Feasibility of Conducting Long-Term Follow-Up of Children and Infants Treated for CNS Tumors on the Same Cooperative Group Clinical Trial ... View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2014-06

AUTHORS

Jennifer Hoag, Mary Jo Kupst, Marie-Eve Briere, Donald Mabbott, T. David Elkin, Christine L. Trask, Jill Isenberg, Suzanne Holm, Cheryl Ambler, Douglas R. Strother

ABSTRACT

Given the barriers to conducting long-term assessment of neurocognitive and psychosocial functioning of those treated in infancy for central nervous system (CNS) tumors, a multi-site feasibility study was conducted. The primary objective was to demonstrate that it is feasible to identify, locate and assess the functioning of children treated on the same protocol 10-years post-treatment. Six sites obtained institutional approval, identified and recruited subjects, and obtained comprehensive neurocognitive and psychosocial data. All feasibility objectives were met. Barriers to participation included length of time for Institutional Review Board submission and review, clinical demands, limited eligible participants at individual institutions, difficulty locating long-term subjects and stipend/reimbursement concerns. Results indicate that long-term studies are feasible and essential given the need to address long-term issues of children treated at a young age for CNS tumors, especially as they relate to later academic and vocational planning, but require significant coordination and commitment of cooperative group and institutional resources. More... »

PAGES

136-143

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/s10880-014-9391-6

DOI

http://dx.doi.org/10.1007/s10880-014-9391-6

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1043652897

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/24668336


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Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1007/s10880-014-9391-6'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1007/s10880-014-9391-6'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1007/s10880-014-9391-6'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1007/s10880-014-9391-6'


 

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328 schema:name Department of Pediatrics, Hematology/Oncology/Bone Marrow Transplant, Medical College of Wisconsin, 8701 Watertown Plank Road, MFRC 3018, 53226, Milwaukee, WI, USA
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330 https://www.grid.ac/institutes/grid.39382.33 schema:alternateName Baylor College of Medicine
331 schema:name Psychology Service, Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA
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333 https://www.grid.ac/institutes/grid.40263.33 schema:alternateName Brown University
334 schema:name Department of Psychiatry and Human Behavior, The Warren Alpert Medical School of Brown University, Providence, RI, USA
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338 schema:name Department of Psychiatry, University of Mississippi Medical Center, Jackson, MS, USA
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340 https://www.grid.ac/institutes/grid.4367.6 schema:alternateName Washington University in St. Louis
341 schema:name Department of Neurology, Washington University in St. Louis School of Medicine, Saint Louis, MO, USA
342 Department of Psychology, St. Louis Children’s Hospital, Washington University in St. Louis School of Medicine, Saint Louis, MO, USA
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