Assessing Health-Related Quality of Life in Disorders of Sex Development: Phase I – Item Generation View Full Text


Ontology type: schema:Chapter     


Chapter Info

DATE

2011-06-06

AUTHORS

David E. Sandberg , Melissa D. Gardner , Barry A. Kogan , Mary Beth Grimley , Laura Cohen , Adrianne N. Alpern , Alexandra L. Quittner

ABSTRACT

Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical [1]. Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation. More... »

PAGES

143-146

Identifiers

URI

http://scigraph.springernature.com/pub.10.1007/978-1-4419-8002-1_31

DOI

http://dx.doi.org/10.1007/978-1-4419-8002-1_31

DIMENSIONS

https://app.dimensions.ai/details/publication/pub.1017103181

PUBMED

https://www.ncbi.nlm.nih.gov/pubmed/21691973


Indexing Status Check whether this publication has been indexed by Scopus and Web Of Science using the SN Indexing Status Tool
Incoming Citations Browse incoming citations for this publication using opencitations.net

JSON-LD is the canonical representation for SciGraph data.

TIP: You can open this SciGraph record using an external JSON-LD service: JSON-LD Playground Google SDTT

[
  {
    "@context": "https://springernature.github.io/scigraph/jsonld/sgcontext.json", 
    "about": [
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/11", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Medical and Health Sciences", 
        "type": "DefinedTerm"
      }, 
      {
        "id": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/1117", 
        "inDefinedTermSet": "http://purl.org/au-research/vocabulary/anzsrc-for/2008/", 
        "name": "Public Health and Health Services", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Child", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Child, Preschool", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Disorders of Sex Development", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Focus Groups", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Humans", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Infant", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Infant, Newborn", 
        "type": "DefinedTerm"
      }, 
      {
        "inDefinedTermSet": "https://www.nlm.nih.gov/mesh/", 
        "name": "Quality of Life", 
        "type": "DefinedTerm"
      }
    ], 
    "author": [
      {
        "affiliation": {
          "alternateName": "Division of Child and Behavioral Health, Department of Pediatrics & Communicable Diseases, University of Michigan, Ann Arbor, MI, USA", 
          "id": "http://www.grid.ac/institutes/grid.214458.e", 
          "name": [
            "Division of Child and Behavioral Health, Department of Pediatrics & Communicable Diseases, University of Michigan, Ann Arbor, MI, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Sandberg", 
        "givenName": "David E.", 
        "id": "sg:person.01254140175.85", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01254140175.85"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Michigan, Ann Arbor, MI, USA", 
          "id": "http://www.grid.ac/institutes/grid.214458.e", 
          "name": [
            "University of Michigan, Ann Arbor, MI, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Gardner", 
        "givenName": "Melissa D.", 
        "id": "sg:person.01162003002.61", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01162003002.61"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "Albany Medical College, Albany, NY, USA", 
          "id": "http://www.grid.ac/institutes/grid.413558.e", 
          "name": [
            "Albany Medical College, Albany, NY, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Kogan", 
        "givenName": "Barry A.", 
        "id": "sg:person.01257435113.04", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01257435113.04"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Miami, Miami, FL, USA", 
          "id": "http://www.grid.ac/institutes/grid.26790.3a", 
          "name": [
            "University of Miami, Miami, FL, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Grimley", 
        "givenName": "Mary Beth", 
        "id": "sg:person.0677176767.42", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0677176767.42"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Miami, Miami, FL, USA", 
          "id": "http://www.grid.ac/institutes/grid.26790.3a", 
          "name": [
            "University of Miami, Miami, FL, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Cohen", 
        "givenName": "Laura", 
        "id": "sg:person.0631063567.68", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0631063567.68"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Miami, Miami, FL, USA", 
          "id": "http://www.grid.ac/institutes/grid.26790.3a", 
          "name": [
            "University of Miami, Miami, FL, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Alpern", 
        "givenName": "Adrianne N.", 
        "id": "sg:person.01354467667.92", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01354467667.92"
        ], 
        "type": "Person"
      }, 
      {
        "affiliation": {
          "alternateName": "University of Miami, Miami, FL, USA", 
          "id": "http://www.grid.ac/institutes/grid.26790.3a", 
          "name": [
            "University of Miami, Miami, FL, USA"
          ], 
          "type": "Organization"
        }, 
        "familyName": "Quittner", 
        "givenName": "Alexandra L.", 
        "id": "sg:person.016713410377.45", 
        "sameAs": [
          "https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.016713410377.45"
        ], 
        "type": "Person"
      }
    ], 
    "datePublished": "2011-06-06", 
    "datePublishedReg": "2011-06-06", 
    "description": "Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical [1]. Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation.", 
    "editor": [
      {
        "familyName": "New", 
        "givenName": "Maria I.", 
        "type": "Person"
      }, 
      {
        "familyName": "Simpson", 
        "givenName": "Joe Leigh", 
        "type": "Person"
      }
    ], 
    "genre": "chapter", 
    "id": "sg:pub.10.1007/978-1-4419-8002-1_31", 
    "isAccessibleForFree": false, 
    "isPartOf": {
      "isbn": [
        "978-1-4419-8001-4", 
        "978-1-4419-8002-1"
      ], 
      "name": "Hormonal and Genetic Basis of Sexual Differentiation Disorders and Hot Topics in Endocrinology: Proceedings of the 2nd World Conference", 
      "type": "Book"
    }, 
    "keywords": [
      "sex development", 
      "process of adaptation", 
      "family", 
      "adaptation", 
      "development", 
      "gonadal", 
      "DSD", 
      "disorders", 
      "congenital condition", 
      "generation", 
      "process", 
      "conditions", 
      "data", 
      "report", 
      "health", 
      "life", 
      "quality", 
      "experiences of children", 
      "quality of life", 
      "retrospective reports", 
      "children", 
      "experience"
    ], 
    "name": "Assessing Health-Related Quality of Life in Disorders of Sex Development: Phase I \u2013 Item Generation", 
    "pagination": "143-146", 
    "productId": [
      {
        "name": "dimensions_id", 
        "type": "PropertyValue", 
        "value": [
          "pub.1017103181"
        ]
      }, 
      {
        "name": "doi", 
        "type": "PropertyValue", 
        "value": [
          "10.1007/978-1-4419-8002-1_31"
        ]
      }, 
      {
        "name": "pubmed_id", 
        "type": "PropertyValue", 
        "value": [
          "21691973"
        ]
      }
    ], 
    "publisher": {
      "name": "Springer Nature", 
      "type": "Organisation"
    }, 
    "sameAs": [
      "https://doi.org/10.1007/978-1-4419-8002-1_31", 
      "https://app.dimensions.ai/details/publication/pub.1017103181"
    ], 
    "sdDataset": "chapters", 
    "sdDatePublished": "2022-11-24T21:20", 
    "sdLicense": "https://scigraph.springernature.com/explorer/license/", 
    "sdPublisher": {
      "name": "Springer Nature - SN SciGraph project", 
      "type": "Organization"
    }, 
    "sdSource": "s3://com-springernature-scigraph/baseset/20221124/entities/gbq_results/chapter/chapter_75.jsonl", 
    "type": "Chapter", 
    "url": "https://doi.org/10.1007/978-1-4419-8002-1_31"
  }
]
 

Download the RDF metadata as:  json-ld nt turtle xml License info

HOW TO GET THIS DATA PROGRAMMATICALLY:

JSON-LD is a popular format for linked data which is fully compatible with JSON.

curl -H 'Accept: application/ld+json' 'https://scigraph.springernature.com/pub.10.1007/978-1-4419-8002-1_31'

N-Triples is a line-based linked data format ideal for batch operations.

curl -H 'Accept: application/n-triples' 'https://scigraph.springernature.com/pub.10.1007/978-1-4419-8002-1_31'

Turtle is a human-readable linked data format.

curl -H 'Accept: text/turtle' 'https://scigraph.springernature.com/pub.10.1007/978-1-4419-8002-1_31'

RDF/XML is a standard XML format for linked data.

curl -H 'Accept: application/rdf+xml' 'https://scigraph.springernature.com/pub.10.1007/978-1-4419-8002-1_31'


 

This table displays all metadata directly associated to this object as RDF triples.

172 TRIPLES      22 PREDICATES      55 URIs      48 LITERALS      16 BLANK NODES

Subject Predicate Object
1 sg:pub.10.1007/978-1-4419-8002-1_31 schema:about N04eb611f41f84d0e8585f1fe7337d5d7
2 N22ab1663ca1e4c0290789360ed5e5d5e
3 N25f312116268463d85442108f0eb2c1f
4 N57f6b7acb23d4bec98bfe2220b949cf8
5 N59d31543fe9345ec82562260bf947e0c
6 Ne8325a0c489249d297e27f332ee0ce49
7 Ne9f5ffe4831f4c31ad41bdca2b4c77ca
8 Nef52a4296a2f4148b8e82a47df7df7a0
9 anzsrc-for:11
10 anzsrc-for:1117
11 schema:author N73e76681f34743c38738a1cf61e3471c
12 schema:datePublished 2011-06-06
13 schema:datePublishedReg 2011-06-06
14 schema:description Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical [1]. Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation.
15 schema:editor N9a4d25dba4524c4b9181081e239ee43b
16 schema:genre chapter
17 schema:isAccessibleForFree false
18 schema:isPartOf N54b00c8aeb7247e0be5e579a59c03e1c
19 schema:keywords DSD
20 adaptation
21 children
22 conditions
23 congenital condition
24 data
25 development
26 disorders
27 experience
28 experiences of children
29 family
30 generation
31 gonadal
32 health
33 life
34 process
35 process of adaptation
36 quality
37 quality of life
38 report
39 retrospective reports
40 sex development
41 schema:name Assessing Health-Related Quality of Life in Disorders of Sex Development: Phase I – Item Generation
42 schema:pagination 143-146
43 schema:productId N41af29dbf0544c668425193492715b04
44 N614202bff6304ba6a85c93fc337669ee
45 Nc2cdf4f342ab4e9b95e5748a2fcaeba1
46 schema:publisher Na66fdedc8a604f46848a0836b6378794
47 schema:sameAs https://app.dimensions.ai/details/publication/pub.1017103181
48 https://doi.org/10.1007/978-1-4419-8002-1_31
49 schema:sdDatePublished 2022-11-24T21:20
50 schema:sdLicense https://scigraph.springernature.com/explorer/license/
51 schema:sdPublisher Nef8478179ca3481c8944b26f1ddbe194
52 schema:url https://doi.org/10.1007/978-1-4419-8002-1_31
53 sgo:license sg:explorer/license/
54 sgo:sdDataset chapters
55 rdf:type schema:Chapter
56 N04eb611f41f84d0e8585f1fe7337d5d7 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
57 schema:name Focus Groups
58 rdf:type schema:DefinedTerm
59 N0ebb180f766e4463ae908df87bf8b1a9 rdf:first sg:person.01162003002.61
60 rdf:rest N6f29958462c14b0590b648808e61d360
61 N22ab1663ca1e4c0290789360ed5e5d5e schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
62 schema:name Humans
63 rdf:type schema:DefinedTerm
64 N25f312116268463d85442108f0eb2c1f schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
65 schema:name Child, Preschool
66 rdf:type schema:DefinedTerm
67 N26c3e5c90d1d46d482d8b0138e1b22f0 rdf:first sg:person.0677176767.42
68 rdf:rest Nc3cc9eb245244e4d825d5086f56a1e51
69 N395b0ca4db69410181381f7d97fb6c14 rdf:first sg:person.016713410377.45
70 rdf:rest rdf:nil
71 N41af29dbf0544c668425193492715b04 schema:name pubmed_id
72 schema:value 21691973
73 rdf:type schema:PropertyValue
74 N54b00c8aeb7247e0be5e579a59c03e1c schema:isbn 978-1-4419-8001-4
75 978-1-4419-8002-1
76 schema:name Hormonal and Genetic Basis of Sexual Differentiation Disorders and Hot Topics in Endocrinology: Proceedings of the 2nd World Conference
77 rdf:type schema:Book
78 N57f6b7acb23d4bec98bfe2220b949cf8 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
79 schema:name Disorders of Sex Development
80 rdf:type schema:DefinedTerm
81 N59d31543fe9345ec82562260bf947e0c schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
82 schema:name Infant
83 rdf:type schema:DefinedTerm
84 N614202bff6304ba6a85c93fc337669ee schema:name dimensions_id
85 schema:value pub.1017103181
86 rdf:type schema:PropertyValue
87 N6f29958462c14b0590b648808e61d360 rdf:first sg:person.01257435113.04
88 rdf:rest N26c3e5c90d1d46d482d8b0138e1b22f0
89 N73e76681f34743c38738a1cf61e3471c rdf:first sg:person.01254140175.85
90 rdf:rest N0ebb180f766e4463ae908df87bf8b1a9
91 N9a4d25dba4524c4b9181081e239ee43b rdf:first Ne2669247faca41fb8e2e8a7caab7aeec
92 rdf:rest Na28c3b00bb374df886bfa36ebe9bdb78
93 Na28c3b00bb374df886bfa36ebe9bdb78 rdf:first Nd6f26a67f52e45d8869e6f54c9175420
94 rdf:rest rdf:nil
95 Na66fdedc8a604f46848a0836b6378794 schema:name Springer Nature
96 rdf:type schema:Organisation
97 Nbb67009f5cca4a3ea536cebabacf4e82 rdf:first sg:person.01354467667.92
98 rdf:rest N395b0ca4db69410181381f7d97fb6c14
99 Nc2cdf4f342ab4e9b95e5748a2fcaeba1 schema:name doi
100 schema:value 10.1007/978-1-4419-8002-1_31
101 rdf:type schema:PropertyValue
102 Nc3cc9eb245244e4d825d5086f56a1e51 rdf:first sg:person.0631063567.68
103 rdf:rest Nbb67009f5cca4a3ea536cebabacf4e82
104 Nd6f26a67f52e45d8869e6f54c9175420 schema:familyName Simpson
105 schema:givenName Joe Leigh
106 rdf:type schema:Person
107 Ne2669247faca41fb8e2e8a7caab7aeec schema:familyName New
108 schema:givenName Maria I.
109 rdf:type schema:Person
110 Ne8325a0c489249d297e27f332ee0ce49 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
111 schema:name Child
112 rdf:type schema:DefinedTerm
113 Ne9f5ffe4831f4c31ad41bdca2b4c77ca schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
114 schema:name Quality of Life
115 rdf:type schema:DefinedTerm
116 Nef52a4296a2f4148b8e82a47df7df7a0 schema:inDefinedTermSet https://www.nlm.nih.gov/mesh/
117 schema:name Infant, Newborn
118 rdf:type schema:DefinedTerm
119 Nef8478179ca3481c8944b26f1ddbe194 schema:name Springer Nature - SN SciGraph project
120 rdf:type schema:Organization
121 anzsrc-for:11 schema:inDefinedTermSet anzsrc-for:
122 schema:name Medical and Health Sciences
123 rdf:type schema:DefinedTerm
124 anzsrc-for:1117 schema:inDefinedTermSet anzsrc-for:
125 schema:name Public Health and Health Services
126 rdf:type schema:DefinedTerm
127 sg:person.01162003002.61 schema:affiliation grid-institutes:grid.214458.e
128 schema:familyName Gardner
129 schema:givenName Melissa D.
130 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01162003002.61
131 rdf:type schema:Person
132 sg:person.01254140175.85 schema:affiliation grid-institutes:grid.214458.e
133 schema:familyName Sandberg
134 schema:givenName David E.
135 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01254140175.85
136 rdf:type schema:Person
137 sg:person.01257435113.04 schema:affiliation grid-institutes:grid.413558.e
138 schema:familyName Kogan
139 schema:givenName Barry A.
140 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01257435113.04
141 rdf:type schema:Person
142 sg:person.01354467667.92 schema:affiliation grid-institutes:grid.26790.3a
143 schema:familyName Alpern
144 schema:givenName Adrianne N.
145 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.01354467667.92
146 rdf:type schema:Person
147 sg:person.016713410377.45 schema:affiliation grid-institutes:grid.26790.3a
148 schema:familyName Quittner
149 schema:givenName Alexandra L.
150 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.016713410377.45
151 rdf:type schema:Person
152 sg:person.0631063567.68 schema:affiliation grid-institutes:grid.26790.3a
153 schema:familyName Cohen
154 schema:givenName Laura
155 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0631063567.68
156 rdf:type schema:Person
157 sg:person.0677176767.42 schema:affiliation grid-institutes:grid.26790.3a
158 schema:familyName Grimley
159 schema:givenName Mary Beth
160 schema:sameAs https://app.dimensions.ai/discover/publication?and_facet_researcher=ur.0677176767.42
161 rdf:type schema:Person
162 grid-institutes:grid.214458.e schema:alternateName Division of Child and Behavioral Health, Department of Pediatrics & Communicable Diseases, University of Michigan, Ann Arbor, MI, USA
163 University of Michigan, Ann Arbor, MI, USA
164 schema:name Division of Child and Behavioral Health, Department of Pediatrics & Communicable Diseases, University of Michigan, Ann Arbor, MI, USA
165 University of Michigan, Ann Arbor, MI, USA
166 rdf:type schema:Organization
167 grid-institutes:grid.26790.3a schema:alternateName University of Miami, Miami, FL, USA
168 schema:name University of Miami, Miami, FL, USA
169 rdf:type schema:Organization
170 grid-institutes:grid.413558.e schema:alternateName Albany Medical College, Albany, NY, USA
171 schema:name Albany Medical College, Albany, NY, USA
172 rdf:type schema:Organization
 




Preview window. Press ESC to close (or click here)


...