Developing a utility index for the Aberrant Behavior Checklist (ABC-C) for fragile X syndrome View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2014-07-26

AUTHORS

Cicely Kerr, Katie Breheny, Andrew Lloyd, John Brazier, Donald B. Bailey, Elizabeth Berry-Kravis, Jonathan Cohen, Jennifer Petrillo

ABSTRACT

PURPOSE: This study aimed to develop a utility index (the ABC-UI) from the Aberrant Behavior Checklist-Community (ABC-C), for use in quantifying the benefit of emerging treatments for fragile X syndrome (FXS). METHODS: The ABC-C is a proxy-completed assessment of behaviour and is a widely used measure in FXS. A subset of ABC-C items across seven dimensions was identified to include in health state descriptions. This item reduction process was based on item performance, factor analysis and Rasch analysis performed on an observational study dataset, and consultation with five clinical experts and a methodological expert. Dimensions were combined into health states using an orthogonal design and valued using time trade-off (TTO), with lead-time TTO methods used where TTO indicated a state valued as worse than dead. Preference weights were estimated using mean, individual level, ordinary least squares and random-effects maximum likelihood estimation [RE (MLE)] regression models. RESULTS: A representative sample of the UK general public (n = 349; mean age 35.8 years, 58.2% female) each valued 12 health states. Mean observed values ranged from 0.92 to 0.16 for best to worst health states. The RE (MLE) model performed best based on number of significant coefficients and mean absolute error of 0.018. Mean utilities predicted by the model covered a similar range to that observed. CONCLUSIONS: The ABC-UI estimates a wide range of utilities from patient-level FXS ABC-C data, allowing estimation of FXS health-related quality of life impact for economic evaluation from an established FXS clinical trial instrument. More... »

PAGES

305-314

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/s11136-014-0759-8

DOI

http://dx.doi.org/10.1007/s11136-014-0759-8

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1050835405

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/25063082


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/17", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Psychology and Cognitive Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Public Health and Health Services", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1701", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Psychology", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Adolescent", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Adult", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Behavior", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Checklist", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Factor Analysis, Statistical", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Female", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Fragile X Syndrome", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Health Status", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Humans", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Likelihood Functions", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Male", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Quality-Adjusted Life Years", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Regression Analysis", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Kerr", 
        "givenName": "Cicely", 
        "id": "sg:person.011254357612.16", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.011254357612.16"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Present Address: University of Birmingham, Birmingham, UK", 
          "id": "http://www.grid.ac/institutes/grid.6572.6", 
          "name": [
            "ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK", 
            "Present Address: University of Birmingham, Birmingham, UK"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Breheny", 
        "givenName": "Katie", 
        "id": "sg:person.0740161604.74", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0740161604.74"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Lloyd", 
        "givenName": "Andrew", 
        "id": "sg:person.015131330322.17", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.015131330322.17"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "School of Health and Related Research (ScHARR), The University of Sheffield, Sheffield, UK", 
          "id": "http://www.grid.ac/institutes/grid.11835.3e", 
          "name": [
            "School of Health and Related Research (ScHARR), The University of Sheffield, Sheffield, UK"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Brazier", 
        "givenName": "John", 
        "id": "sg:person.0633557550.48", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0633557550.48"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "RTI International, Research Triangle Park, NC USA", 
          "id": "http://www.grid.ac/institutes/None", 
          "name": [
            "RTI International, Research Triangle Park, NC USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Bailey", 
        "givenName": "Donald B.", 
        "id": "sg:person.07477115377.43", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.07477115377.43"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Departments of Pediatrics, Neurological Sciences, and Biochemistry, Rush University Medical Center, Chicago, IL USA", 
          "id": "http://www.grid.ac/institutes/grid.240684.c", 
          "name": [
            "Departments of Pediatrics, Neurological Sciences, and Biochemistry, Rush University Medical Center, Chicago, IL USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Berry-Kravis", 
        "givenName": "Elizabeth", 
        "id": "sg:person.01257012130.41", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01257012130.41"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Centre for Developmental Disability Health Victoria, Monash University, Melbourne, Australia", 
          "id": "http://www.grid.ac/institutes/grid.1002.3", 
          "name": [
            "Fragile X Alliance Inc, Melbourne, Australia", 
            "Centre for Developmental Disability Health Victoria, Monash University, Melbourne, Australia"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Cohen", 
        "givenName": "Jonathan", 
        "id": "sg:person.01077763676.06", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01077763676.06"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Novartis AG, Basel, Switzerland", 
          "id": "http://www.grid.ac/institutes/grid.419481.1", 
          "name": [
            "Novartis AG, Basel, Switzerland"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Petrillo", 
        "givenName": "Jennifer", 
        "id": "sg:person.0646240011.36", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0646240011.36"
        ], 
        "type": "Person"
      }
    ], 
    "citation": [
      {
        "id": "sg:pub.10.2165/11597200-000000000-00000", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1021892472", 
          "https://doi.org/10.2165/11597200-000000000-00000"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1097/00125817-200109000-00006", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1007647551", 
          "https://doi.org/10.1097/00125817-200109000-00006"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s11136-010-9648-y", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1035647051", 
          "https://doi.org/10.1007/s11136-010-9648-y"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s11689-010-9067-y", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1044271403", 
          "https://doi.org/10.1007/s11689-010-9067-y"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1186/1471-2377-10-91", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1030682277", 
          "https://doi.org/10.1186/1471-2377-10-91"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s10803-011-1370-2", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1022732103", 
          "https://doi.org/10.1007/s10803-011-1370-2"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1007/s00213-011-2194-7", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1022093081", 
          "https://doi.org/10.1007/s00213-011-2194-7"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1023/b:jadd.0000005999.27178.55", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1048001051", 
          "https://doi.org/10.1023/b:jadd.0000005999.27178.55"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.2165/00019053-199507060-00004", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1004470677", 
          "https://doi.org/10.2165/00019053-199507060-00004"
        ], 
        "type": "CreativeWork"
      }, 
      {
        "id": "sg:pub.10.1038/npp.2011.137", 
        "sameAs": [
          "https://app.dimensions.ai/details/publication/pub.1000014576", 
          "https://doi.org/10.1038/npp.2011.137"
        ], 
        "type": "CreativeWork"
      }
    ], 
    "datePublished": "2014-07-26", 
    "datePublishedReg": "2014-07-26", 
    "description": "PURPOSE: This study aimed to develop a utility index (the ABC-UI) from the Aberrant Behavior Checklist-Community (ABC-C), for use in quantifying the benefit of emerging treatments for fragile X syndrome (FXS).\nMETHODS: The ABC-C is a proxy-completed assessment of behaviour and is a widely used measure in FXS. A subset of ABC-C items across seven dimensions was identified to include in health state descriptions. This item reduction process was based on item performance, factor analysis and Rasch analysis performed on an observational study dataset, and consultation with five clinical experts and a methodological expert. Dimensions were combined into health states using an orthogonal design and valued using time trade-off (TTO), with lead-time TTO methods used where TTO indicated a state valued as worse than dead. Preference weights were estimated using mean, individual level, ordinary least squares and random-effects maximum likelihood estimation [RE (MLE)] regression models.\nRESULTS: A representative sample of the UK general public (n = 349; mean age 35.8 years, 58.2% female) each valued 12 health states. Mean observed values ranged from 0.92 to 0.16 for best to worst health states. The RE (MLE) model performed best based on number of significant coefficients and mean absolute error of 0.018. Mean utilities predicted by the model covered a similar range to that observed.\nCONCLUSIONS: The ABC-UI estimates a wide range of utilities from patient-level FXS ABC-C data, allowing estimation of FXS health-related quality of life impact for economic evaluation from an established FXS clinical trial instrument.", 
    "genre": "article", 
    "id": "sg:pub.10.1007/s11136-014-0759-8", 
    "inLanguage": "en", 
    "isAccessibleForFree": true, 
    "isPartOf": [
      {
        "id": "sg:journal.1102620", 
        "issn": [
          "0962-9343", 
          "1573-2649"
        ], 
        "name": "Quality of Life Research", 
        "publisher": "Springer Nature", 
        "type": "Periodical"
      }, 
      {
        "issueNumber": "2", 
        "type": "PublicationIssue"
      }, 
      {
        "type": "PublicationVolume", 
        "volumeNumber": "24"
      }
    ], 
    "keywords": [
      "health states", 
      "utility index", 
      "ordinary least squares", 
      "health state descriptions", 
      "UK general public", 
      "worst health state", 
      "economic evaluation", 
      "preference weights", 
      "TTO method", 
      "significant coefficients", 
      "RE model", 
      "mean utility", 
      "least squares", 
      "individual level", 
      "state description", 
      "regression models", 
      "TTO", 
      "representative sample", 
      "study dataset", 
      "general public", 
      "life impact", 
      "model", 
      "utility", 
      "impact", 
      "factor analysis", 
      "benefits", 
      "absolute error", 
      "instrument", 
      "index", 
      "measures", 
      "orthogonal design", 
      "state", 
      "estimation", 
      "public", 
      "analysis", 
      "health-related quality", 
      "dimensions", 
      "experts", 
      "dataset", 
      "squares", 
      "methodological experts", 
      "data", 
      "values", 
      "behavior", 
      "items", 
      "quality", 
      "levels", 
      "performance", 
      "wide range", 
      "clinical experts", 
      "observed values", 
      "error", 
      "use", 
      "time", 
      "assessment", 
      "number", 
      "evaluation", 
      "study", 
      "process", 
      "coefficient", 
      "ABC", 
      "samples", 
      "item performance", 
      "method", 
      "range", 
      "design", 
      "consultation", 
      "similar range", 
      "Rasch analysis", 
      "weight", 
      "checklist", 
      "description", 
      "subset", 
      "reduction process", 
      "treatment", 
      "Aberrant Behavior Checklist-Community", 
      "FXS", 
      "Aberrant Behavior Checklist", 
      "Behavior Checklist", 
      "item reduction process", 
      "syndrome", 
      "trial instruments", 
      "Behavior Checklist-Community", 
      "Checklist-Community", 
      "proxy-completed assessment", 
      "subset of ABC", 
      "observational study dataset", 
      "lead-time TTO methods", 
      "random-effects maximum likelihood estimation [RE (MLE)] regression models", 
      "maximum likelihood estimation [RE (MLE)] regression models", 
      "likelihood estimation [RE (MLE)] regression models", 
      "estimation [RE (MLE)] regression models", 
      "ABC-UI", 
      "patient-level FXS ABC", 
      "FXS ABC", 
      "FXS health-related quality", 
      "FXS clinical trial instrument", 
      "clinical trial instrument"
    ], 
    "name": "Developing a utility index for the Aberrant Behavior Checklist (ABC-C) for fragile X syndrome", 
    "pagination": "305-314", 
    "productId": [
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1050835405"
        ]
      }, 
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1007/s11136-014-0759-8"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "25063082"
        ]
      }
    ], 
    "sameAs": [
      "https://doi.org/10.1007/s11136-014-0759-8", 
      "https://app.dimensions.ai/details/publication/pub.1050835405"
    ], 
    "sdDataset": "articles", 
    "sdDatePublished": "2021-12-01T19:32", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-springernature-scigraph/baseset/20211201/entities/gbq_results/article/article_646.jsonl", 
    "type": "ScholarlyArticle", 
    "url": "https://doi.org/10.1007/s11136-014-0759-8"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1007/s11136-014-0759-8'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1007/s11136-014-0759-8'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1007/s11136-014-0759-8'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1007/s11136-014-0759-8'


 

This table displays all metadata directly associated to this object as RDF triples.

328 TRIPLES      22 PREDICATES      149 URIs      129 LITERALS      20 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1007/s11136-014-0759-8 schema:about N051593f2adf94cc19de0930009a4b602
2 N0ab6b39d49b24450b8bfa7d997ce7f5c
3 N1214187da5a8434fabdde0e7714205a6
4 N5a7c32a753ac44e2a7723e3b452ec950
5 N5f40bb04f2c744228c17a36256dc3f56
6 N5feabc52457d4605b9f5eec0ecad766e
7 N661687864ee54b70816f78bd68099f92
8 N76748e2e3cc943ec922cd5639a292aa0
9 N7e6c21b0825447ae9856e6fe30fa0b8c
10 Na444c97ff4844477b391bb8baaf27add
11 Nc5f1cf68b6d2426ca38ff8d65e356a2c
12 Ne63fc938feda44c9aa05135be14089e1
13 Nfe25f87d592443758a3507f2b71e035e
14 anzsrc-for:11
15 anzsrc-for:1117
16 anzsrc-for:17
17 anzsrc-for:1701
18 schema:author N64b78e0112dc4ca09588af9e35821ec6
19 schema:citation sg:pub.10.1007/s00213-011-2194-7
20 sg:pub.10.1007/s10803-011-1370-2
21 sg:pub.10.1007/s11136-010-9648-y
22 sg:pub.10.1007/s11689-010-9067-y
23 sg:pub.10.1023/b:jadd.0000005999.27178.55
24 sg:pub.10.1038/npp.2011.137
25 sg:pub.10.1097/00125817-200109000-00006
26 sg:pub.10.1186/1471-2377-10-91
27 sg:pub.10.2165/00019053-199507060-00004
28 sg:pub.10.2165/11597200-000000000-00000
29 schema:datePublished 2014-07-26
30 schema:datePublishedReg 2014-07-26
31 schema:description PURPOSE: This study aimed to develop a utility index (the ABC-UI) from the Aberrant Behavior Checklist-Community (ABC-C), for use in quantifying the benefit of emerging treatments for fragile X syndrome (FXS). METHODS: The ABC-C is a proxy-completed assessment of behaviour and is a widely used measure in FXS. A subset of ABC-C items across seven dimensions was identified to include in health state descriptions. This item reduction process was based on item performance, factor analysis and Rasch analysis performed on an observational study dataset, and consultation with five clinical experts and a methodological expert. Dimensions were combined into health states using an orthogonal design and valued using time trade-off (TTO), with lead-time TTO methods used where TTO indicated a state valued as worse than dead. Preference weights were estimated using mean, individual level, ordinary least squares and random-effects maximum likelihood estimation [RE (MLE)] regression models. RESULTS: A representative sample of the UK general public (n = 349; mean age 35.8 years, 58.2% female) each valued 12 health states. Mean observed values ranged from 0.92 to 0.16 for best to worst health states. The RE (MLE) model performed best based on number of significant coefficients and mean absolute error of 0.018. Mean utilities predicted by the model covered a similar range to that observed. CONCLUSIONS: The ABC-UI estimates a wide range of utilities from patient-level FXS ABC-C data, allowing estimation of FXS health-related quality of life impact for economic evaluation from an established FXS clinical trial instrument.
32 schema:genre article
33 schema:inLanguage en
34 schema:isAccessibleForFree true
35 schema:isPartOf N0c16e7685505482eb4fdd6cda6d19ea7
36 Nda9964fdc42747c0996a2e6ee8931cdf
37 sg:journal.1102620
38 schema:keywords ABC
39 ABC-UI
40 Aberrant Behavior Checklist
41 Aberrant Behavior Checklist-Community
42 Behavior Checklist
43 Behavior Checklist-Community
44 Checklist-Community
45 FXS
46 FXS ABC
47 FXS clinical trial instrument
48 FXS health-related quality
49 RE model
50 Rasch analysis
51 TTO
52 TTO method
53 UK general public
54 absolute error
55 analysis
56 assessment
57 behavior
58 benefits
59 checklist
60 clinical experts
61 clinical trial instrument
62 coefficient
63 consultation
64 data
65 dataset
66 description
67 design
68 dimensions
69 economic evaluation
70 error
71 estimation
72 estimation [RE (MLE)] regression models
73 evaluation
74 experts
75 factor analysis
76 general public
77 health state descriptions
78 health states
79 health-related quality
80 impact
81 index
82 individual level
83 instrument
84 item performance
85 item reduction process
86 items
87 lead-time TTO methods
88 least squares
89 levels
90 life impact
91 likelihood estimation [RE (MLE)] regression models
92 maximum likelihood estimation [RE (MLE)] regression models
93 mean utility
94 measures
95 method
96 methodological experts
97 model
98 number
99 observational study dataset
100 observed values
101 ordinary least squares
102 orthogonal design
103 patient-level FXS ABC
104 performance
105 preference weights
106 process
107 proxy-completed assessment
108 public
109 quality
110 random-effects maximum likelihood estimation [RE (MLE)] regression models
111 range
112 reduction process
113 regression models
114 representative sample
115 samples
116 significant coefficients
117 similar range
118 squares
119 state
120 state description
121 study
122 study dataset
123 subset
124 subset of ABC
125 syndrome
126 time
127 treatment
128 trial instruments
129 use
130 utility
131 utility index
132 values
133 weight
134 wide range
135 worst health state
136 schema:name Developing a utility index for the Aberrant Behavior Checklist (ABC-C) for fragile X syndrome
137 schema:pagination 305-314
138 schema:productId N5fea1ca5226c4411b82ee6df79059b41
139 N8b7128120cd6476d9ef0ccca406e6e8b
140 N9cece63265a54d369cb8bbb4ff9b19a1
141 schema:sameAs https://app.dimensions.ai/details/publication/pub.1050835405
142 https://doi.org/10.1007/s11136-014-0759-8
143 schema:sdDatePublished 2021-12-01T19:32
144 schema:sdLicense https://scigraph.springernature.com/explorer/license/
145 schema:sdPublisher Nd76639e0bb2e4627b555d5d3e5072e8d
146 schema:url https://doi.org/10.1007/s11136-014-0759-8
147 sgo:license sg:explorer/license/
148 sgo:sdDataset articles
149 rdf:type schema:ScholarlyArticle
150 N051593f2adf94cc19de0930009a4b602 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
151 schema:name Adolescent
152 rdf:type schema:DefinedTerm
153 N09039217ecc940c891268ea8eb1a5efa rdf:first sg:person.01077763676.06
154 rdf:rest Nd12d9df9c9084073b949ca6ad8586ee3
155 N0ab6b39d49b24450b8bfa7d997ce7f5c schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
156 schema:name Behavior
157 rdf:type schema:DefinedTerm
158 N0c16e7685505482eb4fdd6cda6d19ea7 schema:issueNumber 2
159 rdf:type schema:PublicationIssue
160 N0d84939275eb4b03be4fb9b4ebff9bd5 rdf:first sg:person.015131330322.17
161 rdf:rest N30e467881c734fc8a3d71c7fafc10294
162 N1214187da5a8434fabdde0e7714205a6 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
163 schema:name Adult
164 rdf:type schema:DefinedTerm
165 N30e467881c734fc8a3d71c7fafc10294 rdf:first sg:person.0633557550.48
166 rdf:rest Nfa862789d24d4df5b20bbd0b731da08b
167 N5a7c32a753ac44e2a7723e3b452ec950 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
168 schema:name Quality-Adjusted Life Years
169 rdf:type schema:DefinedTerm
170 N5f40bb04f2c744228c17a36256dc3f56 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
171 schema:name Male
172 rdf:type schema:DefinedTerm
173 N5fea1ca5226c4411b82ee6df79059b41 schema:name doi
174 schema:value 10.1007/s11136-014-0759-8
175 rdf:type schema:PropertyValue
176 N5feabc52457d4605b9f5eec0ecad766e schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
177 schema:name Health Status
178 rdf:type schema:DefinedTerm
179 N61836b5eae624043b9b51a5be9d18db5 rdf:first sg:person.0740161604.74
180 rdf:rest N0d84939275eb4b03be4fb9b4ebff9bd5
181 N64b78e0112dc4ca09588af9e35821ec6 rdf:first sg:person.011254357612.16
182 rdf:rest N61836b5eae624043b9b51a5be9d18db5
183 N661687864ee54b70816f78bd68099f92 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
184 schema:name Factor Analysis, Statistical
185 rdf:type schema:DefinedTerm
186 N76748e2e3cc943ec922cd5639a292aa0 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
187 schema:name Humans
188 rdf:type schema:DefinedTerm
189 N7e6c21b0825447ae9856e6fe30fa0b8c schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
190 schema:name Checklist
191 rdf:type schema:DefinedTerm
192 N8b7128120cd6476d9ef0ccca406e6e8b schema:name dimensions_id
193 schema:value pub.1050835405
194 rdf:type schema:PropertyValue
195 N9cece63265a54d369cb8bbb4ff9b19a1 schema:name pubmed_id
196 schema:value 25063082
197 rdf:type schema:PropertyValue
198 Na444c97ff4844477b391bb8baaf27add schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
199 schema:name Female
200 rdf:type schema:DefinedTerm
201 Nc5f1cf68b6d2426ca38ff8d65e356a2c schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
202 schema:name Regression Analysis
203 rdf:type schema:DefinedTerm
204 Nd12d9df9c9084073b949ca6ad8586ee3 rdf:first sg:person.0646240011.36
205 rdf:rest rdf:nil
206 Nd76639e0bb2e4627b555d5d3e5072e8d schema:name Springer Nature - SN SciGraph project
207 rdf:type schema:Organization
208 Nda9964fdc42747c0996a2e6ee8931cdf schema:volumeNumber 24
209 rdf:type schema:PublicationVolume
210 Ne63fc938feda44c9aa05135be14089e1 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
211 schema:name Fragile X Syndrome
212 rdf:type schema:DefinedTerm
213 Nf9c8f1822c1e45fd817bf803f9aafd73 rdf:first sg:person.01257012130.41
214 rdf:rest N09039217ecc940c891268ea8eb1a5efa
215 Nfa862789d24d4df5b20bbd0b731da08b rdf:first sg:person.07477115377.43
216 rdf:rest Nf9c8f1822c1e45fd817bf803f9aafd73
217 Nfe25f87d592443758a3507f2b71e035e schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
218 schema:name Likelihood Functions
219 rdf:type schema:DefinedTerm
220 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
221 schema:name Medical and Health Sciences
222 rdf:type schema:DefinedTerm
223 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
224 schema:name Public Health and Health Services
225 rdf:type schema:DefinedTerm
226 anzsrc-for:17 schema:inDefinedTermSet anzsrc-for:
227 schema:name Psychology and Cognitive Sciences
228 rdf:type schema:DefinedTerm
229 anzsrc-for:1701 schema:inDefinedTermSet anzsrc-for:
230 schema:name Psychology
231 rdf:type schema:DefinedTerm
232 sg:journal.1102620 schema:issn 0962-9343
233 1573-2649
234 schema:name Quality of Life Research
235 schema:publisher Springer Nature
236 rdf:type schema:Periodical
237 sg:person.01077763676.06 schema:affiliation grid-institutes:grid.1002.3
238 schema:familyName Cohen
239 schema:givenName Jonathan
240 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01077763676.06
241 rdf:type schema:Person
242 sg:person.011254357612.16 schema:affiliation grid-institutes:None
243 schema:familyName Kerr
244 schema:givenName Cicely
245 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.011254357612.16
246 rdf:type schema:Person
247 sg:person.01257012130.41 schema:affiliation grid-institutes:grid.240684.c
248 schema:familyName Berry-Kravis
249 schema:givenName Elizabeth
250 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01257012130.41
251 rdf:type schema:Person
252 sg:person.015131330322.17 schema:affiliation grid-institutes:None
253 schema:familyName Lloyd
254 schema:givenName Andrew
255 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.015131330322.17
256 rdf:type schema:Person
257 sg:person.0633557550.48 schema:affiliation grid-institutes:grid.11835.3e
258 schema:familyName Brazier
259 schema:givenName John
260 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0633557550.48
261 rdf:type schema:Person
262 sg:person.0646240011.36 schema:affiliation grid-institutes:grid.419481.1
263 schema:familyName Petrillo
264 schema:givenName Jennifer
265 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0646240011.36
266 rdf:type schema:Person
267 sg:person.0740161604.74 schema:affiliation grid-institutes:grid.6572.6
268 schema:familyName Breheny
269 schema:givenName Katie
270 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0740161604.74
271 rdf:type schema:Person
272 sg:person.07477115377.43 schema:affiliation grid-institutes:None
273 schema:familyName Bailey
274 schema:givenName Donald B.
275 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.07477115377.43
276 rdf:type schema:Person
277 sg:pub.10.1007/s00213-011-2194-7 schema:sameAs https://app.dimensions.ai/details/publication/pub.1022093081
278 https://doi.org/10.1007/s00213-011-2194-7
279 rdf:type schema:CreativeWork
280 sg:pub.10.1007/s10803-011-1370-2 schema:sameAs https://app.dimensions.ai/details/publication/pub.1022732103
281 https://doi.org/10.1007/s10803-011-1370-2
282 rdf:type schema:CreativeWork
283 sg:pub.10.1007/s11136-010-9648-y schema:sameAs https://app.dimensions.ai/details/publication/pub.1035647051
284 https://doi.org/10.1007/s11136-010-9648-y
285 rdf:type schema:CreativeWork
286 sg:pub.10.1007/s11689-010-9067-y schema:sameAs https://app.dimensions.ai/details/publication/pub.1044271403
287 https://doi.org/10.1007/s11689-010-9067-y
288 rdf:type schema:CreativeWork
289 sg:pub.10.1023/b:jadd.0000005999.27178.55 schema:sameAs https://app.dimensions.ai/details/publication/pub.1048001051
290 https://doi.org/10.1023/b:jadd.0000005999.27178.55
291 rdf:type schema:CreativeWork
292 sg:pub.10.1038/npp.2011.137 schema:sameAs https://app.dimensions.ai/details/publication/pub.1000014576
293 https://doi.org/10.1038/npp.2011.137
294 rdf:type schema:CreativeWork
295 sg:pub.10.1097/00125817-200109000-00006 schema:sameAs https://app.dimensions.ai/details/publication/pub.1007647551
296 https://doi.org/10.1097/00125817-200109000-00006
297 rdf:type schema:CreativeWork
298 sg:pub.10.1186/1471-2377-10-91 schema:sameAs https://app.dimensions.ai/details/publication/pub.1030682277
299 https://doi.org/10.1186/1471-2377-10-91
300 rdf:type schema:CreativeWork
301 sg:pub.10.2165/00019053-199507060-00004 schema:sameAs https://app.dimensions.ai/details/publication/pub.1004470677
302 https://doi.org/10.2165/00019053-199507060-00004
303 rdf:type schema:CreativeWork
304 sg:pub.10.2165/11597200-000000000-00000 schema:sameAs https://app.dimensions.ai/details/publication/pub.1021892472
305 https://doi.org/10.2165/11597200-000000000-00000
306 rdf:type schema:CreativeWork
307 grid-institutes:None schema:alternateName ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK
308 RTI International, Research Triangle Park, NC USA
309 schema:name ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK
310 RTI International, Research Triangle Park, NC USA
311 rdf:type schema:Organization
312 grid-institutes:grid.1002.3 schema:alternateName Centre for Developmental Disability Health Victoria, Monash University, Melbourne, Australia
313 schema:name Centre for Developmental Disability Health Victoria, Monash University, Melbourne, Australia
314 Fragile X Alliance Inc, Melbourne, Australia
315 rdf:type schema:Organization
316 grid-institutes:grid.11835.3e schema:alternateName School of Health and Related Research (ScHARR), The University of Sheffield, Sheffield, UK
317 schema:name School of Health and Related Research (ScHARR), The University of Sheffield, Sheffield, UK
318 rdf:type schema:Organization
319 grid-institutes:grid.240684.c schema:alternateName Departments of Pediatrics, Neurological Sciences, and Biochemistry, Rush University Medical Center, Chicago, IL USA
320 schema:name Departments of Pediatrics, Neurological Sciences, and Biochemistry, Rush University Medical Center, Chicago, IL USA
321 rdf:type schema:Organization
322 grid-institutes:grid.419481.1 schema:alternateName Novartis AG, Basel, Switzerland
323 schema:name Novartis AG, Basel, Switzerland
324 rdf:type schema:Organization
325 grid-institutes:grid.6572.6 schema:alternateName Present Address: University of Birmingham, Birmingham, UK
326 schema:name ICON Patient Reported Outcomes, Seacourt Tower, West Way, Oxford, OX2 0JJ UK
327 Present Address: University of Birmingham, Birmingham, UK
328 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...