136-011-0072-8"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12955-016-0487-6", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1013267100", 
              "https://doi.org/10.1186/s12955-016-0487-6"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/bf00435966", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1016829348", 
              "https://doi.org/10.1007/bf00435966"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/s11136-011-9991-7", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1006468702", 
              "https://doi.org/10.1007/s11136-011-9991-7"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/1477-7525-2-55", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1014470393", 
              "https://doi.org/10.1186/1477-7525-2-55"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1023/a:1023513218433", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1018896949", 
              "https://doi.org/10.1023/a:1023513218433"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1007/978-1-4757-2691-6_5", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1041204240", 
              "https://doi.org/10.1007/978-1-4757-2691-6_5"
            ], 
            "type": "CreativeWork"
          }, 
          {
            "id": "sg:pub.10.1186/s12955-015-0404-4", 
            "sameAs": [
              "https://app.dimensions.ai/details/publication/pub.1006418243", 
              "https://doi.org/10.1186/s12955-015-0404-4"
            ], 
            "type": "CreativeWork"
          }
        ], 
        "datePublished": "2017-04-25", 
        "datePublishedReg": "2017-04-25", 
        "description": "AimsThe purpose of this article is to describe the psychometric development of the Hemophilia Caregiver Impact measure.MethodsQualitative interviews (n\u00a0=\u00a022) and a cross-sectional web-based study (n\u00a0=\u00a0458) were implemented with caregivers of people with hemophilia. Classical test theory and item response theory analyses were implemented to evaluate the psychometric characteristics of the measure.ResultsThe study sample had a mean age of 39 and a median level of college education. It was predominantly female (88%), and had an average of two children. 85% of this study sample had at least one child with hemophilia. The final 36-item Hemophilia Caregiver Impact measure is composed of seven subscales assessing relevant negative aspects of caregiver impact (Burden Summary) as well as one subscale reflecting a positive aspect of caregiver impact (Positive Emotions). These two summary scores are orthogonal and can be used together in analyses examining negative and positive aspects of caregiver impact. The items included within each subscale reflect a unidimensional construct, demonstrate good item information and trace lines, and lack of local dependence. The resulting subscales demonstrate high reliability, and good construct validity. They show moderate incremental and discriminant validity.ConclusionsThe Hemophilia Caregiver Impact measure is a useful new tool for clinical research on hemophilia. In addition to having eight relevant subscales, the measure can also be summarized with two scores. This versatility can be useful in analyzing studies with very small samples, which is to be expected when dealing with a rare condition like hemophilia.", 
        "genre": "article", 
        "id": "sg:pub.10.1007/s11136-017-1572-y", 
        "isAccessibleForFree": true, 
        "isPartOf": [
          {
            "id": "sg:journal.1102620", 
            "issn": [
              "0962-9343", 
              "1573-2649"
            ], 
            "name": "Quality of Life Research", 
            "publisher": "Springer Nature", 
            "type": "Periodical"
          }, 
          {
            "issueNumber": "9", 
            "type": "PublicationIssue"
          }, 
          {
            "type": "PublicationVolume", 
            "volumeNumber": "26"
          }
        ], 
        "keywords": [
          "caregiver impact", 
          "positive aspects", 
          "item response theory analysis", 
          "caregivers of people", 
          "classical test theory", 
          "item information", 
          "good construct validity", 
          "unidimensional construct", 
          "discriminant validity", 
          "cross-sectional web-based study", 
          "web-based study", 
          "psychometric development", 
          "psychometric characteristics", 
          "construct validity", 
          "relevant subscales", 
          "subscales", 
          "test theory", 
          "study sample", 
          "negative aspects", 
          "caregiver burden", 
          "impact measures", 
          "MethodsQualitative interviews", 
          "measures", 
          "theory analysis", 
          "local dependence", 
          "children", 
          "validity", 
          "summary scores", 
          "scores", 
          "small samples", 
          "caregivers", 
          "aspects", 
          "constructs", 
          "items", 
          "college education", 
          "trace lines", 
          "useful new tool", 
          "interviews", 
          "people", 
          "clinical research", 
          "samples", 
          "research", 
          "impact", 
          "AimsThe purpose", 
          "theory", 
          "study", 
          "education", 
          "information", 
          "age", 
          "reliability", 
          "purpose", 
          "article", 
          "high reliability", 
          "development", 
          "analysis", 
          "lack", 
          "levels", 
          "new tool", 
          "validation", 
          "tool", 
          "burden", 
          "mean age", 
          "conditions", 
          "characteristics", 
          "addition", 
          "average", 
          "hemophilia", 
          "lines", 
          "dependence", 
          "median levels", 
          "versatility", 
          "rare condition"
        ], 
        "name": "Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure", 
        "pagination": "2551-2562", 
        "productId": [
          {
            "name": "dimensions_id", 
            "type": "PropertyValue", 
            "value": [
              "pub.1085059115"
            ]
          }, 
          {
            "name": "doi", 
            "type": "PropertyValue", 
            "value": [
              "10.1007/s11136-017-1572-y"
            ]
          }, 
          {
            "name": "pubmed_id", 
            "type": "PropertyValue", 
            "value": [
              "28444553"
            ]
          }
        ], 
        "sameAs": [
          "https://doi.org/10.1007/s11136-017-1572-y", 
          "https://app.dimensions.ai/details/publication/pub.1085059115"
        ], 
        "sdDataset": "articles", 
        "sdDatePublished": "2022-11-24T21:01", 
        "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
        "sdPublisher": {
          "name": "Springer Nature - SN SciGraph project", 
          "type": "Organization"
        }, 
        "sdSource": "s3://com-springernature-scigraph/baseset/20221124/entities/gbq_results/article/article_718.jsonl", 
        "type": "ScholarlyArticle", 
        "url": "https://doi.org/10.1007/s11136-017-1572-y"
      }
    ]
     

    Download the RDF metadata as:  json-ld nt turtle xml License info

    HOW TO GET THIS DATA PROGRAMMATICALLY:

    JSON-LD is a popular format for linked data which is fully compatible with JSON.

    curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1007/s11136-017-1572-y'

    N-Triples is a line-based linked data format ideal for batch operations.

    curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1007/s11136-017-1572-y'

    Turtle is a human-readable linked data format.

    curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1007/s11136-017-1572-y'

    RDF/XML is a standard XML format for linked data.

    curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1007/s11136-017-1572-y'


     

    This table displays all metadata directly associated to this object as RDF triples.

    246 TRIPLES      21 PREDICATES      119 URIs      99 LITERALS      18 BLANK NODES

    Subject Predicate Object
    1 sg:pub.10.1007/s11136-017-1572-y schema:about N0bbae179d2174bb3942618d08f29b7a9
    2 N1c8a6bf27edd41d8807f1c0c4b473f13
    3 N26ba0c683f584004a88c042ff959b99f
    4 N691ff8acb07d4e8280e653f33ef11fe0
    5 N6be1ef6eb9ea4d419bda4aa5e39b2e5d
    6 N7f22ba3d138f469aa87a47f76498432a
    7 N95309df16ddc4fec89888f5a99045af8
    8 N9a61c17b1f8e48a0826f699c93bd562f
    9 Neb6d692cca424b69a1697ace6fc0719d
    10 Nedcc86b968314f349070218315ca16e7
    11 Nf4c809b25f1c436c8c8602ff64c5700c
    12 anzsrc-for:17
    13 anzsrc-for:1701
    14 schema:author Na2cbeb00afd443cab37af729b9d27931
    15 schema:citation sg:pub.10.1007/978-1-4757-2691-6_5
    16 sg:pub.10.1007/bf00435966
    17 sg:pub.10.1007/s11136-009-9496-9
    18 sg:pub.10.1007/s11136-011-0062-x
    19 sg:pub.10.1007/s11136-011-0072-8
    20 sg:pub.10.1007/s11136-011-9991-7
    21 sg:pub.10.1007/s11136-012-0344-y
    22 sg:pub.10.1023/a:1023513218433
    23 sg:pub.10.1186/1471-2431-4-1
    24 sg:pub.10.1186/1477-7525-2-55
    25 sg:pub.10.1186/s12955-015-0404-4
    26 sg:pub.10.1186/s12955-016-0487-6
    27 schema:datePublished 2017-04-25
    28 schema:datePublishedReg 2017-04-25
    29 schema:description AimsThe purpose of this article is to describe the psychometric development of the Hemophilia Caregiver Impact measure.MethodsQualitative interviews (n = 22) and a cross-sectional web-based study (n = 458) were implemented with caregivers of people with hemophilia. Classical test theory and item response theory analyses were implemented to evaluate the psychometric characteristics of the measure.ResultsThe study sample had a mean age of 39 and a median level of college education. It was predominantly female (88%), and had an average of two children. 85% of this study sample had at least one child with hemophilia. The final 36-item Hemophilia Caregiver Impact measure is composed of seven subscales assessing relevant negative aspects of caregiver impact (Burden Summary) as well as one subscale reflecting a positive aspect of caregiver impact (Positive Emotions). These two summary scores are orthogonal and can be used together in analyses examining negative and positive aspects of caregiver impact. The items included within each subscale reflect a unidimensional construct, demonstrate good item information and trace lines, and lack of local dependence. The resulting subscales demonstrate high reliability, and good construct validity. They show moderate incremental and discriminant validity.ConclusionsThe Hemophilia Caregiver Impact measure is a useful new tool for clinical research on hemophilia. In addition to having eight relevant subscales, the measure can also be summarized with two scores. This versatility can be useful in analyzing studies with very small samples, which is to be expected when dealing with a rare condition like hemophilia.
    30 schema:genre article
    31 schema:isAccessibleForFree true
    32 schema:isPartOf N243f1a3ecc6847fbbc17d11d573edfe6
    33 N7b6435a5bc404813b67d1cca105f296a
    34 sg:journal.1102620
    35 schema:keywords AimsThe purpose
    36 MethodsQualitative interviews
    37 addition
    38 age
    39 analysis
    40 article
    41 aspects
    42 average
    43 burden
    44 caregiver burden
    45 caregiver impact
    46 caregivers
    47 caregivers of people
    48 characteristics
    49 children
    50 classical test theory
    51 clinical research
    52 college education
    53 conditions
    54 construct validity
    55 constructs
    56 cross-sectional web-based study
    57 dependence
    58 development
    59 discriminant validity
    60 education
    61 good construct validity
    62 hemophilia
    63 high reliability
    64 impact
    65 impact measures
    66 information
    67 interviews
    68 item information
    69 item response theory analysis
    70 items
    71 lack
    72 levels
    73 lines
    74 local dependence
    75 mean age
    76 measures
    77 median levels
    78 negative aspects
    79 new tool
    80 people
    81 positive aspects
    82 psychometric characteristics
    83 psychometric development
    84 purpose
    85 rare condition
    86 relevant subscales
    87 reliability
    88 research
    89 samples
    90 scores
    91 small samples
    92 study
    93 study sample
    94 subscales
    95 summary scores
    96 test theory
    97 theory
    98 theory analysis
    99 tool
    100 trace lines
    101 unidimensional construct
    102 useful new tool
    103 validation
    104 validity
    105 versatility
    106 web-based study
    107 schema:name Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure
    108 schema:pagination 2551-2562
    109 schema:productId N209f9d0dfada42dc82ab318619dcb1cf
    110 N21895ac4801b40ea8403ce8cc1959eda
    111 N955f12482a1046ae99aa5b33565bce48
    112 schema:sameAs https://app.dimensions.ai/details/publication/pub.1085059115
    113 https://doi.org/10.1007/s11136-017-1572-y
    114 schema:sdDatePublished 2022-11-24T21:01
    115 schema:sdLicense https://scigraph.springernature.com/explorer/license/
    116 schema:sdPublisher N1a1833df225844d1a3fad173b1b5af2f
    117 schema:url https://doi.org/10.1007/s11136-017-1572-y
    118 sgo:license sg:explorer/license/
    119 sgo:sdDataset articles
    120 rdf:type schema:ScholarlyArticle
    121 N0bbae179d2174bb3942618d08f29b7a9 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    122 schema:name Adult
    123 rdf:type schema:DefinedTerm
    124 N1a1833df225844d1a3fad173b1b5af2f schema:name Springer Nature - SN SciGraph project
    125 rdf:type schema:Organization
    126 N1c8a6bf27edd41d8807f1c0c4b473f13 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    127 schema:name Female
    128 rdf:type schema:DefinedTerm
    129 N209f9d0dfada42dc82ab318619dcb1cf schema:name doi
    130 schema:value 10.1007/s11136-017-1572-y
    131 rdf:type schema:PropertyValue
    132 N21895ac4801b40ea8403ce8cc1959eda schema:name dimensions_id
    133 schema:value pub.1085059115
    134 rdf:type schema:PropertyValue
    135 N243f1a3ecc6847fbbc17d11d573edfe6 schema:volumeNumber 26
    136 rdf:type schema:PublicationVolume
    137 N26ba0c683f584004a88c042ff959b99f schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    138 schema:name Cross-Sectional Studies
    139 rdf:type schema:DefinedTerm
    140 N691ff8acb07d4e8280e653f33ef11fe0 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    141 schema:name Psychometrics
    142 rdf:type schema:DefinedTerm
    143 N6a22059006f246b0828900961f16611d rdf:first sg:person.01216167011.45
    144 rdf:rest rdf:nil
    145 N6be1ef6eb9ea4d419bda4aa5e39b2e5d schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    146 schema:name Caregivers
    147 rdf:type schema:DefinedTerm
    148 N7b6435a5bc404813b67d1cca105f296a schema:issueNumber 9
    149 rdf:type schema:PublicationIssue
    150 N7f22ba3d138f469aa87a47f76498432a schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    151 schema:name Hemophilia A
    152 rdf:type schema:DefinedTerm
    153 N95309df16ddc4fec89888f5a99045af8 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    154 schema:name Humans
    155 rdf:type schema:DefinedTerm
    156 N955f12482a1046ae99aa5b33565bce48 schema:name pubmed_id
    157 schema:value 28444553
    158 rdf:type schema:PropertyValue
    159 N9a61c17b1f8e48a0826f699c93bd562f schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    160 schema:name Surveys and Questionnaires
    161 rdf:type schema:DefinedTerm
    162 Na2cbeb00afd443cab37af729b9d27931 rdf:first sg:person.01023443306.50
    163 rdf:rest Nbc4bb461c0bd4fda89e4002836fadc1c
    164 Nbc4bb461c0bd4fda89e4002836fadc1c rdf:first sg:person.013311706001.06
    165 rdf:rest N6a22059006f246b0828900961f16611d
    166 Neb6d692cca424b69a1697ace6fc0719d schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    167 schema:name Adaptation, Psychological
    168 rdf:type schema:DefinedTerm
    169 Nedcc86b968314f349070218315ca16e7 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    170 schema:name Male
    171 rdf:type schema:DefinedTerm
    172 Nf4c809b25f1c436c8c8602ff64c5700c schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
    173 schema:name Quality of Life
    174 rdf:type schema:DefinedTerm
    175 anzsrc-for:17 schema:inDefinedTermSet anzsrc-for:
    176 schema:name Psychology and Cognitive Sciences
    177 rdf:type schema:DefinedTerm
    178 anzsrc-for:1701 schema:inDefinedTermSet anzsrc-for:
    179 schema:name Psychology
    180 rdf:type schema:DefinedTerm
    181 sg:journal.1102620 schema:issn 0962-9343
    182 1573-2649
    183 schema:name Quality of Life Research
    184 schema:publisher Springer Nature
    185 rdf:type schema:Periodical
    186 sg:person.01023443306.50 schema:affiliation grid-institutes:grid.429997.8
    187 schema:familyName Schwartz
    188 schema:givenName Carolyn E.
    189 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01023443306.50
    190 rdf:type schema:Person
    191 sg:person.01216167011.45 schema:affiliation grid-institutes:grid.417832.b
    192 schema:familyName Eldar-Lissai
    193 schema:givenName Adi
    194 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01216167011.45
    195 rdf:type schema:Person
    196 sg:person.013311706001.06 schema:affiliation grid-institutes:grid.417398.0
    197 schema:familyName Powell
    198 schema:givenName Victoria E.
    199 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.013311706001.06
    200 rdf:type schema:Person
    201 sg:pub.10.1007/978-1-4757-2691-6_5 schema:sameAs https://app.dimensions.ai/details/publication/pub.1041204240
    202 https://doi.org/10.1007/978-1-4757-2691-6_5
    203 rdf:type schema:CreativeWork
    204 sg:pub.10.1007/bf00435966 schema:sameAs https://app.dimensions.ai/details/publication/pub.1016829348
    205 https://doi.org/10.1007/bf00435966
    206 rdf:type schema:CreativeWork
    207 sg:pub.10.1007/s11136-009-9496-9 schema:sameAs https://app.dimensions.ai/details/publication/pub.1027239199
    208 https://doi.org/10.1007/s11136-009-9496-9
    209 rdf:type schema:CreativeWork
    210 sg:pub.10.1007/s11136-011-0062-x schema:sameAs https://app.dimensions.ai/details/publication/pub.1046452302
    211 https://doi.org/10.1007/s11136-011-0062-x
    212 rdf:type schema:CreativeWork
    213 sg:pub.10.1007/s11136-011-0072-8 schema:sameAs https://app.dimensions.ai/details/publication/pub.1042290368
    214 https://doi.org/10.1007/s11136-011-0072-8
    215 rdf:type schema:CreativeWork
    216 sg:pub.10.1007/s11136-011-9991-7 schema:sameAs https://app.dimensions.ai/details/publication/pub.1006468702
    217 https://doi.org/10.1007/s11136-011-9991-7
    218 rdf:type schema:CreativeWork
    219 sg:pub.10.1007/s11136-012-0344-y schema:sameAs https://app.dimensions.ai/details/publication/pub.1017038140
    220 https://doi.org/10.1007/s11136-012-0344-y
    221 rdf:type schema:CreativeWork
    222 sg:pub.10.1023/a:1023513218433 schema:sameAs https://app.dimensions.ai/details/publication/pub.1018896949
    223 https://doi.org/10.1023/a:1023513218433
    224 rdf:type schema:CreativeWork
    225 sg:pub.10.1186/1471-2431-4-1 schema:sameAs https://app.dimensions.ai/details/publication/pub.1019070478
    226 https://doi.org/10.1186/1471-2431-4-1
    227 rdf:type schema:CreativeWork
    228 sg:pub.10.1186/1477-7525-2-55 schema:sameAs https://app.dimensions.ai/details/publication/pub.1014470393
    229 https://doi.org/10.1186/1477-7525-2-55
    230 rdf:type schema:CreativeWork
    231 sg:pub.10.1186/s12955-015-0404-4 schema:sameAs https://app.dimensions.ai/details/publication/pub.1006418243
    232 https://doi.org/10.1186/s12955-015-0404-4
    233 rdf:type schema:CreativeWork
    234 sg:pub.10.1186/s12955-016-0487-6 schema:sameAs https://app.dimensions.ai/details/publication/pub.1013267100
    235 https://doi.org/10.1186/s12955-016-0487-6
    236 rdf:type schema:CreativeWork
    237 grid-institutes:grid.417398.0 schema:alternateName DeltaQuest Foundation, Inc., 31 Mitchell Road, 01742, Concord, MA, USA
    238 schema:name DeltaQuest Foundation, Inc., 31 Mitchell Road, 01742, Concord, MA, USA
    239 rdf:type schema:Organization
    240 grid-institutes:grid.417832.b schema:alternateName Biogen, Cambridge, MA, USA
    241 schema:name Biogen, Cambridge, MA, USA
    242 rdf:type schema:Organization
    243 grid-institutes:grid.429997.8 schema:alternateName Departments of Medicine and Orthopaedic Surgery, Tufts University Medical School, Boston, MA, USA
    244 schema:name DeltaQuest Foundation, Inc., 31 Mitchell Road, 01742, Concord, MA, USA
    245 Departments of Medicine and Orthopaedic Surgery, Tufts University Medical School, Boston, MA, USA
    246 rdf:type schema:Organization
     




    Preview window. Press ESC to close (or click here)


    ...