Parent Perspectives Towards Genetic and Epigenetic Testing for Autism Spectrum Disorder View Full Text


Ontology type: schema:ScholarlyArticle     


Article Info

DATE

2019-03-22

AUTHORS

Kayla E. Wagner, Jennifer B. McCormick, Sarah Barns, Molly Carney, Frank A. Middleton, Steven D. Hicks

ABSTRACT

Examining community views on genetic/epigenetic research allows collaborative technology development. Parent perspectives toward genetic/epigenetic testing for autism spectrum disorder (ASD) are not well-studied. Parents of children with ASD (n = 131), non-ASD developmental delay (n = 39), and typical development (n = 74) completed surveys assessing genetic/epigenetic knowledge, genetic/epigenetic concerns, motives for research participation, and attitudes/preferences toward ASD testing. Most parents (96%) were interested in saliva-based molecular testing for ASD. Some had concerns about privacy (14%) and insurance-status (10%). None (0%) doubted scientific evidence behind genetic/epigenetic testing. Most reported familiarity with genetics (88%), but few understood differences from epigenetics (19%). Child developmental status impacted insurance concerns (p = 0.01). There is broad parent interest in a genetic/epigenetic test for ASD. It will be crucial to carefully consider and address bioethical issues surrounding this sensitive topic while developing such technology. More... »

PAGES

1-12

References to SciGraph publications

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/s10803-019-03990-6

DOI

http://dx.doi.org/10.1007/s10803-019-03990-6

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1112944932

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/30903561


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