Responders and non-responders in a study on medical end-of-life decisions in Denmark, the Netherlands, Sweden and Switzerland View Full Text


Ontology type: schema:ScholarlyArticle      Open Access: True


Article Info

DATE

2006-01

AUTHORS

Susanne Fischer, Guido Miccinesi, Rainer Hornung, Georg Bosshard, Luc Deliens, Agnes van der Heide, Tore Nilstun, Michael Norup, Bregje D. Onwuteaka-Philipsen, On behalf of the EURELD consortium

ABSTRACT

Summary.Objectives: To determine the direction and magnitude of participation bias in end-of-life research.Methods: Within the framework of a European survey on medical end-of-life decisions, a non-response study was conducted among physicians in Denmark, the Netherlands, Sweden and Switzerland. People were asked about their attitudes and experiences in the area of medial end-of-life decision. The response rates ranged from 12.8% (Netherlands) to 39.4% (Switzerland). The responders (n = 5 403) and the non-responders (n = 866) were compared regarding socio-demographic characteristics, experiences with terminal patients and agreement with attitudes towards “end-of-life decisions”. The reasons for non-participation to the study were analyzed.Results: Non-response did not cause socio-demographic distortion, but non-responders had statistically significantly fewer terminal patients than responders. Agreement rates were statistically significantly higher among responders than among non-responders for euthanasia, non-treatment decision and life-preserving statements. Neutral answers were statistically significantly more frequent among non-responders than among responders for life-preserving and euthanasia statements. The most commonly mentioned reason for non-participation was “lack of time”.Conclusion: Non-participation does cause an overestimation of proponents of life-shortening, as well as of life-preserving end-of-life decisions. Non-responders more often have ambiguous attitudes towards end-of-life decisions than responders. More... »

PAGES

24-33

References to SciGraph publications

  • 1995-08. Volunteer bias in sexuality research in ARCHIVES OF SEXUAL BEHAVIOR
  • 1992-06. Secular trends and sociodemographic regularities of coital debut age in Norway in ARCHIVES OF SEXUAL BEHAVIOR
  • Identifiers

    URI

    http://scigraph.springernature.com/pub.10.1007/s00038-005-0004-x

    DOI

    http://dx.doi.org/10.1007/s00038-005-0004-x

    DIMENSIONS

    https://app.dimensions.ai/details/publication/pub.1010381402

    PUBMED

    https://www.ncbi.nlm.nih.gov/pubmed/16898235


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